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Tag: Ra

  • Life With RA: You Are Your Best Advocate

    Life With RA: You Are Your Best Advocate

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    For the first decade of her life, Saada Branker enjoyed a normal, active childhood in Montreal. But after a year of unexplained pain in her shoulders, hands, and feet, her doctor diagnosed her with polyarticular juvenile rheumatoid arthritis, now called juvenile idiopathic arthritis (JIA), when she was 12.

    That news 40 years ago surprised Branker’s parents. It was uncommon then — as it is today — to hear of children with arthritis. By the time Branker entered high school, her condition was severe enough to often leave her stuck on the sidelines.

    “The toughest part was sitting in gym class, watching the students do the things that I used to do,” says Branker, a freelance writer and editor in Toronto. “I was sitting on this skinny bench on the side of the gym for 40 minutes, watching them do the things I couldn’t do.”

     

     

    Branker disliked feeling like an outcast so much that she spent years covering up her disease. Only several dozen American children under 16 out of 100,000 have it. The type Branker had is rarer still. Polyarticular means the disease affects five or more big and small joints, such as in the ankles and feet.

    As Branker approached adulthood, her JIA became classified as rheumatoid arthritis (RA). The condition took a toll not just on Branker’s body but on her mental well-being. “I started to feel very self-conscious, I felt different. In high school, you don’t want to be different, you want to blend in.”

    The discomfort seeped into other parts of Branker’s life. It followed her to Ryerson University’s journalism program in Toronto, where she found the transition to college “life-altering and stressful” with RA. “Even though I was looking forward to it, it impacted me physically,” she says.

    The pain and stiffness from RA slowly made impossible the most routine of daily tasks. She could no longer twist her dreadlocks or drive her friends downtown. At her most pessimistic point, Branker simply assumed that she’d eventually lose her mobility and independence.

     

    Branker started her first job out of college as a program assistant at the Canadian Broadcasting Corporation just after having surgery on her elbow because of RA. Her duties included lifting and moving items, something her doctor advised her to avoid. But Branker was reluctant to confide to her employer.

    “I didn’t want anyone to know,” she says. “My challenge all the time was, ‘How do I look able-bodied like everyone else?’ What was more important to me at the time was fitting in and doing the job.”

    In fact, Branker kept her illness a secret — until she couldn’t. One morning in June 2001, she realized that she couldn’t put on her clothes.

    “When I went to get dressed, I couldn’t raise my arms to get the blouse on. I had to call my roommate to help dress me. That was the morning I decided I’m just going to tell everyone at work that I’ve been struggling with this disease.”

     

     

    Branker switched from blending in to speaking up. She also began to see a social worker to learn how to manage a lifelong illness mentally. “Through that, I developed this understanding that, not only do I need to talk about it, but people need to hear about this disease.”

    Branker learned how to lean on others. “People were so kind and would help. But it was also hard for me to accept. It always took a chunk out of me.”

    Branker used to fear for her future as her disease progressed. But she now realizes that the best path is to accept the unknown.

    “Losing mobility is something that we have to be real with ourselves about. When we lose the mobility, it doesn’t mean it’s gone forever. But at that moment, you have to mourn the loss.”

    Branker urges other with RA to be kind to themselves and to make their health their top priority.

    With her newfound self-advocacy, Branker acts as a team player for her treatment. She brings a list of questions to doctors’ appointments, does her research, and speaks up for therapy that she thinks may work best for her lifestyle.

     

    “All of that started to become comfortable and then normal for me. I started looking at [the physicians] as my team and not just doctors who teach me what to do. That shift helped empower me,” she says.

    Branker also takes advantage of assistive devices, including tools to help put on her socks or to grip cooking items.

    For each task she can’t finish, Branker is determined to adapt and to gain a new perspective.

    ”Instead of looking at it as ‘I can’t do it, it’s gone forever,’ I think, ‘What can I do in place of that?’ ” she says. You “don’t have to keep walking around, thinking ‘I got to act like everyone else and act like I can do this’ when on some days, you can’t, and that’s OK.”

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  • Sundance Film Festival unveils lineup for 2023 edition

    Sundance Film Festival unveils lineup for 2023 edition

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    Documentaries about Brooke Shields, Judy Blume and Michael J. Fox, films from veteran directors like Nicole Holofcener, an adaptation of the viral New Yorker story “Cat Person” and the feature directorial debut of actors Alice Englert and Randall Park are among the world premieres set for the Sundance Film Festival in January.

    Programmers for the world’s most prestigious showcase for independent films announced the lineup for the 2023 edition on Wednesday. After two pandemic hobbled years, plans are in motion to return to Park City in full force for the festival which runs from January 19 through January 29, with stars like Anne Hathaway, Tiffany Haddish, Julia Louis-Dreyfus, Alexander Skarsgård, Gael García Bernal, Cynthia Erivo, Daisy Ridley and Jonathan Majors headlining some of the 101 feature films in the slate. Tickets are currently on sale.

    The festival which helped launch the careers of filmmakers from Steven Soderbergh to Ryan Coogler, is once again celebrating a diverse slate of features from first-time filmmakers. Among the narrative features premiering, 16 are from first time directors, 7 of whom are women. In feature documentaries 16 are from first timers and 14 of those are women.

    “First time filmmakers are in the DNA of the festival. We’re always looking to find fresh voices to champion,” said Kim Yutani, the festival’s director of programming. “It’s such a pleasant surprise to look back and see those numbers and our program and to know that that organically happens.”

    As always, there are exciting documentaries about well-known names. Lana Wilson’s “Pretty Baby: Brooke Shields” charts the actor and model’s early days, when photographers and filmmakers depicted Shields in sexualized way as a very young girl, and how she found her agency. Davis Guggenheim in “Still: A Michael J. Fox Movie” looks at what happens when “an incurable optimist confronts an incurable disease.” There are also documentaries about Little Richard, food writer Ruth Reichl, pioneering Black fashion model Bethann Hardison and the Indigo Girls.

    In the U.S. Dramatic Competition, the section in which “CODA” debuted in 2021 before going on to win best picture at the Oscars, Molly Gordon and Nick Lieberman make their debut with “Theater Camp,” a Will Ferrell-produced comedy about a rundown theater camp in upstate New York scrambling to get ready for summer that stars Ben Platt. Jonathan Majors plays an amateur bodybuilder in Elijah Bynum’s “Magazine Dreams,” while Daisy Ridley shows her non-Star Wars chops in Rachel Lambert’s “Sometimes I Think About Dying,” which is among the day one premieres.

    “Shortcomings,” an adaptation of Adrian Tomine’s graphic novel, is the debut of “Fresh Off the Boat” star Randall Park, who directs Justin H. Min, Sherry Cola and Ally Maki in a comedic, irreverent look at Asian Americans in the Bay Area.

    Also making her feature directorial debut is Alice Englert with “Bad Behaviour,” a mother-daughter film about a former child actor, played by Jennifer Connelly, and mother to a stunt-performer daughter, who is looking for some enlightenment. Englert, whose own mother is Jane Campion, plays the daughter in the dark comedy about a toxic, co-dependent relationship, co-starrinng Ben Whishaw as a new age guru. Whishaw can also be seen alongside Adèle Exarchopoulos in Ira Sachs’ “Passages” about attraction and emotional abuse.

    Fans of “The Bear” may take interest in “Fremont,” about a former military translator who now works at a Chinese fortune cookie factory and features a supporting performance from Jeremy Allen White, while Ayo Edebiri co-stars in “Theater Camp.”

    “Succession” watchers will also find some of the show’s stars various films throughout the slate, like Sarah Snook getting to use her native Australian accent in Daina Reid’s “Run Rabbit Run,” about a fertility doctor grappling with ghosts from her past, and Nicholas Braun who lends a supporting hand in Susanna Fogel’s adaptation of “Cat Person,” starring Emilia Jones as the college student who gets involved with a 30-something man.

    Jones also anchors “Fairyland,” the Sofia Coppola-produced and Andrew Durham-directed adaptation of Alyssa Abbott’s best-selling memoir about a father-daughter relationship in San Francisco at the dawn of the AIDs crisis.

    The premieres section, which has debuted the likes of “Promising Young Woman” and “The Big Sick,” has many starry options. Thomasin McKenzie and Anne Hathaway co-star in William Oldroyd’s “Eileen” about a young secretary who becomes fascinated with a glamorous new counselor at the prison where she works in Massachusetts in 1964.

    Sundance veteran and documentary director Roger Ross Williams makes his narrative debut with “Cassandro,” starring Gael García Bernal as Saúl Armendáriz, a gay amateur wrestler from El Paso who becomes an international star. And Nicole Holofcener reunites with Julia Louis-Dreyfus for “You Hurt My Feelings,” about a novelist who overhears her husband’s “honest reaction” to her new book.

    Senior programmer John Nein noted that there are quite a few diaspora films represented in the various sections as well.

    “They reflect the changing film cultures of some of the places from which they come,” he said.

    Noora Niasari’s “Shayda” is about an Iranian woman (played by Zar Amir Ebrahimi ) with a 6-year-old daughter seeking refuge from an abusive relationship in a shelter in Australia. From the United Kingdom, there is “Girl,” from Adura Onashile about an 11-year-old and her mother who are from Africa. In the midnight section there is Nida Manzoor’s fun genre piece “Polite Society” about a wedding heist. And from the U.S., Sing J. Lee has “The Accidental Getaway Driver” about a Vietnamese cab driver taken hostage by escaped convicts in California.

    There are dozens of documentaries that focus on some of the most pressing issues of the moment, too, like Razelle Benally’s “Murder in Big Horn,” about the deaths of Native women in rural Montana, Tracy Droz Tragos’ “PLAN C” about a grassroots organization in the U.S. fighting to expand access to abortion pills, and Nancy Schwartzman helps uncover a troubling pattern of women reporting sexual assault who are then charged with creating a false report in “Victim/Suspect.” “20 Days in Mariupol,” directed by AP videojournalist Mstyslav Chernov in partnership with Frontline, gives an unprecedented look at the work of Ukrainian journalists trapped in Mariupol at the beginning of the Russian invasion.

    “These filmmakers reflect the world around us through bold and thrilling storytelling,” said Joana Vicente, CEO of the Sundance Institute. “It is critical for the arts to foster dialogue, especially during unprecedented times — these stories are needed to provoke discussion, share diverse viewpoints, and challenge us.”

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    Follow AP Film Writer Lindsey Bahr: www.twitter.com/ldbahr.

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  • States struggle with pushback after wave of policing reforms

    States struggle with pushback after wave of policing reforms

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    RICHMOND, Va. — The national reckoning on race and policing that followed the death of George Floyd — with a Minneapolis police officer’s knee on his windpipe — spurred a torrent of state laws aimed at fixing the police.

    More than two years later, that torrent has slowed.

    Some of the initial reforms have been tweaked or even rolled back after police complained that the new policies were hindering their ability to catch criminals.

    And while governors in all but five states signed police reform laws, many of those laws gave police more protections, as well. More than a dozen states only passed laws aimed at broadening police accountability; five states only passed new police protections.

    States collectively approved nearly 300 police reform bills after Floyd’s killing in May 2020, according to an analysis by the Howard Center for Investigative Journalism at the University of Maryland. The analysis used data from the National Conference of State Legislatures to identify legislation enacted since June 2020 that affects police oversight, training, use of force policies and mental health diversions, including crisis intervention and alternatives to arrests.

    Many of the accountability laws touched on themes present in Floyd’s death, including the use of body cameras and requirements that police report excessive force by their colleagues. Among other things, police rights measures gave officers the power to sue civilians for violating their civil rights.

    North Carolina, for example, passed a broad law that lets authorities charge civilians if their conduct allegedly interfered with an officer’s duty. But it also created a public database of officers who were fired or suspended for misconduct.

    In Minnesota — where the reform movement was sparked by chilling video showing Floyd’s death at the knee of Officer Derek Chauvin — the state Legislature enacted several police accountability changes, but they fell well short of what Democrats and activists were seeking.

    The state banned neck restraints like the one used on Floyd. It also imposed a duty to intervene on officers who see a colleague using excessive force, changed rules on the use of force and created a police misconduct database.

    But during this year’s legislative session, Democrats were unable to overcome Republican opposition to further limits on “no-knock” warrants even after a Minneapolis SWAT team in February entered a downtown apartment while serving a search warrant and killed Amir Locke, a 22-year-old Black man.

    In Minneapolis, voters defeated a 2021 “defund the police” ballot initiative that would have replaced the department with a reimagined public safety unit with less reliance on cops with guns.

    Similar dynamics have played out in states as varied as Washington and Virginia, Nevada and Mississippi. And if the range of outcomes has varied as well, that comes as no surprise to Thomas Abt, a senior fellow with the Council on Criminal Justice, a nonpartisan think tank.

    “We’re in the midst of this extraordinarily painful, very formidable process,” Abt said.

    ———

    WASHINGTON: PROGRESSIVE REFORMS MET WITH BACKLASH

    Days before the first anniversary of Floyd’s killing, Washington’s Democratic governor signed one of the most comprehensive police reform packages in the nation, including new laws banning the use of chokeholds and no-knock warrants.

    Police had argued that some of the reforms went too far and would interfere with their ability to arrest criminals. The pushback didn’t stop after the new laws went into effect.

    “There’s just that atmosphere of emboldened criminals and brazen criminality, and people telling law enforcement, ‘I know that you can’t do anything,’“ said Steve Strachan, executive director of the Washington Association of Sheriffs and Police Chiefs.

    Before the reforms, officers were generally allowed to use the amount of force necessary to arrest a suspect who fled or resisted.

    Police had historically been allowed to use force to briefly detain someone if they had reasonable suspicion that the person may be involved in a crime. Under the new law, police could only use force if they had probable cause to make an arrest, to prevent an escape or to protect against an imminent threat of injury.

    Police said the higher standard tied their hands and allowed suspected criminals to simply walk away when police stopped them during temporary investigative detentions.

    Earlier this year, lawmakers rolled back some provisions, making it clear that police can use force, if necessary, to detain someone who is fleeing a temporary investigative detention. Police must still use “reasonable care,” including de-escalation techniques, and cannot use force when the people being detained are being compliant.

    Some are pushing for additional rollbacks. In a video released last month, a group of sheriffs, police chiefs and elected officials urged people to call their legislators to ask them to lift some new restrictions on police pursuits. Some suspects are ignoring commands to pull over, they said, knowing police cannot chase them.

    Current law prohibits police from engaging in a pursuit unless there is probable cause to believe someone in the vehicle has committed a violent offense or sex offense, or there is reasonable suspicion that someone is driving under the influence.

    Carlos Hunter, a 43-year-old Black man, was fatally shot by police in 2019. His sister, Nickeia, said it was disheartening to see some of the laws amended after years of reform efforts.

    “Any good the reforms that were in place did, they are going to try to undo in 2023,” she said. “They are trying to roll back every gain that was made.”

    ———

    NEVADA: REFORMS BLUNTED BY LACK OF FUNDING

    On paper, the police reforms passed in Nevada in 2021 appeared expansive.

    The public would get a statewide use-of-force database with information on deadly police encounters. Law enforcement agencies were mandated to develop an early-warning system to flag problematic officers. And officers had to de-escalate situations “whenever possible or appropriate” and only use an “objectively reasonable” amount of force.

    A year later, a lack of funding and a failure to follow through have blunted the impact of the reforms.

    The database doesn’t exist yet. The early-warning system wasn’t clearly defined, so some police departments said they’ve made no changes. And many law enforcement agencies already had de-escalation language in their use-of-force policies.

    While the Las Vegas Metropolitan Police Department, the state’s largest, had enacted reforms before the new laws, little has changed in the daily operations of smaller police forces.

    Sheriff Gerald Antinoro of Storey County, an area outside of Reno with an Old West mining past, said his department regularly updated its use-of-force policy and had its own “fail safes” to identify troubled officers.

    “If you want my opinion, mostly it was feel-good legislation that somewhere along the lines, somebody thought they were making a huge difference,” Antinoro said. “It’s fluff and mirrors.”

    Others are even more blunt.

    The reforms are “a waste of time” said Brian Ferguson, undersheriff for rural Mineral County.

    “I think it’s a way for a politician to say they made a change,” Ferguson said. “It really hasn’t changed the way we’ve been operating.”

    For this story, reporters at the Howard Center for Investigative Journalism at Arizona State University contacted the largest police departments in Nevada, as well as the sheriff’s offices for each of the state’s 16 counties. Of the eight agencies that responded, a few said they made small changes, like tweaking their use-of-force policies to align with the new law.

    Nevadans’ pro-police “Blue Lives Matter” sentiment and intense lobbying by prosecutors and police unions made it harder to pass reforms in Nevada than elsewhere, said Frank Rudy Cooper, director of the Program on Race, Gender & Policing at the University of Nevada, Las Vegas.

    The pared-down reforms still face obstacles.

    The Nevada Department of Public Safety waited more than a year before it received funding in August to begin collecting use-of-force data from all law enforcement agencies in the state. An estimate prepared by the software developer projected that costs associated with the data gathering would top $85,000. Details will include type of force and whether the civilian had a mental health condition or was under the influence of drugs or alcohol.

    Other aspects of Nevada’s police reforms lack clear enforcement mechanisms. No one, for example, oversees setting standards for how departments identify problematic officers.

    “We were able to get ourselves out of that one,” said Mike Sherlock, executive director of the Nevada Peace Officer Standards and Training Commission, the state’s regulatory agency for law enforcement. Sherlock said the commission worried about the labor needed to keep track of officers and a lack of specifics about what defines problematic behavior.

    Meanwhile, no state agency is charged with tracking whether departments have updated their use-of-force policies.

    The Legislature’s leading reformer, state Sen. Dallas Harris, said she had to scale back the bills to get them passed. Ultimately, she said, it’s up to the public and the police departments themselves to make sure change happens.

    “I’m in the Legislature,” Harris said. “There’s only so far our reach extends.”

    ———

    MISSISSIPPI: LITTLE APPETITE FOR POLICE REFORM

    In Mississippi, where 38% of the population is Black, there is little political appetite for police reform — and Republican state Sen. Joey Fillingane is clear when he explains why.

    “The general feeling among my constituents in south Mississippi is we need to support police and thank them for the job they’re doing because crime is on the rise and they are standing between us and the criminal element,” he said.

    But there are some who see a need for action.

    Jarvis Dortch, executive director of the American Civil Liberties Union of Mississippi, was a member of the Mississippi House of Representatives when Floyd was killed. He watched as states around the country enacted a wide assortment of police reforms while no police accountability measures were approved in Mississippi.

    “It’s disappointing,” Dortch said.

    It is more than disappointing to Black people like Darius Harris who say their encounters with police are fraught because of racism.

    For years, Harris would go into Lexington, Mississippi, four or five times a week, to visit his brother or go grocery shopping. These days, Harris said he goes 20 miles out of his way to buy food rather than set foot in the small city in the Mississippi Delta.

    The reason, according to Harris, is that he is regularly targeted and threatened by Lexington police.

    “It’s not worth the risk of being harassed,” said Harris, a 45-year-old construction worker.

    Harris is one of five plaintiffs in a federal lawsuit that accuses the Lexington Police Department of subjecting Black residents to intimidation, excessive force and false arrests.

    Harris and his brother, Robert, were arrested on New Year’s Eve in 2021 as they shot off fireworks at Robert Harris’ house. The brothers were arrested again in April and charged with “retaliation against an officer” after they spoke out against the police department at a meeting, according to the lawsuit.

    Lexington’s population of 1,600 is about 80% Black. The lawsuit alleges that Lexington is “deeply segregated” and controlled by a small group of white leaders. Also named as a defendant is former Police Chief Sam Dobbins, who was fired in July after he was heard on an audio recording using racial slurs and saying he had killed 13 people in the line of duty.

    Attorneys for Dobbins acknowledge in court documents that the former chief was recorded “saying things he should not have said,” but argue that he did not violate the constitutional rights of the Harris brothers and the other plaintiffs.

    The new police chief, Charles Henderson, is Black. He denied any racial bias on the part of his officers.

    “Our police, we’re not prejudiced,” he said. “We definitely don’t stand behind any kind of racial profiling.”

    ———

    VIRGINIA: SHIFTING MENTAL HEALTH CALLS AWAY FROM POLICE

    Virginia, once a reliably conservative state, flexed its then-new Democratic muscle after Floyd’s death, passing a sweeping package of police reforms. Among them: legislation banning the use of chokeholds and no-knock search warrants.

    A key part of the reform package was a bill to set up a new statewide framework giving mental health clinicians a prominent role in responding to people in crisis — rather than relying on police. The law was named after Marcus-David Peters, an unarmed Black man who was fatally shot by a Richmond police officer in 2018 during a psychiatric crisis.

    Advocates hoped the new law would minimize police participation in emotionally charged situations that they may not be adequately trained to handle and can end with disastrous results.

    Five pilot programs began last year in various regions of the state, but some supporters of the law were disappointed when an amendment approved by the Legislature earlier this year gave localities with populations of 40,000 and under the ability to opt out of the system.

    Peters’ sister, Princess Blanding, said the law she envisioned has been “watered down to the point that overall it is ineffective.”

    The law allows each region to decide how to respond to mental health crises. “This lack of consistency is very dangerous and it could be the difference between life and death,” Blanding said.

    Before the program began, police would be dispatched to respond to mental health emergency calls to 911. After the new system launched in December, lower-risk calls began to be connected to the regional crisis call center but high-risk calls continued to be dispatched to police.

    Now, where the system is active, “community care teams” made up of police and mental health professionals (also known as co-response teams) are dispatched by 911 under certain circumstances, when available.

    Under the new system, mental health calls are assigned levels of urgency:

    –Those that do not require police investigation and are connected to the regional crisis call centers — part of the 988 National Suicide & Crisis Lifeline — for support and mental health referrals.

    –Calls in which the risk is assessed as urgent and a community care team is deployed.

    –High-risk situations, when police and other first responders are dispatched.

    On a recent weekday, dispatchers at the Richmond Department of Emergency Communications Center received a call from a woman who said there was a schizophrenic homeless man screaming on her front porch. A co-response team made up of a police officer and a mental health clinician responded. The man told them he was trying to get out of the rain and didn’t mean any harm.

    Another caller said someone told her to check herself into a mental ward. The dispatcher asked her if she was hurting anyone, including herself. “Nothing happened, but I’m going through a psychosis,” she said. The dispatcher transferred her to the 988 center.

    The legislation allowing small communities to opt out was introduced by Republican lawmakers who said those localities worry they cannot afford to set up a new response system and to hire additional mental health workers. The General Assembly allocated $600,000 for each regional behavioral health authority in the state to implement the program, but some small communities say that is not enough.

    Nine out of the 10 counties covered by the Middle Peninsula Northern Neck Community Services Board — a sprawling area, roughly the size of the state of Delaware, along the western shore of the Chesapeake Bay — have decided to opt out, said Executive Director Linda Hodges.

    “When this law was developed, they did not take these small rural communities into consideration,” Hodges said.

    In the capital Richmond, John Lindstrom, chief executive officer of the Richmond Behavioral Health Authority, said he is encouraged by the early results of the co-response teams.

    Between Aug. 15 and Sept. 30, when the first of two co-response teams was activated, there were 69 calls. None resulted in arrests, the use of force or injuries. Nine people were taken into custody for involuntary hospitalization, and 87% were given referrals to community mental health providers.

    “We’re not going to fix every bad outcome,” Lindstrom said, “but we want to further reduce them, to increase resources so people can have more confidence that if you call 911 or call 988 you’re going to get help, you’re not going to get hurt.”

    ———

    Lavoie reported from Richmond, Virginia; Monnay reported from College Park, Maryland; Rihl reported from Las Vegas. Rachel Konieczny in Phoenix and Steve Karnowski in Minneapolis also contributed reporting.

    ———

    This story is a collaboration among The Associated Press and the Howard Centers for Investigative Journalism at the University of Maryland’s Philip Merrill College of Journalism and at Arizona State University’s Walter Cronkite School of Journalism and Mass Communication. The Howard Centers are an initiative of the Scripps Howard Fund in honor of the late news industry executive and pioneer Roy W. Howard.

    Contact Arizona State’s Howard Center at howardcenter@asu.edu or on Twitter @HowardCenterASU. Contact Maryland’s Howard Center on Twitter @HowardCenterUMD.

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