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KCCI EIGHT NEWS AT TEN. A NORWALK WOMAN WHO LOST HER VOICE TO ALS GOT IT BACK IN AN UNEXPECTED WAY. KCCI ABIGAIL CURTIN SPOKE WITH HER THIS EVENING. ABIGAIL, TELL US A LITTLE MORE ABOUT HER STORY. WELL, THIS IS A PRETTY INCREDIBLE STORY, AND THERE ARE A LOT OF THINGS THAT PEOPLE CAN STRUGGLE WITH WHEN THEY HAVE ALS. MUSCLE WEAKNESS. DIFFICULTY EATING, EATING, AND COMMUNICATING. THOSE CAN BE HARD. AND THOSE ARE JUST SOME OF THE STRUGGLES THAT ROBIN LEEPER HAS HAD TO OVERCOME SINCE SHE WAS DIAGNOSED BACK IN 2023. BUT NEW TECHNOLOGY HAS BEEN ABLE TO EASE SOME OF THAT STRUGGLE AND GIVE HER A PART OF HERSELF BACK. WHEN ROBIN LEEPER WAS DIAGNOSED WITH ALS IN 2023, IT WAS ONE OF THE HARDEST MOMENTS OF HER LIFE. BUT WHEN SHE LOST HER ABILITY TO TALK, IT WAS EVEN HARDER. I CRIED, AND FOR THE FIRST YEAR I COULDN’T EVEN SAY ALS WITHOUT CRYING. AT THE TIME, SHE WAS THE PARKS AND REC DIRECTOR FOR THE CITY OF NORWALK. FOR A WHILE, SHE TRIED OTHER FORMS OF COMMUNICATION LIKE TEXT TO SPEECH, SOFTWARE OR SIGN LANGUAGE. BUT THAT’S WHERE THE CITY’S MARKETING AND COMMUNICATION SPECIALIST, TY LUE, CAME IN. WE HAVE FIVE SWIMMING POOLS. SHE COMBED THROUGH HOURS OF PUBLIC MEETINGS, RECORDS ISOLATING CLIPS OF ROBIN SPEAKING FROM WHEN SHE STILL COULD. FROM THERE, SHE UPLOADED THEM INTO AN AI SOFTWARE TO RECREATE ROBIN’S VOICE, WHICH SHE USED TO ACCEPT. NORWALK CITIZEN OF THE YEAR AWARD. I AM TRULY, DEEPLY HUMBLED AND GRATEFUL FOR THIS RECOGNITION. IT SOUNDED AS IF SHE WAS JUST STANDING THERE SPEAKING ON HER OWN. IN FACT, I HAD SEVERAL PEOPLE SAY I DIDN’T REALIZE THAT SHE WAS PLAYING A RECORDING OF HER VOICE. BUT FOR LEEPER, IT WASN’T JUST EXCITING TO BE ABLE TO HEAR HER OWN VOICE AGAIN. IT WAS A CHANCE TO FEEL LIKE HERSELF AGAIN. IT’S YOUR IDENTITY. PEOPLE CAN HEAR YOUR VOICE WITHOUT SEEING YOUR FACE, AND THEY KNOW THAT’S YOU. AS FOR WHAT’S NEXT, SHE’S GOT A NEW PRIORITY. FINDING A CURE. BOXHOLM. LIKE I SAID, A PRETTY INCREDIBLE STORY. AND SPEAKING OF FINDING A CURE, LEEPER WILL BE AT THIS SATURDAY’S WALK TO DEFEAT ALS IN ALTOONA. FOR MORE DETAILS ON THAT WALK AND HOW YOU CAN HELP SUPPORT LEEPER. BE SURE TO CHECK OUT THIS STORY ON KCCI.COM. FIRST OF ALL, AN AMAZING EXAMPLE OF THE GOOD THAT TECHNOLOGY CAN DO. ABSOLUTELY A CREDIT TO EVERYBODY WHO HELPED THIS HAPPEN. AND ROBIN, YOU KNOW, WE’RE THINKING OF YOU AND ADMIRE YOUR STRENGTH. AND I KNO
Woman who lost her ability to speak due to ALS got it back in an unexpected way
Updated: 4:02 AM PDT Oct 11, 2025
An Iowa woman who lost her ability to speak due to ALS got it back in an unexpected way.Robin Leaper was diagnosed with ALS, or amyotrophic lateral sclerosis, in 2023. Since then, she’s struggled with muscle weakness and difficulty eating, and she’s no longer able to speak. It’s been an adjustment, to say the least.”For the first year, I couldn’t even say ALS without crying,” she said. When she was diagnosed, she was the Parks and Recreation director for the city of Norwalk.Since then, she’s tried to communicate in other ways, like text-to-speech software or sign language, but neither one has allowed her to use her own voice.Until the city’s marketing and communications specialist, Tai Lieu, came in.Lieu combed through hours of public meeting recordings in which Leaper spoke, isolating her vocals and uploading them to an AI voice recreation software.That software allows Leaper to type her words, which are then read aloud in her own voice.”It sounded as if she was just standing there, speaking on her own,” Lieu said of Leaper’s first attempt at using the software when she won Norwalk’s Citizen of the Year Award last year. “I had several people say, ‘I didn’t realize she was playing a recording of her voice.’”But for Leaper, the AI recreation does more than allow her to use her own voice; it allows her to feel like herself again.”It’s your identity,” she said. “People can hear your voice without seeing, and they know it’s you. It gave me back a little piece ALS stole from me.”As for what’s next, Leaper says she has a new priority: finding a cure.She plans to start with Altoona’s Walk to Defeat ALS on Saturday.
An Iowa woman who lost her ability to speak due to ALS got it back in an unexpected way.
Robin Leaper was diagnosed with ALS, or amyotrophic lateral sclerosis, in 2023. Since then, she’s struggled with muscle weakness and difficulty eating, and she’s no longer able to speak.
It’s been an adjustment, to say the least.
“For the first year, I couldn’t even say ALS without crying,” she said.
When she was diagnosed, she was the Parks and Recreation director for the city of Norwalk.
Since then, she’s tried to communicate in other ways, like text-to-speech software or sign language, but neither one has allowed her to use her own voice.
Until the city’s marketing and communications specialist, Tai Lieu, came in.
Lieu combed through hours of public meeting recordings in which Leaper spoke, isolating her vocals and uploading them to an AI voice recreation software.
That software allows Leaper to type her words, which are then read aloud in her own voice.
“It sounded as if she was just standing there, speaking on her own,” Lieu said of Leaper’s first attempt at using the software when she won Norwalk’s Citizen of the Year Award last year. “I had several people say, ‘I didn’t realize she was playing a recording of her voice.’”
But for Leaper, the AI recreation does more than allow her to use her own voice; it allows her to feel like herself again.
“It’s your identity,” she said. “People can hear your voice without seeing, and they know it’s you. It gave me back a little piece ALS stole from me.”
As for what’s next, Leaper says she has a new priority: finding a cure.
She plans to start with Altoona’s Walk to Defeat ALS on Saturday.
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