ReportWire

Tag: hospitals

  • Desperate for heart surgery for their baby, a family feels the effects of pediatric hospital shortages | CNN

    Desperate for heart surgery for their baby, a family feels the effects of pediatric hospital shortages | CNN



    CNN
     — 

    Even before their daughter was born in June, Aaron and Helen Chavez knew she would need heart surgery. Doctors expected her to have an operation around 6 months of age.

    When it became apparent in September that it would have to happen much sooner than expected, the Chavezes said, they endured an agonizing monthlong wait for a bed to open at their local children’s hospital so baby MJ could have the procedure she needed.

    “They said, ‘Well, we would love to get her in as soon as possible. However, right now, we don’t have beds,’ ” Aaron said.

    Space for children in hospitals is at a premium across the country. Data reported to the US government shows that as of Friday, more than three-quarters of pediatric hospital beds and 80% of intensive care beds for kids are full. That’s up from an average of about two-thirds full over the past two years.

    Federal data shows that the strain on hospital beds for kids began in August and September, which is right around the start of the school year in many areas.

    Hospitals are seeing higher than normal numbers of sick infants and children due to a particularly early and severe season for respiratory infections in kids, including respiratory syncytial virus, or RSV, and influenza.

    As of Friday, Golisano Children’s Hospital in Rochester, New York, the facility that treated the Chavezes’ daughter, was over capacity. Federal data shows that it has been consistently more full than the national average over the past few months. Golisano went from having 85% of its beds occupied in August to over 100% now.

    Like many other hospitals across the country, Golisano has seen a sharp increase in children who are severely ill with RSV. Dr. Tim Stevens, the chief clinical officer, said 35% of the hospital’s current patients – excluding those in the neonatal intensive care unit – have RSV.

    A lack of available beds means patients are sometimes held in the emergency department to wait for a bed to open so they can be admitted, Stevens says.

    It may also mean children who have chronic conditions and need procedures or hospital care, but whose conditions are stable, may have to wait.

    MJ was born in June with a ventricular septal birth defect – a hole between the pumping chambers of her heart. It’s a relatively common problem affecting about 1 in every 240 infants in the United States, according to the US Centers for Disease Control and Prevention.

    Doctors could see the defect on prenatal ultrasounds, but because MJ was never in the right position to get a good image, they weren’t sure of its size.

    If they’re small enough, these holes usually close on their own soon after birth. But the hole in MJ’s heart was not small.

    It caused the oxygen-rich blood coming from her lungs to mix with oxygen-poor blood returning from the rest of her body. Too much blood got squeezed back into her tiny lungs with each heartbeat, straining her respiratory system.

    Everything exhausted her, even nursing or drinking from a bottle. “She would stop eating before she was full and before she got the calories that she needed,” Aaron said.

    Typically, babies will take a bottle for 15 to 20 minutes at a time, but MJ would doze off after six or seven minutes, her mother recalls.

    They didn’t worry, Helen says, because they were trying hard not to be anxious newbies. “All those websites, they say sometimes you just have a sleepy baby, and it’s OK,” she said.

    Other signs that MJ might be hungry could be explained away, too. They mistook her constant fussing for colic. Her scalp started to get dry and flaky, and they thought it might be a common skin condition called cradle cap.

    As first-time parents, the Chavezes didn’t realize at first that MJ wasn’t eating enough. Doctors didn’t immediately catch it, either. MJ got three checkups during her first month, one within a few days of coming home from the hospital, the other at two weeks and another at one month.

    It’s normal for babies to lose weight after birth, especially if Mom got IV fluids during labor and delivery. They typically return to their birth weights by 2 to 3 weeks of age. And at first, MJ did regain weight, climbing back to her birth weight by 2 weeks old.

    But babies with heart conditions like hers can have faster-than-normal metabolisms, and it was between weeks two and four that her parents say the feeding issues really began to cause problems.

    “We were frustrated and we were scared, because she looked like she was losing weight, not gaining weight. She was very thin for a baby,” Aaron said.

    The doctors had advised them to count the number of wet and dirty diapers she was having each day as a way to judge whether she was eating enough. Her parents didn’t know it was not as much as she should have been.

    “One day, I was holding her, sitting in our recliner. I looked down at her and I was like, ‘this baby looks puny. Like, she does not look like she feels good,’ ” Helen said.

    She called their pediatrician, who saw them the same day. The pediatrician immediately notified their cardiologist, who arranged for a feeding tube to help MJ get more nutrition.

    Helen says they had been told MJ would need surgery to repair the hole in her heart around 6 months of age.

    “Once the feeding issues started, though, that I think that we all kind of realized that, OK, she’s probably not going to hit that six-month mark,” she says.

    MJ got the feeding tube when she was around 6 weeks old, in August. Her doctors started talking about moving the operation up but advised her parents that she would need to gain some weight first.

    The feeding tube helped for a time, but by the time MJ was 3 months old, her condition had deteriorated.

    “Every breath came with a grunt,” Aaron said. “She was fairly regularly sweating, no matter the ambient temperature in the room or whether we were holding her or not.”

    Every time MJ drew a breath, the skin around her collarbone would suck in and her abdomen would pull under ribcage, a symptom known as a retraction. Retractions are a sign that someone is working very hard to breathe.

    “It looked like her chest was almost scooping under her lungs with each breath. The retractions were getting really bad. It was around that point that they told us, ‘Hey, yeah, this is accelerating faster. We’re going to need to get her in for surgery soon,’ ” Aaron said.

    Helen said their cardiologist first discussed getting MJ’s case reviewed – a key step her doctors needed to prepare for her surgery – on September 14.

    “He said, ‘it might take a couple of weeks to get her in because we’ve been really slammed with emergencies, but we’ll get her in,’ ” Helen said.

    Doctors put MJ on medications called diuretics to help drain excess fluid off her lungs and ease her breathing – but then, at the end of September, she caught a cold.

    It wasn’t a bad cold, and Helen Chavez, a pharmacist, thinks that if the baby had been healthy, she probably could have fought it off at home with no problems. But Helen was worried, so she took she MJ to the ER.

    The doctors checked her, determined she was stable and sent the family home with supportive care.

    At a follow-up doctor’s visit, Helen said, she asked again, “Where are we on the surgery?”

    Helen said the cardiologist said they had not been able to review MJ’s case.

    “And they said, ‘Well, we would love to get her in as soon as possible. However, right now we don’t have beds,’ ” Aaron said.

    “Throughout that time, she kept getting worse. More symptoms would pop up in terms of the breathing would get worse, the retractions would get worse, that kind of a thing. Like there was more and more and more piling up,” Aaron said.

    Helen said she understood that MJ’s condition was still stable, but she was worried it wouldn’t stay that way.

    “I was like, ‘I’m worried she’s going to crash and that’s how we’re going to get in for this surgery is, it’s going to take this kid crashing and burning before we can get her in,’ ” Helen told the doctor, who reassured her.

    ” ‘No, no, no, she is not going to get to that point before we get her in,’ ” she says they were told.

    On October 10, things took a turn.

    The baby slept in a bassinet beside her parents’ bed. Helen nudged Aaron awake around midnight to look at their daughter, and his first thought was to reassure his wife that yes, the doctors had told them that her breathing was going to look bad. But then he rolled over and peered at MJ, who was asleep.

    “That was the moment that I was wide awake,” Aaron said, and he was terrified.

    “It was the raggedness of her breathing and the noise. Every breath, there was a strange sound coming from her. It sounded like she was fighting for, like, struggling for every breath.”

    They raced to the hospital.

    “We were sitting in the ER, and every other kid in that pediatric ER was hacking, coughing, sneezing,” Helen said. “Clearly, respiratory viruses hit Rochester early and very hard.”

    Helen said it was clear by the end of that visit that medications had done all they could do and that MJ would continue to get worse without the operation.

    “Our understanding is, it took an extra ER visit to push the timeline,” Helen said.

    That visit prompted an emergency appointment with the cardiologist.

    “That’s where they were like, ‘OK, we’ve got her in for conference,’ ” Helen said.

    The hospital says it can’t comment on the specifics of MJ’s case.

    “The Golisano Children’s Hospital cardiology and cardiac surgery teams review the status of all pediatric patients who need heart surgery twice a week,” the hospital said in a statement to CNN. “We cannot comment on a specific case, but once surgery becomes necessary, it is scheduled as quickly as needed based on the medical condition of the child. The current high census of pediatric inpatients at our hospital has not affected our ability to schedule non-elective pediatric cardiac surgeries in a timely way.”

    Stevens, the chief clinical officer, says those decisions are made on a case-by-case basis.

    “Each of those are reviewed by our medical and surgical team to determine whether or not they’re time-sensitive,” he said. “Things that are time-sensitive or certainly urgent or emergent, they get done.”

    When it becomes clear that a child needs to be admitted, Stevens said, hospital officials find ways to open beds, and they try to do it so it doesn’t exhaust their nurses.

    Stevens says he’s hopeful the situation will improve, that infections will die down, “because this is not sustainable.”

    Aaron Chavez agrees that there was no delay once MJ’s case got the necessary review – but says that review itself kept getting put off.

    “We were essentially told that her case review was being delayed because they simply didn’t have the beds,” he said.

    The surgical team reviewed MJ’s case on October 13, and she had surgery 12 days later, according to Aaron.

    Aaron says the family has no complaints about the quality of care their daughter received, and they’re grateful to the entire team of doctors, nurses and other staff who treated their daughter.

    “Once push came to shove, they definitely got her in, but the last four weeks were really, really harrowing,” Helen said. “It was just kind of hard to watch your baby have trouble breathing and know that there’s not a whole lot you can do.”

    On the morning of October 25, the Chavezes brought MJ to the hospital, where doctors walked them through the operation. A piece of synthetic material would be sewn into her heart to patch the hole. Over time, the material would allow her own cells to grow on it and cover the defect.

    The procedure could take as long as 12 hours. But it went faster than anticipated, and MJ was finished in half that time. The surgeon came out to tell them the good news: The operation had been a success.

    “Her surgeon said that it was the biggest hole that he has seen in 2022 and one of the biggest he has ever seen,” Aaron said.

    The Chavezes then went to the pediatric intensive care unit to wait for MJ. As soon as they saw her, they could see she was better.

    Before the surgery, her skin had been pale and mottled; after, she was a healthy pink.

    “Just in that short amount of time, her skin had that pinkness and redness in places that you expect like the nose, and her fingers were proper pink,” he said. “That color you expect out of a healthy baby. It was really nice to see that.”

    She was in the hospital for six days, and her recovery amazed her care team.

    “She kind of crushed recovery milestones like it was her job,” Aaron said.

    Now back home, MJ is playing catch-up with the developmental milestones she missed while she was sick. Her muscles are weak, she can’t sit up or roll over yet, and she may never switch back from the feeding tube to a bottle. A team of occupational and physical therapists comes over to help. They expect she will eventually make up for the time she missed, but it will take some work.

    Still, Aaron says the surgery has had an amazing effect.

    Before her operation, MJ was very uncomfortable and always tired.

    “The baby that I have now, that returned from surgery, is constantly smiling at us. She’s almost laughed three different times in the last couple of days, right? She’s so close to a laugh. She seems like an entirely different baby,” Aaron said.

    The Chavezes were nervous about sharing their story, but in the end, they decided it was important to shed light on the effects of the ongoing hospital bed shortage.

    “Everybody we have told about the bed shortage, that we have told about the nurses and the staff and the doctors telling us how burnt-out and frustrated they are and how tired they are, everybody’s surprised,” Aaron said.

    “Everybody’s shocked. Everybody thinks that this is over. The pandemic is over. Our health care system’s back to normal. ‘What are you talking about? What shortages?’ “

    In the end, they felt powerless. What could they – two exhausted working parents with a sick infant – do to solve a national crisis?

    After all, after nearly three years of a viral pandemic, doesn’t everyone already know what to do? Stay home if you’re sick. Put on a mask in public places while viral illnesses are running rampant. Get vaccinated.

    “I don’t know how I’m supposed to help tell 330 million people, ‘Hey, you should care about each other,’ ” Aaron says.

    Their story is one reminder of why all those simple but effective measures are important.

    “In the end, we believe the information getting out there is better than not,” Aaron said. “Hopefully, it will help push those in power to do better.”

    Source link

  • 10,000 brains in a basement: The dark and mysterious origins of Denmark’s psychiatric brain collection | CNN

    10,000 brains in a basement: The dark and mysterious origins of Denmark’s psychiatric brain collection | CNN

    Editor’s Note: Watch the special documentary, “World’s Untold Stories: The Brain Collectors,” November 12-13 on CNN International.



    CNN
     — 

    For years, there had been whispers. Rumors swirled; stories exchanged. It wasn’t a secret, but it also wasn’t openly discussed, adding to a legend almost too incredible to believe.

    Yet those who knew the truth wanted it out.

    Tell everyone our story, they said, about the brains in the basement.

    As a child, Lise Søgaard remembers whispers, too, though these were different – the family secret kind, hushed because it was too painful to speak it out loud.

    Søgaard knew little about it, except that these whispers centered on a family member who seemed to exist solely in one photograph on the wall of her grandparent’s house in Denmark.

    The little girl in the picture was named Kirsten. She was the younger sister of Søgaard’s grandmother, Inger – that much she knew.

    “I remember looking at this girl and thinking, ‘Who is she?’ ‘What happened?’” Søgaard said. “But also this feeling of a little bit of a horror story there.”

    As she grew into adulthood, Søgaard continued to wonder. One day in 2020, she went to visit her grandmother, now in her mid-90s and living at a care home in Haderslev, Denmark. After all that time, she finally asked about Kirsten. Almost as if Inger had been waiting for that very question, the floodgates opened, and out poured a story Søgaard never expected.

    Kirsten Abildtrup was born on May 24, 1927, the youngest of five brothers and her sister, Inger. As a child, Inger remembers Kirsten as quiet and smart, the two sisters sharing a close bond. Then, when Kirsten was around 14 years old, something began to change.

    Kirsten experienced outbursts and prolonged bouts of crying. Inger asked her mother if it was her fault, often feeling that way because the two girls were so close.

    “At Christmas, they were supposed to go on a visit to some family members,” Søgaard said, “but my great-grandmother and father, they stayed home and sent all of their children away except for Kirsten.”

    When they got back from that family visit, Søgaard said, Kirsten was gone.

    It was the first of many hospitalizations, and the start of a long and painful journey that would ultimately end in Kirsten’s death.

    The diagnosis: schizophrenia.

    Kirsten was first hospitalized towards the end of World War II, when Denmark and the rest of Europe were at last on the verge of peace.

    Like so many places, Denmark was also grappling with mental illness. Psychiatric institutions had been built across the country to provide care for patients.

    Doctors prepare a patient for electroshock therapy at Augustenborg Psychiatric Hospital in Denmark, 1943.

    But there was limited understanding of what was happening in the brain. The same year peace came to Denmark’s doorstep, two doctors working in the country had an idea.

    When these patients died in psychiatric hospitals, autopsies were routinely performed. What if, these doctors thought, the brains were removed – and kept?

    Thomas Erslev, historian of medical science and research consultant at Aarhus University, estimates that half of all psychiatric patients in Denmark who died between 1945 and 1982 contributed – unknowingly and without consent – their brains. They went to what became known as the Institute of Brain Pathology, connected to the Risskov Psychiatric Hospital in Aarhus, Denmark.

    Doctors Erik Stromgren and Larus Einarson were the architects. After roughly five years, said Erslev, pathologist Knud Aage Lorentzen took over the institute, and spent the next three decades building the collection.

    Dr. Larus Einarson, shown here teaching a class, was one of the co-founders of the brain collection at the Institute of Brain Pathology.

    The final tally would amount to 9,479 human brains – believed to be the largest collection of its kind anywhere in the world.

    In 2018, pathologist Dr. Martin Wirenfeldt Nielsen got a call. The brain collection, as it would come to be known, was on the move.

    A lack of funding meant it could no longer stay in Aarhus, but the University of Southern Denmark in the city of Odense had offered to pick up the mantle. Would Wirenfeldt Nielsen be interested in overseeing it?

    Pathologist Dr. Martin Wirenfeldt Nielsen now oversees the brain collection, housed in Odense, Denmark.

    “I’d sort of heard of it in the periphery,” Wirenfeldt Nielsen recalled. “But my first real knowledge about the vast extent of it was when they decided to move it down here … (because) how do you actually move almost 10,000 brains?”

    The yellowish-green plastic buckets housing each brain, preserved in formaldehyde, were placed into new white buckets that were sturdier for the transport, and hand-labeled in black marker with a number. And then the brains, give or take a few (no one knows where bucket #1 is, for example) made their way to their new home in a large basement room on the university’s campus.

    “The room wasn’t actually ready when they moved it down here,” Wirenfeldt Nielsen said. “The whole collection was just standing there, buckets on top of each other, in the middle of the floor. And that’s when I saw it for the first time … That was like, okay, this is something I’ve never seen before.”

    Eventually, the nearly 10,000 buckets were placed on rolling shelves, where they remain today – waiting – representing lives, and a range of psychiatric disorders.

    There are roughly 5,500 brains with dementia; 1,400 with schizophrenia; 400 with bi-polar disorder; 300 with depression, and more.

    What separates this collection from any other in the world is that the brains collected during the first decade are untouched by modern medicines – a time capsule of sorts, for mental illness in the brain.

    “Whereas other brain collections … (are) maybe specified for neurodegenerative diseases, dementia, tumors, or other things like that – we really have the whole thing here,” Wirenfeldt Nielsen said.

    But it has not been without controversy. In the 1990s, the Danish public got wind of the collection, which had been sitting idle since former director Lorentzen’s retirement in 1982.

    It would kick off one of the first major ethical science debates in Denmark.

    A history of The Brain Collection

    1945

    The Institute of Brain Pathology is founded, connected to the Risskov Psychiatric Hospital in Aarhus, Denmark

    Risskov, pictured here in the early 1900s.

    Credit: Museum Ovartaci

    1945-1982

    Nearly 9,500 brains are collected without permission from deceased psychiatric patients across the country

    Brains were collected and sent from Danish hospitals, including Rigshospitalet (pictured) in Copenhagen.

    Credit: Jesper Vaczy/Medical Museum

    1982

    The head of the brain collection, Knud Aage Lorentzen, retires. Nobody takes his place, and the collection sits untouched in a basement

    The brains, shown here in their original yellow buckets, would remain largely untouched for more than 20 years.

    Credit: Hanne Engelstoft

    1987

    The Danish Council of Ethics is established

    The Council of Ethics is an independent group formed to advise the Danish parliament (pictured here in 2016) on ethical matters.

    Credit: olli0815/iStock/Getty Images

    1991

    After the Council of Ethics says the brains can be used with certain restrictions in place, SIND (Denmark’s national association for psychiatric health) demands the brains be buried – sparking one of the first major ethical science debates in Denmark

    Some pieces of brain material are preserved in paraffin wax.

    Credit: Hanne Engelstoft

    2005

    Danish scientist Karl-Anton Dorph-Petersen takes over the collection’s daily maintenance at Aarhus

    Karl-Anton Dorph-Petersen helped revive and preserve the collection in the mid-2000s.

    Credit: Hanne Engelstoft

    2006

    The Council of Ethics goes against political and religious demands by ruling it is ethically sound to use deceased psychiatric patient brains for research without getting the consent of relatives. This time, SIND agrees

    The collection includes patient records and tissue preserved on slides, such as these.

    Credit: Hanne Engelstoft

    2017-2018

    A lack of funding threatens the brains, and the collection is saved by moving it to Odense, where Dr. Martin Wirenfeldt Nielsen takes over

    The brains were put into new white buckets to move to Odense, where they remain safely stored on rolling shelves.

    Credit: Samantha Bresnahan/CNN

    Source: Thomas Erslev, historian of medical science

    Graphic: Woojin Lee, CNN

    “There was a discussion back and forth, and one position was that we should destroy the collection – either bury the brains or get rid of them in any other ethical way,” said Knud Kristensen, the director of SIND, the Danish national association for mental health, from 2009 to 2021, and current member of Denmark’s Ethical Council. “The other position said, okay, we already did harm once. Then the least we can do to those patients and their relatives is to make sure that the brains are used in research.”

    After years of intense debate, SIND changed its position. “All of a sudden, they were very strong proponents for keeping the brains,” Erslev said, “actually saying this might be a very valuable resource, not only for the scientists, but for the sufferers of psychiatric illness because it might prove to benefit therapeutics down the line.”

    “For (SIND),” Kristensen said, “It was important where it was placed and to make sure that there would be some sort of control of the future use of the collection.”

    By the time it moved to Odense in 2018, the ethical debate was largely settled, and Wirenfeldt Nielsen became caretaker of the collection.

    A few years later, he would get a message from Søgaard. Was it possible, she asked, that he had a brain there belonging to a woman named Kirsten?

    In the search for what happened to her great aunt Kirsten, Søgaard realized there were clues all around her. But piecing together what exactly had happened to her grandmother’s sister was slow, filled with dead ends and false starts.

    Yet she was enthralled, and began officially reporting her journey for Kristeligt Dagblad, the Copenhagen-based newspaper where she worked – eventually bringing it to light in a series of articles.

    At one point, Søgaard decided to focus on a single word her grandmother had told her, the name of a psychiatric hospital: Oringe.

    “I opened my computer and I searched for ‘Oringe patient journals,’” she said. After putting in a request through the national archives, “I got an email that said, ‘Okay, we found something for you, come have a look if you want.’ … I felt this excitement … like, she’s out there.”

    Journalist Lise Søgaard made it her mission to find out what happened to her grandmother's little sister, Kirsten -- a journey that would take her places she never imagined. She shared that experience with CNN's Dr. Sanjay Gupta at her home outside Copenhagen in April 2022.

    That excitement was short-lived. At the national archives, they placed a mostly empty file in front of her. It wasn’t much to go on, but it confirmed Kirsten’s diagnosis of schizophrenia.

    Without another solid lead, Søgaard wondered where to go next. Then, almost in passing, as they looked through old family photos together, her mother said something that she’d never heard before.

    “She said, ‘You know, they might have kept her brain,’ and I said, ‘What?!’” Søgaard told CNN’s Dr. Sanjay Gupta at her house outside of Copenhagen. “And she told me what she knew about the brain collection.”

    At age 95, Søgaard’s grandmother, Inger, could still clearly picture visiting her little sister Kirsten in the hospital, after the symptoms she first started experiencing at age 14 continued to progress.

    Upon one visit, Inger remembered, “(Kirsten) was lying there, completely apathetic. She was not able to speak to us. … Another day we went to visit her, and she was gone from her room. They told us she had thrown a glass at a nurse, and they had sent her to the basement, to a room where they (restrained) her with belts. And we were not allowed to go in, but I saw her through a hole in the door; she was lying there, strapped up.”

    One floor of the Oringe psychiatric hospital is now a museum, which displays medical treatments and patient rooms such as this one.

    Inger felt confused and scared, she said, because it could have been anyone, including her, that might get “sick.”

    At Sankt Hans, one of the largest and oldest psychiatric hospitals in Denmark, Dr. Thomas Werge walks the same grounds he did as a child, when his own grandmother was hospitalized there. Now, he runs the Institute for Biological Psychiatry there, where he and his team study the biological causes that contribute to psychiatric disorders.

    A 2012 study found that roughly 40% of Danish women and 30% of Danish men had received treatment for a mental health disorder in their lifetimes – though Werge estimated that number would “almost certainly” be higher if the same study was done today. (By comparison, that same year, less than 15% of US adults received mental health services.) Among the other Nordic countries, including Sweden and Norway, Werge said the numbers would be comparable to Denmark’s, as there are “similar [universal] health care systems and standards for admission.”

    “Mental (health) disorders are all over,” he added. “We just do not recognize this when we walk around among people. Not everybody carries their pain on the outside.”

    For schizophrenia, there are no blood tests or biomarkers to signify its presence; instead, doctors must rely only on a clinical exam.

    Schizophrenia presents itself in what the World Health Organization (WHO) calls “significant impairments in the way reality is perceived,” causing psychosis that can include delusions, hallucinations, disorganized behavior or thoughts, and extreme agitation.

    Roughly one in 300 people are affected by schizophrenia worldwide, according to the WHO, but less than one-third of those will ever receive specialist mental health care.

    denmark cemetery of the brainless spc intl_00013202.png

    Visiting a ‘cemetery of the brainless’ in Denmark


    02:10

    – Source:
    CNN

    The standard treatment since the mid-1950s has been anti-psychotic drugs, which typically work by manipulating dopamine levels: the brain’s reward system. But, Werge said, it can come with a cost.

    “Schizophrenia and psychosis are linked to creativity,” he said. “So, when you try to inhibit the psychosis, you also inhibit the creativity. So, there’s a price for being medicated … Whatever causes all these problems for humans is also what makes us humans in the good sense.”

    Though there haven’t been many significant scientific breakthroughs regarding an understanding of the disease, researchers have confirmed that genetics and heritability play a significant role.

    According to Werge, the heritability estimate is as high as 80% – the same as height. “It’s not a surprise to people that if you have very tall parents … there’s a lot of genetics in that,” he said. “The genetic component is equally large in most of the mental disorders actually.”

    Those inherited genetic factors either come from the parents, he added, or can arise in a child even if the parents don’t carry the gene.

    Søgaard, who has two young children, said the genetic connection was not a driving motivator in her mission to find out what happened to Kirsten, but she has thought about what it means for herself and her family.

    When families reach out about possible relatives in the brain collection, “that’s an ethical dilemma that we need to take into consideration,” Wirenfeldt Nielsen said. In Søgaard’s case, she received approval for the Danish National Archives to check the set of black books that contain the names of every person whose brain is in the collection.

    There on the list was Kirsten’s name.

    “I got an email back [from the National Archives], and they scanned the page where Kirsten’s name was, and her birthday, and the day they received the brain. And in the column out to the left, there was a number,” Søgaard remembered. “Number 738.” She immediately wrote an email to Wirenfeldt Nielsen, asking if that number corresponded to the bucket with Kirsten’s brain.

    “I said, ‘Yes, that’s it,’” Wirenfeldt Nielsen recalled. But he also said he couldn’t be sure the bucket was there because a few are missing for unknown reasons. He ventured down to the basement storage room to verify it was there.

    On one of the rolling shelves sat bucket #738.

    Kirsten’s brain.

    Bucket #738 -- Kirsten's brain -- sits on a shelf among the rest of the brain collection in the basement at the University of Southern Denmark in Odense.

    When Søgaard first saw it, she felt compelled to hug the bucket.

    “I had learned a lot about Kirsten,” she said. “I feel some kind of connection … (and) I know the pain that she felt, and I know what she went through.”

    What Kirsten went through was another extraordinary beat in this incredible story, and the long history of psychiatric care in Denmark.

    As part of her treatment, Kirsten received what’s known commonly in Denmark as “the white cut.”

    In medical terms: a lobotomy.

    The procedure was an integral part of the country’s psychiatric history. During the time the brain collection was running from the 1940s until the early 1980s, Denmark reportedly did more lobotomies per capita than any other country in the world.

    01 denmark brain sanjay

    A look at the brain like you’ve never seen it before


    03:08

    – Source:
    CNN

    “It’s a very poor treatment, because you destroy a big part of the brain,” Wirenfeldt Nielsen said. “And it’s very risky, because you can kill the patient, basically – but they had nothing else to do.”

    Treatment options were limited, and in many ways extreme. Seizures were induced by placing electrodes on either side of the head; insulin shock therapy meant patients were administered large doses of insulin, reducing blood sugar and resulting in a comatose state; and the lobotomy, either transorbital – using a pick-like instrument inserted through the back of the eye to the front lobe – or prefrontal.

    The prefrontal lobotomy was pioneered by a Portuguese neurologist, Antonio Egas Moniz. Now considered barbaric, he actually won the Nobel Prize for the procedure in 1949.

    A tool is inserted into the frontal lobe, scraping away tracts of white matter – the reason behind the “white cut” moniker. “Emotional reactions … are located at least in part in the frontal lobe,” explained Wirenfeldt Nielsen, “so they thought that just by cutting (there), that could sort of calm the patient down.”

    Left: Portuguese neurologist Antonio Egas Moniz was awarded the Nobel Prize in 1949 for pioneering the prefrontal lobotomy.
Upper right: Lobotomies became a popular treatment option from the 1930s to the early 1950s. Here, a surgeon drills into a patient's skull at a hospital in England, 1946.
Lower right: By cutting tracts through brain matter in the frontal lobe, the belief was the lobotomy could treat symptoms of mental illness.

    In Kirsten’s case, Inger said there were glimpses of “the old Kirsten” before she got the white cut – but after that, she was gone. In 1951, the year after her lobotomy, Kirsten died.

    She was just 24 years old.

    On a metal table in a small, standalone building on the grounds of Oringe psychiatric hospital, Kirsten’s brain was removed, set into a small plastic bucket, placed in a wooden box, and shipped – by regular mail carrier – to the Institute of Brain Pathology at Risskov, to join the brain collection.

    Søgaard saw the metal table, where a white wooden block still sits on one end – where the heads were placed – and upon which small marks are still visible today. This is where the skulls were opened.

    The standalone building at Oringe (left) housing the autopsy room where Kirsten's brain was removed in 1951 still stands today, and includes the wooden boxes (right) that were once used to ship the brains to Risskov.

    Despite the graphic reminders, in reporting out this story both for herself, and for the newspaper, “it was important (for me) to not write a story that was a horror story,” she said, adding it was easy to look back and say, “How could you do that?”

    “I don’t think the doctors wanted to do bad. I think they actually wanted to do good. … I think the most ethical thing you can do is to make sure that you know exactly what you can do with these brains. And that’s what they’re doing now. They’re trying to find out, ‘How can they help us?’”

    There have been studies using the collection over the years, including a discovery in 1970 of what is now known as familial Danish dementia, and a new study is ongoing, focused on mRNA in the brains, by Danish researcher Betina Elfving.

    For the most part, the brains represent untapped, enormous potential. Yet the one in bucket #738 has already done something extraordinary, thanks in large part to Søgaard herself. She worked to break the cycle of stigma surrounding mental health disorders by sharing her most personal, intimate family details with the world.

    “(My grandmother) expressed gratitude,” Søgaard said. “She also said, ‘I feel like I’m moving closer to my sister now.’”

    Source link

  • Inside the hospitals that concealed Russian casualties

    Inside the hospitals that concealed Russian casualties

    CNN Special Report

    October 25, 2022

    Vilnius, Lithuania — As his daughters dozed off in the back seat, his wife filmed him driving, eyes narrowed, focused on the dark road ahead. Andrei, a doctor, had been plotting their escape from Belarus since 2020, when the Kremlin-backed regime cracked down on a popular uprising, sending the country spiraling deeper into authoritarian rule and engulfing it in a climate of fear.

    When Russia launched its assault on Ukraine from Belarus’ southern doorstep, getting out suddenly felt more urgent. His family watched from the windows of their apartment block as helicopters and missiles thundered through the sky. Within days, Andrei — whose name has been changed for his safety — said he found himself being forced to treat Russian soldiers injured in Moscow’s botched assault on the Ukrainian capital Kyiv. Then, at the end of March, he was jailed on trumped-up corruption charges. After his release in May, and carefully weighing the risks, he decided it was time to leave.

    So as not to spark any suspicion, Andrei asked one of their neighbors to sneak the family’s suitcases, filled with legal documents, a few clothes and a photo album, out of their building and stash them in a car. Late one Friday evening in August, after he had finished his shift at the hospital, they met in a parking lot without any security cameras to pick up their bags. Then the family set off.

    They stopped on a rural, dirt road and Andrei kissed his wife and girls goodbye. All being well, they would cross through the official border checkpoint and reunite with him in Lithuania, where he planned to claim asylum. Inside one of his daughter’s toys, Andrei had hidden a USB flash drive carrying evidence of what he had witnessed — dozens of X-rays of wounded Russian soldiers. He told them he loved them, turned and walked into the woods.

    Belarusian President Aleksandr Lukashenko allowed his close ally Russia in February to use the country, which shares a 674-mile border with Ukraine, as a staging ground for its invasion. With his permission, Russian President Vladimir Putin treated Belarus as an extension of Moscow’s territory, sending equipment and around 30,000 troops ostensibly for joint military exercises — the biggest deployment to the former Soviet state since the end of the Cold War. Russia erected temporary camps and hospitals in Belarus’ frozen fields, dispatching military hardware, artillery, helicopters and fighter jets near the border.

    Belarusian and Russian forces performing live fire exercises in Belarus, near the Ukrainian border, on February 17, a week before the war began. Belarusian Ministry of Defense/CNN/Pool
    Belarusian President Aleksandr Lukashenko reaffirms his support for Russia on February 17, saying the two countries have “practically formed a united army.” Belarusian Ministry of Defense/CNN/Pool

    When Putin declared his “special military operation” in a pre-dawn televised address on February 24, he sent missiles, paratroopers and a huge armored column of soldiers rolling south from Belarusian soil, setting in motion what was intended to be a lightning strike to decapitate the government in Kyiv. But as Russia’s advance stalled and setbacks mounted, Moscow began to spirit wounded soldiers back across the border to Belarus for treatment in several civilian hospitals, a CNN investigation has revealed. The doctors working there were drafted into a war that they didn’t sign up for, unwittingly enlisted as quasi-combat medics and obliged by their hippocratic oath to provide life-saving care.

    Many were forced to sign non-disclosure agreements, told not to speak about what they saw. Some, like Andrei, later fled. From their operating tables, Belarusian medical workers gained perhaps the clearest sense of the scale of casualties suffered by Russia in the early weeks of the war — describing young, shell-shocked soldiers who thought they were being sent for exercises only to find themselves losing a limb in a war they were ill-prepared to fight. While Lukashenko admitted that Belarus was providing medical aid to Russian military personnel, little is known about what happened in the hospitals where they were taken, which were kept under strict surveillance. In interviews with Belarusian doctors, members of the country’s medical diaspora, human rights activists, military analysts and security sources, CNN examined the role Belarus played in treating Russian casualties, while the Kremlin sought to conceal them. Their testimonies and documentation — including medical records — offer insights into the Belarusian government’s complicity in the Ukraine war, as fears mount that the country might be sucked further into the fight.

    Exactly how many Russian soldiers have been killed or wounded in Ukraine remains a mystery to all but a few inside the Kremlin. The Russian defense ministry said on March 2 that early casualties amounted to 498 Russian soldiers killed and nearly 1,600 injured in action. But US and NATO estimates around the same time put the number of dead significantly higher: between 3,000 and 10,000. Seven months into the war, Russian Defense Minister Sergei Shoigu revised the official tally, saying nearly 6,000 Russian soldiers had died. The Pentagon said in August that it believed the true toll was much more: as many as 80,000 dead or wounded.

    Belarus’ stranglehold on information — Lukashenko’s regime has put independent news media under severe pressure, restricted free speech and introduced new legislation extending the death penalty for “attempts to carry out acts of terrorism” — has provided useful cover for Russia in repressing details about its injured and dead. In recent months, a number of people have been arrested for filming Russian military vehicles, according to Viasna, a Belarusian human rights organization whose imprisoned founder was recently awarded the Nobel Peace Prize.

    In spite of the repressive environment, hints of Moscow’s troop losses have emerged on social media and local reports. In late February, the Belarusian Hajun project, an activist monitoring group that tracks military activity in the country, started sharing images on Telegram of Russian medical vehicles ferrying fighters across the border from the frontline. Drawing on a network of trusted local sources, the group posted footage of green, Soviet-era “PAZ” buses marked with red crosses and a white letter “V” — a symbol believed to stand for “Vostok”, or east — and armored ambulances in Gomel region.

    “We can confirm they (Russians) used Belarusian infrastructure, including medical buildings and field hospitals. They also used morgues … and they used train stations or airbases to transport dead people or injured people, we have photos of that,” Anton Motolko, a Belarusian blogger who fled Minsk in 2020 and founded Belarusian Hajun project, told CNN. Motolko said his sources told him that morgues in the area were overflowing, and that a steady stream of wounded soldiers had arrived at Mazyr City Hospital, where Andrei worked.

    In mid-February, Andrei watched in horror as his hometown of Mazyr seemingly turned into a sprawling military base — armored tanks rolled down the streets, Russian soldiers roamed local shops and got drunk at bars downtown. He and his family no longer felt safe, and avoided being outside after dark. Soon they began to suspect that Russia was preparing for war. As the military drills were due to wrap up on February 20, Andrei said his hospital administration extended a directive to treat Russian soldiers free of charge until March 10. “They must have thought the war would end by then,” Andrei said, adding that, two days later, Russian officers from the field hospital outside Mazyr cleaned out the city’s blood bank reserves.

    On the morning of February 24, the first day of fighting, Andrei recalled a hospital official gathering all of the doctors into a meeting room, ordering them to keep 250 beds free for Russian casualties, stop all planned surgeries and send what Belarusian patients they could home. “Then they warned us that we were not allowed to share any information about Russian soldiers. We had to sign a non-disclosure form, forbidding us to share any photos, documents,” Andrei said. “They told us that we were being watched by the Russian Federal Security Services (FSB), that they had ways of monitoring our phones.” While he didn’t see any Russian FSB, Andrei said he did notice local Belarusian State Security Committee (KGB) agents stalking the halls of the hospital. CNN has reached out to Mazyr City Hospital for comment.


    “They warned us that we were not allowed to share any information about Russian soldiers. We had to sign a non-disclosure form, forbidding us to share any photos, documents.”

    – Andrei, a doctor from Mazyr, Belarus


    Aliaksandr Azarau, head of ByPol, an organization set up by ex-Belarusian police and security service members, told CNN that Mazyr authorities went to great lengths to keep information about the number of wounded Russian soldiers, and the types of injuries they sustained, under wraps. Azarau said that the KGB departments for Mazyr, along with the region’s department of internal affairs, put Mazyr City Hospital “under round-the-clock surveillance” while ”warning the staff of personal responsibility for disclosing information about military personnel undergoing treatment in the hospital.”

    Still, Andrei managed to secretly photocopy the X-rays of dozens of troops treated at Mazyr City Hospital, which he shared with CNN. “What I took with me, that part of the archive, could have gotten me into legal trouble for espionage,” he said, adding that he had taken the risk to provide evidence of a side of the war that has so far gone unseen, smuggling them out of Belarus in his daughter’s toy cellphone. The scans included the names and ages of the soldiers, many of whom were between 19 and 21 years old, capturing their injuries in stark black and white.

    Andrei said he saw the biggest wave of casualties arrive at Mazyr hospital en masse in the early hours of February 28. After receiving a call that the soldiers were incoming, the doctors assembled at the entrance to the emergency room around midnight, waiting. Soon, busloads of injured troops began to pour in. Russian soldiers carted them inside on stretchers, dumping them at the front doors, Andrei said.

    In reality, the hospital was full of soldiers, Andrei said. Some were missing eyes, others required amputations — having arrived with gangrenous, shattered limbs — a few were paralyzed, one had lost part of his brain, another his lower jaw. Several had been wearing tourniquets for days to staunch the blood, their bodies peppered with bullets and shrapnel, the X-rays showed. “There were more wounded, in need of an operation, than we had operating tables,” Andrei said. “The Russians just gave us their injured [soldiers], and didn’t give a damn about them.”

    Many of the Russians had been fighting in areas outside of Kyiv — in Hostomel, where they suffered major losses at a key airfield, in Bucha and Borodianka, suburbs that they terrorized for weeks, and in Chernobyl, where their forces were exposed to radiation in the highly toxic zone known as the “Red Forest.” Andrei said he treated Russian paratroopers and special forces injured in the botched assault on Hostomel airfield, where they told him their helicopter came under attack. “They were professional killers. We had to treat them, that was our job. I felt disgusted by the whole thing. But, as a doctor, I am not really allowed to feel disgusted,” he said. Russian Major General Sergei Nyrkov, who suffered a severe abdominal injury in Chernobyl, was also treated at Mazyr hospital, according to his X-ray, which was among those Andrei smuggled out.

    But the majority of the injured were young, inexperienced soldiers and conscripts from remote parts of Russia, Andrei said. CNN has reached out to the Russian Ministry of Defense about these allegations, as well as accusations it has co-opted Belarus to carry out an “act of aggression” against Ukraine, in violation of international law.

    On March 1, at a meeting of Belarus’ Security Council, Lukashenko acknowledged that hospitals were providing Russian soldiers with life-saving treatment. “We treat them and will continue treating these guys – in Gomel, Mazyr, and I think in some other district capital when they are transported to us. What’s wrong with that? Injured people have always received medical treatment during any war,” he said, before dismissing reports that Russia had suffered huge losses as fake news.

    “Our self-exiled opposition and the rest shout about thousands of injured [Russian military personnel] delivered to Gomel. Nothing like that. We’ve treated about 160-170 injured in this entire period,” Lukashenko added.

    But Andrei and other medical professionals in the region tell a different story. In early March, 40 to 50 Russian casualties were brought to Mazyr City Hospital every day, shuttled in and out again like a “conveyor belt,” Andrei said. Most arrived in the dark of night, or early in the morning, in green Russian military buses and ambulances. “We, the doctors at the hospital, thought that maybe they were worried about security, so they brought them under the cover of the night. They were afraid of road traffic to see the red cross on their vehicles. People would know,” Andrei said. The Russians also tried to bring the dead to the hospital, he said, adding: “They didn’t know what to do with them.”

    A metal bullet on white medical gauze dotted with blood stains.
    Andrei secretly photographed a bullet he said he removed from a Russian soldier’s neck on March 8. Obtained by CNN

    Anna Krasulina, spokeswoman for exiled Belarusian opposition leader Sviatlana Tsikhanouskaya, told Ukrainian parliamentary TV channel “Rada” in March that the morgues in Mazyr were flooded with the bodies of dead Russian soldiers. In April, Tsikhanouskaya met with members of the US State Department in Washington, DC, handing over evidence of Lukashenko’s involvement in the war in Ukraine. The documents, seen by CNN, detail how Belarus provided key infrastructure to Russia, including missile launch positions, railway lines, and medical assistance.

    Citing open source information, Franak Viačorka, Tsikhanouskaya’s chief political adviser, told CNN that Russians were using hospitals in both the Gomel and Brest regions between the start of the war and April, but that there were also “many cases when doctors refused to take Russian soldiers,” describing this as grassroots resistance. He added that Russians have not been using infrastructure like hospitals in Belarus since April.


    “There were more wounded, in need of an operation, than we had operating tables.”

    – Andrei


    Mazyr was one of at least three hospitals in Gomel region that treated Russian casualties, according to medical and security sources, who estimated that the facilities collectively cared for hundreds of soldiers. Mikalai, a doctor who left the region and whose name has also been changed for his safety, said that the Regional Clinical Hospital and the Republican Research Center for Radiation Medicine and Human Ecology were among those providing treatment, but that the latter was largely operating with Russian medical staff brought in for the war.

    After receiving a patient transferred from the Republican Research Center for Radiation Medicine and Human Ecology, Mikalai said that he had been curious about how the hospital was operating. So, late one night, he drove slowly past the complex. “I saw when it started getting dark, military medical buses coming to the hospital … green-colored ‘PAZ’ vehicles, with their windows covered with white cloth,” he said.

    Azarau, the head of ByPol, said that the Republican Research Center for Radiation Medicine and Human Ecology was used to treat Russian servicemen who took part in the assault on the Chernobyl nuclear power plant, some of whom showed signs of radiation poisoning. The hospital was originally built in the early 1990s to provide specialized medical care to the local population affected by the Chernobyl disaster.

    Mikalai said it was no surprise that the Belarusian and Russian authorities went to great lengths to keep the reality of what was happening behind closed doors in these hospitals a secret. “A great number of wounded young soldiers is a dirty, dirty stain that does not correlate with the idea of this great Russian invasion,” he said, adding that the authorities wanted to give the impression that the situation was under control and reports of a huge number of casualties were fake. “But this is the bad truth … they tried to hide it.”

    Unpicking the role that Belarus has played in the Ukraine war has taken on new urgency since Lukashenko announced in October that Russian soldiers would deploy to the country to form a new, “regional grouping” and carry out joint exercises with Belarusian troops, raising fears that he might draw the country more directly into the conflict.

    “The fact is that Belarus long ago ceded its sovereignty in significant ways to Russia,” State Department spokesperson Ned Price said in a briefing on October 12, responding to a question about Belarus’ posturing, which the United States is monitoring closely. “The fact that President Putin has been able to use what should be sovereign Belarusian territory as a staging ground, the fact that brutal attacks against the people of Ukraine have emanated from a sovereign third country, Belarus in this case, it is another testament to the fact that the Lukashenko regime does not have the best interests of its people at heart.”

    Not only has Russia infringed on Belarus’ sovereignty, it has also posed a serious challenge to NATO — three members of the alliance share a border with Belarus. Putin has been laying the groundwork to transform Belarus into a vassal state for some time. After a rigged presidential election in 2020 cemented Lukashenko’s long reign, triggering widespread pro-democracy protests, he clung to power with the help of Putin. Russia backed the ruthless crackdown on demonstrations, and gave Belarus a $1.5 billion lifeline to evade the brunt of sanctions, but it came with strings attached. Beholden to the Kremlin, Lukashenko has supported Russia’s military actions from the sidelines, so far avoiding sending his own troops into the fray. But he may be forced to shift his position, as Putin racks up losses.

    “As far as our participation in the special military operation in Ukraine is concerned, we are participating in it. We do not hide it. But we are not killing anyone,” Lukashenko said in early October. “We offer medical aid to people. We’ve treated people if necessary,” he added.

    Still, many in Belarus are terrified that might change. A majority of Belarusians do not want their country to take part in the war, according to a recent Chatham House poll conducted online, which found that only 5% favored sending troops to support Russia. Andrej Stryzhak, a Belarusian human rights activist and founder of BySol, an initiative that supports victims of political persecution in Belarus, who himself faces politically motivated charges for “funding extremist formations,” said that the organization saw a surge in requests for help when the invasion started. The group set up a Telegram channel with advice on how to flee abroad, for people who don’t support the war or were afraid of being mobilized themselves. “We took more than 10,000 consultations … and now we have a Telegram channel with 30,000 subscribers,” Stryzhak said, adding: “It’s very intensive work for us.”

    Andrei reached out to BySol for help getting out of the country, but in late August, with the borders to Ukraine and Russia largely impassible, they were unable to assist him. In the end, he was aided by an informal network of Belarusian dissidents living in exile in Lithuania, who identify potential crossing points. They said they too have seen a surge in the number of Belarusian men fleeing for fear they will be forced to fight in Ukraine.

    Video: Watch CNN’s interview with a Belarusian doctor who treated Russian casualties

    Having seen the havoc that the war has wrought first hand, Andrei said he was concerned that he might be sent into Ukraine as a combat medic. In Russia, doctors are increasingly coming under pressure. Earlier this month, Russian state-run news agency Tass reported that physicians in St. Petersburg received letters from authorities telling them not to leave the country for “security reasons,” and Russia’s parliament said around 3,000 doctors could be called up as part of Putin’s “partial mobilization” of troops.

    In late March, Andrei was arrested alongside dozens of other Belarusian doctors, many of whom specialized in surgery, on charges of corruption and receiving bribes, which he denies. After being jailed in the Belarusian capital Minsk for a month and a half, Andrei said he got the sense that their detention may have been an intimidation tactic — to make them think twice before leaving the country. When he was released, he said he was contacted by his local military branch and told to enlist in the army. “I was asked to come to the military enlistment office with my documents … Of course, I didn’t go there,” Andrei said. He fled the country shortly after.

    Now settled in another European country with his family, Andrei is relieved to no longer be wondering when or if he might be sent to war. Instead, he’s focused on sitting national medical exams so he can start to practice again in his new home.

    “Ukraine is very dear to me. I was worried about my close friends and family living there,” he said, adding that Belarus’ complicity in the war was unbearable. “We wrote to each other ‘Slava Ukraini,’ saying that Ukraine was going to win. My relatives said that we would all outlive all of this. And yet the bombs were being launched at them from the territory where I lived.”

    Source link

  • Police say no active shooter incident at Austin, Texas, hospital after responding to a report of ‘shots fired’ | CNN

    Police say no active shooter incident at Austin, Texas, hospital after responding to a report of ‘shots fired’ | CNN



    CNN
     — 

    Authorities in Austin, Texas, said Friday that there was no active shooter at a local hospital after police responded to a call of “shots fired.”

    “Officers have secured the scene and it is safe,” Austin police said on Twitter Friday afternoon. “This was not an active shooter incident. No injuries reported, roadways are expected to open soon.”

    There was no indication that shots were fired, Austin police said, adding there is no criminal investigation.

    Earlier, the police department had said it was responding to a “shots fired” call at Seton Hospital, adding the facility was placed on lockdown as a precautionary measure.

    Police Sgt. Brian Preusse later explained someone reacting to a loud noise inside the hospital emergency room was what led to the shots fired call and prompted the lockdown and facility search.

    “The hospital is back open again and secure,” Preusse said Friday evening.

    No patients were located, treated or transported from the scene, the Austin-Travis County EMS said on Twitter. The agency said earlier in the day that among the resources that were deployed to the hospital were five ambulances and had urged residents to “avoid the area.”

    It later said it was scaling down the units on scene, before announcing all EMS resources were demobilized.

    “Today was a best-case scenario,” EMS Capt. Christa Stedman said about the incident. “This is the best possible outcome we could have had.”

    Source link

  • Recognizing a Fearless Leader Who Paved the Way to Humanizing Healthcare for Hospitalized Children and Their Families

    Recognizing a Fearless Leader Who Paved the Way to Humanizing Healthcare for Hospitalized Children and Their Families

    The Industry Mourns a True Philanthropist, President & CEO, enCourage Kids Foundation

    Press Release


    Jun 10, 2022

    On Tuesday, June 7, 2022, the world lost an exceptional person, Michele Hall Duncan, President & CEO of enCourage Kids Foundation (EKF). Michele is recognized for countless accomplishments during her 26-year tenure at EKF. For over two decades, she cultivated relationships with child life staff and all levels of hospital administration and developed an integral understanding of trends in creative therapies as well as the ability to identify and meet the needs of their hospital partners. Michele positioned EKF at the forefront of state-of-the-art programming in pediatric health care.

    “All of us at EKF are suffering this significant loss as Michele’s infectious smile lit up every room and her ‘make it happen’ attitude brought success not only to the organization but to our hospital partners as well,” stated Joe Wessely, Board Chair, enCourage Kids. “Heaven has gained an angel and Michele will continue to soar.”

    “From an early age, I’ve always known that I was sharing my mother with other children,” stated Wesley Hall, son of Michele Hall Duncan. “Over the last 26 years, she built a legacy rooted in her empathy for hospitalized kids, their families, and the professionals who stand between them and the medical, logistical, and psychosocial trauma that can accompany childhood illness. Her cancer diagnosis gave her an intimate window into the value of the work to which she dedicated her life. She left the world understanding the significance of EKF’s mission in a way that was more visceral and personal than any of us could have imagined pre-diagnosis. She achieved amazing things even in the last 60 days of her life, from dog sledding under the Aurora Borealis, to presiding over a 1.2-million-dollar gala. Cancer certainly shortened her life, but it never quite managed to steal it. I am so proud of her not just as my mom, but as a human being.”

    Michele was the Board of Trustee’s Vice-Chair of Children’s Specialized Hospital Foundation; served on the Advisory Board of one of the leading anti-bullying organizations, STOMP Out BullyingTM, for which she received the 2019 Public Service Leadership Award; and was Board Secretary of the NYC chapter of the Association of Fundraising Professionals, where she also served on the professional advancement committee. Michele graduated from Michigan State University with a B.A. in advertising and was an active associate member of the Essex Hudson Chapter of Jack and Jill of America, Inc. for 10-plus years. CRAIN’s New York Business recognized Michele as one of the top Black Leaders and Executives in 2021. Michele has been featured in publications such as Authority, Medium, Thrive Global, Social Lifestyle, Industry Rules, NY Post, Times Square Chronicles, Resident, Impact Wealth, and networks such as Spectrum 1, CBS, NBC, FOX, ABC7 and PIX11, to name a few.

    Michele is survived by her loving son Wesley Hall, husband Ron Duncan, her father Earl Ruffin, mother Gwen Robison, and siblings Randall Selvie, Jeffrey Ruffin, Lauren Ruffin, Cynthia Drumgole, Julia Ruffin, Laura Henry, Antoinette Broderick, Hannah, Winston Ruffin, and Patrice Mustaafaa. She will be missed by all whose lives she touched.

    EKF will continue with their mission in making hospitals a better place to get better. They envision a world where every child experiences joy, hope, resilience, and emotional healing along their medical journey. www.enCourage-kids.org.

    Media: MJ Pedone – Indra Public Relations – MJ@indrapr.com

    Source: enCourage Kids Foundation

    Source link

  • Helping Reopen Texas: New Biodefense Technology Plays Pivotal Role in Providing Cleaner, Viral-Free Indoor Air Across the State

    Helping Reopen Texas: New Biodefense Technology Plays Pivotal Role in Providing Cleaner, Viral-Free Indoor Air Across the State

    Integrated Viral Protection (IVP) air filtration technology that catches and kills actual Sars-CoV-2 (virus causing COVID-19) instantaneously; installing in facilities throughout Texas this week

    Press Release



    updated: Mar 17, 2021

    On the heels of Governor Abbott’s call to fully reopen Texas, Houston based, Integrated Viral Protection (IVP) is helping businesses do so safely, with the installation of the IVP Biodefense Indoor Air SystemTM – the only existing air filter system which can instantaneously catch and kill airborne COVID-19 (99.999%), other RNA viruses, and anthrax spores (99.98%) in a single pass. IVP’s core technology is a specialized heated filtration system, invented by Monzer Hourani, which meets ASHRAE standards and has been granted emergency use authorization by the FDA during the COVID-19 pandemic.

    IVP is playing an integral role in reopening businesses and keeping children in schools across Texas with deployments in over one hundred Texas school campuses to include Galveston ISD, Slidell ISD, Comal ISD, Banquete ISD and Houston ISD. The medical devices have been installed at schools across the US, including hot zones in Florida.

    Current installations include the Intercontinental Houston Medical Center, Baytown City Government, Fulton City Government, University of Houston, Texas A&M University, T-Mobile tower, St. Joseph’s Medical Center a Steward Health Care Facility, HotWorx gyms, the San Antonio Riverwalk, Texas Department of Emergency Management and Department of Public Safety, Rosewood Hotels, Hilton Hotels and more. The Texas Restaurant Association has endorsed IVP for use in Texas restaurants to get hospitality businesses back to work safely as well. IVP is installed in health care settings across the US to include over 100 hospitals and healthcare facilities, including COVID-19 specialty hospitals, neuro-psych facilities, rehabilitation hospitals and tertiary centers including University Hospital System. The device was recently installed to incarceration facilities in Michigan.

    IVP has deployed units to help keep Texans safe while returning to work and schools:  

    • George R Brown Convention Center, Houston
    • American Airlines Integrated Operations Center, Dallas
    • Texas Capital Bank Building, Richardson
    • And Agency, San Antonio
    • St. Paul Lutheran Child Development Center, San Antonio
    • T-Mobile Building, Houston
    • Moores Opera House, University of Houston
    • St. Joseph Medical Center, Houston
    • Wortham Center Theater, Houston
    • University of Texas Medical Branch, Galveston

    “IVP is helping Texas safely reopen their economy with proven solutions that raise the quality of indoor air,” said Dr. Garrett Peel, IVP co-founder. “By following the CDC guidelines and providing clean, pathogen-free air in buildings, we are using science to engineer our way out of this public health crisis.”

    The system was designed by IVP founder and inventor, Monzer Hourani, who has a background in physics, science and engineering. The game changing technology works by forcing air through a heated filter that captures and kills contaminants, including airborne pathogens, instantaneously, without changing the ambient air temperature significantly.  IVP has been endorsed by the American Society of Mechanical Engineers as one of five top technologies in the world to combat COVID-19, and was recently named a top 25 Newsmaker of the Year by the Engineering News Record. The prestigious Newsmaker of the Year award will be announced April 8 at the ENR virtual conference. 

    The research was a collaborative effort led by Monzer Hourani, dating back to April 2020 with Texas Center for Superconductivity at the University of Houston, Galveston National Laboratory and Texas A&M University Engineering Experiment Station.

    About Integrated Viral Protection (IVP)

    Integrated Viral Protection Solutions, LP (IVP) was created by Monzer Hourani in April 2020, to respond to the COVID-19 global pandemic and to foster research, development, and deployment of technologies that offer biodefense solutions to mitigate transmission of biological threats in indoor environments. At the heart of this award-winning biodefense design is a proprietary heated mesh that works in conjunction with legacy air filtration found in HVAC systems. The resulting suite of products will offer proven in-line mitigation for the airborne transmission of COVID-19 indoors. This technology has been recognized by the American Society of Mechanical Engineers as a top innovation of 2020 for fighting COVID-19, and Hourani is recognized by Engineering News-Record as a top newsmaker.

    The Biodefense Indoor Air Protection System is first line prevention technology against environmentally (airborne) mediated transmission of SARS-CoV-2 (COVID-19). The heated biodefense filter can be retrofitted into commercial and home HVAC systems and/or deployed as a mobile unit equipped with powerful filtration capability. For more information, please visit www.ivpair.com.

    For IVP contact:

    Lauren Velasco, lauren@commongroundpr.com; 847-567-4322
    Maggie Teson, maggiet@commongroundpr.com; 636-222-2927

    Source: Integrated Viral Protection (IVP)

    Source link

  • Health 2.0 and Mad*Pow Announce Agenda for 2017 HxRefactored

    Health 2.0 and Mad*Pow Announce Agenda for 2017 HxRefactored

    Design & Technology-focused Conference on June 20th & 21st Explores Improving
    Health Experiences through Human-centered Design and Tech

    Press Release



    updated: May 2, 2017

    Mad*Pow and Health 2.0 today announced the final agenda for the HxRefactored 2017 Conference being held on June 20-21, 2017, at the Royal Sonesta Hotel in Cambridge, MA. HxRefactored is a revolutionary design and technology conference, gathering more than 600 cross-disciplinary thinkers from around the world for two days of thought-provoking panels, workshops, and discussions on how to improve the quality of health experiences. Conference speakers and attendees apply design, science, evidence, and theory to re-imagine the entire health journey and find new ways to deliver that vision. Tickets to attend the conference can be purchased at https://2017.hxrefactored.com.

    HxRefactored keynotes, workshops, and panels will touch on the most pressing issues and innovative ideas of the day. Topics explored at this year’s conference will include:

    “HxRefactored is a truly unique event because it is designed to explore opportunities to humanize our healthcare and deliver value to the people we serve and ways to put those ideas into action.”

    Amy Cueva, Founder and Chief Experience Officer of Mad*Pow

    • Designing for Mental Health
    • Creating a Culture of Health
    • Data Security and Privacy
    • Improving Clinician Experiences
    • Motivation and Health Behavior Change
    • Culture of Innovation
    • Breaking Down the Silos
    • The Future of Technology
    • Navigating the Health System
    • Patient Experiences of the Future
    • Designing for Vulnerable and At-Risk Populations
    • Tech for the Aging Population
    • Pharma Innovation
    • Blockchain: The Now and the Future
    • Co-Creation and Participatory Design
    • Journey Mapping and Service Design
    • Organizational Design and Training

    Speakers headlining this year’s HxRefactored include:

    • Aneesh Chopra, President, NavHealth
    • Robin Farmanfarmaian, Author, The Patient as CEO
    • Bakul Patel, Associate Director of Digital Health, FDA
    • Kathleen Howland, Professor, Berklee College of Music
    • Busy Burr, VP, Innovation and Health, Humana Health Ventures
    • Bryan Mazlish, Chief Technology Officer, Bigfoot Biomedical, Inc.
    • John Torous, Co-Director of Digital Psychiatry at BIDMC, Beth Israel Deaconess Medical Center
    • John Weiss, Co-Founder/CEO, Human Design
    • Aron Semle, CEO, upBed
    • Matthew Holt, Co-Chairman, Health 2.0
    • Amy Cueva, Founder & Chief Experience Officer, Mad*Pow
    • Sumit Nagpal, Co-Founder & CEO, LumiraDx, Inc.
    • Steven Ledbetter, CEO and Co-Founder, Habitry
    • Wolf Shlagman, CEO, Care Angel
    • Zac Jiwa, CEO, MI7
    • Juhan Sonin, Creative Sandpaper, goinvo, MIT
    • Patricia Beirne, Design and Innovation Creative Lead, Memorial Sloan Kettering
    • Bradford Diephuis, CEO, Herald Health
    • Natasha Awasthi, Head of Product, Medal
    • Charles Hillman, Founder and CEO, GrandCare
    • Cory Kidd, Founder and CEO, Catalia Health
    • Linda Sanches, Senior Advisor, HIT and Privacy Policy, Office for Civil Rights, HHS
    • Abbie Barbir, Senior Architect, Aetna
    • Ted Tanner, CTO, PokitDok
    • Dustin DiTommaso, SVP Behavior Change Design, Mad*Pow
    • Jay Gupta, Co-Founder, RxRelax

    “HxRefactored draws speakers and panelists who live and work at the intersection of health, design, and technology,” says Health 2.0 Co-Chairman Matthew Holt. “Their unique perspective can help shed light on solutions to some of the most challenging problems in our health system. The conference offers attendees an opportunity to hear this perspective and to get involved in the effort to make our health system more effective.”

    “HxRefactored is a truly unique event because it is designed to explore opportunities to humanize our healthcare and deliver value to the people we serve and ways to put those ideas into action,” said Amy Cueva, Mad*Pow Founder, and Chief Experience Officer. “Attendees at this event hear a wealth of exciting, groundbreaking ideas and walk out of the conference motivated to create real change in the healthcare system.”

    For more information on the conference and to register for HxRefactored, visit our website.

    About Mad*Pow

    Mad*Pow is a design agency that improves the experience people have with technology, organizations and each other. The company’s mission is to help people improve their health, achieve financial well-being, learn, and connect. Using human-centered design, Mad*Pow collaborates with clients to understand and empathize with the people they serve. Through this collaboration, Mad*Pow delivers an experience that addresses customer needs across channels, and throughout the entire journey. Founded in 2000, Mad*Pow has partnered with industry leaders including Cigna, John Hancock, Pearson, and Google, and has received honors for design excellence by the Webby Awards, MITX, and the W3C. In addition to HXR, Mad*Pow also hosts the Center for Health Experience Design (http://www.centerhxd.com) which will serve as a resource for design and experiential innovation in health.

    About Health 2.0

    Health 2.0 is the premiere showcase and catalyst for the advancement of new health technologies. Through a global series of conferences, thought leadership roundtables, developer competitions, pilot programs, and leading market intelligence, Health 2.0 drives the innovation and collaboration necessary to transform health and health care.

    Contact:

    Liz Griffith
    lgriffith@madpow.com
    SOURCE Mad*Pow

    Tarek Cotran
    Tarek@health2con.com
    SOURCE Health 2.0

    Source: Mad*Pow, Health 2.0

    Source link

  • ICBioethics Earns Pittsburgh Business Ethics Award

    ICBioethics Earns Pittsburgh Business Ethics Award

    Press Release


    Feb 26, 2016

    ​The Institute of Consultative Bioethics (ICBioethics) has been named the winner of a Pittsburgh Business Ethics Award in the Small Business category.

    The 15th Annual Pittsburgh Business Ethics Awards (PBEA) were presented by the Pittsburgh Chapter of the Society of Financial Service Professionals during the PBEA Awards Ceremony and Luncheon Banquet at the Omni William Penn Hotel in Pittsburgh, Pennsylvania, on Wednesday, February 24. Co-presenters were the David Berg Center for Ethics and Leadershipat the University of Pittsburgh, the Rotary Club of Pittsburgh, and the Allegheny Conference on Community Development.

    “We believe exemplary organizations are those that clearly convey their values, then put them into action visibly and consistently.”

    Dr. Kathy Detar Gennuso, CEO

    The awards are designed to recognize U.S. companies that demonstrate a firm commitment to ethical practices in their day-to-day operations, philosophies, and response to crises and challenges. ICBioethics’ CEO, Dr. Kathy Detar Gennuso, commented, “We are very honored to receive this award focused on business ethics.” During the awards ceremony, it was noted that the company’s name contains the word “ethics.” Dr. Gennuso commented on this, “Indeed, it’s all part of the broader umbrella of ethics, a set of moral principles to guide one’s behavior. In our case, our product EthAssist® helps healthcare professionals learn more about or review principles and issues related to bioethics, sometimes referred to as clinical or medical ethics. More important, we want EthAssist to help users also bridge from the theory to the practical application of bioethics, like being able to demonstrate respect for patient autonomy and patient rights, or understanding what to do when conflicts of interest arise. We also look at organizational ethics in healthcare facilities such as hospitals, academic organizations, and hospice facilities, as that plays a big role in developing a culture of ethical behavior.”

    ICBioethics’ product and services involve bioethics, but the PBEA award pertains to the business ethics within the company itself, especially how it relates to its customers, employees, business associates, and the community at large. Accepting the award on behalf of the company, COO Rich Gennuso stated, “Our business ethics are measured in part by how we work with our customers. When we formed the company in 2011, our goal was to make every client into a referenceable account who would actually see our business ethics in action.” He added, “In our team meetings, when evaluating approaches to a particular challenge, we still always ask ourselves, ‘What is the ethical thing to do?’ It’s actually part of the team discussion.”

    During the ceremony, several speakers commented on the importance of moving beyond the focus of what “not to do” towards building a culture of “what is ethical to do.” “We couldn’t agree more!” stated Dr. Gennuso. “That’s why our company was formed, and that’s what we do internally as an organization and what we strive to achieve with our clients.”

    Each year hundreds of firms are nominated. Applications are received in the fall in three categories: small, medium, and large business. Then three finalists are selected in each category at the beginning of each year, and the winners are announced at the awards ceremony. ICBioethics was nominated by Debbie Schlaegle, Director of Business Development at Clearview Federal Credit Union. She commented, “I get a sense of our business members’ ethical standards as we work on business plans and finances, and I’ve been nominating outstanding organizations for the award for several years. I am delighted that one of my nominees was selected for the award this year, and I think it’s a reflection of the exceptional businesses that choose to partner with Clearview. We’re happy to serve local businesses like ICBioethics that value their employees, their work and their community as much as we do.”

    “We believe exemplary organizations are those that clearly convey their values, then put them into action visibly and consistently,” Dr. Gennuso said. “Without that happening, morale can drop and motivation lag, and soon the execution of the obligations and responsibilities of the entire organization are negatively impacted, especially under rapidly changing conditions that naturally occur when growing a business. Because we wanted ICBioethics to be exemplary, our first task was to set a solid foundation internally so that we could assure ourselves, as well as our clients, that we were committed to keeping ethics firmly rooted at the center of our organization.”

    About ICBioethics

    The Institute of Consultative Bioethics (ICBioethics) is a western Pennsylvania based provider of comprehensive, customizable, knowledge delivery software and coaching/consulting services that support health care and other highly regulated industries, as well as academic organizations that train professionals. For more information, visit www.icbioethics.com.

    Source link