Tag: #Fibroids

The Fibroid Foundation Celebrates 10 Years of Advocacy

ROCKVILLE, Md., September 12, 2023 (Newswire.com)
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The Fibroid Foundation is celebrating 10 years of advocacy and hosting the 3rd Annual Fibroid Research Summit. Since 2013, the organization has been a leader in uterine fibroid advocacy — a health concern that affects 26 million women in the U.S. and millions more globally. This milestone anniversary marks a decade of erasing menstrual stigmas, designing and authoring research studies, providing access to treatment resources, and leading the way in initiating legislation on uterine fibroids and menstrual health.

Founder Sateria Venable reflected on the past decade by saying, “I’m grateful to each community member, clinician, donor, and legislator who recognizes the importance of eliminating menstrual suffering. Menstrual health should be a concern for our community at large because it impacts each of us.”

To join in the celebration, all are encouraged to visit the Fibroid Foundation’s website to learn more about the 10th anniversary and the events planned.

Fibroid Summit Program:

Day 1 — Sept. 20, 2023, at 11 a.m. ET

Dr. Serdar Bulun, Northwestern

William Catherino, M.D., PhD, Uniformed Services University of the Health Sciences

Day 2 — Sept. 21, 2023, at 11 a.m. ET

Dr. Mazhar Adli, Northwestern

Shannon Whirledge, PhD, MSc, Yale

All panels will be moderated by Sateria Venable.

Register here.

Uterine fibroids are the most common gynecologic condition in women, yet research remains underfunded. Dr. James Segars, Director, Division of Reproductive Science and Women’s Health Research, Professor of Gynecology and Obstetrics at Johns Hopkins University, authored a 2020 paper which concluded that, “In the subsets of bodily pain, vitality, and social functioning, fibroids were consistently a larger burden than heart disease, diabetes mellitus, and breast cancer.”¹

The Fibroid Foundation continues to advocate for the passage of The Stephanie Tubbs Jones Fibroid Research and Education Act — H.R. 4572 and S.2303, introduced by Representative Yvette D. Clarke (NY-9) and Senator Cory Booker (D-NJ), respectively. Continued community support is requested by residents in each state to achieve the Congressional support required in order for both bills to be passed into law. Letters can be sent to your congressional representative via this link.

According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding fibroid specialists. The organization recognizes the significant health disparities that impact its community and provides support to address the disparities from a unique patient perspective.

Fibroid Statistics: Visit the National Institutes of Health Fact Sheet on uterine fibroids to learn more

This year’s Fibroid Summit Sponsors are SumitomoPharma/Pfizer and Omnia.

To partner with The Fibroid Foundation, visit https://www.fibroidfoundation.org/.

About The Fibroid Foundation

A global organization founded by fibroid patient Sateria Venable in 2013, The Fibroid Foundation has coauthored 16 medical articles, purposefully leveraging the patient experience.

For Media Inquiries:
Karen Janus
Phone: 844.484.7698 (IT-IS-MY-U)
info@fibroidfoundation.org

Tags:
#FibroidFoundation
#FibroidSummit
#FibroidBill
#SateriaVenable
#WomensHealth
#UterineFibroids
#Fibroids
#Nonprofit

Source: The Fibroid Foundation

Source link

September 12, 2023
The Fibroid Foundation Celebrates ‘Breaking News – Fibroid Awareness Month 2023’
ROCKVILLE, Md., July 6, 2023 (Newswire.com)
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The Fibroid Foundation announces the 2023 Fibroid Awareness Month July event schedule.

The 2023 Fibroid Awareness Month Theme is “Breaking News!” All programs provide emerging insights and dynamic conversations on uterine fibroids and menstrual health. Register HERE for all programs.

Featured events are:

*July 7, 2023, at 7:00 PM EDT – Plastics and Fibroids

Featuring:

Dr. Serdar Bulun, Chair, Department of Obstetrics and Gynecology, John J. Sciarra Professor of Obstetrics and Gynecology, Professor of Obstetrics and Gynecology and Obstetrics and Gynecology at Northwestern Medicine in Chicago, Illinois.

*July 12, 2023, at 7:00 PM EDT – Workplace Strategies for Menstrual Care

Featuring:

Milena Bacalja Perianes, Founder of HerShare, Impact Mentor at the UNICEF Venture Fund, and co-founder of Madamí.

and

Brittany Barreto, Ph.D., Co-founder and Executive Director of FemTech Focus, Host of the FemTech Focus Podcast, and President and Founder of FemHealth Insights.

*July 19, 2023, at 7:00 PM EDT – The Black Maternal Health Crisis

Dr. Veronica Gillispie-Bell, Obstetrician & Gynecologist, Associate Professor for Ochsner Health in New Orleans, Louisiana, Senior Site Lead and Section Head of Obstetrics and Gynecology at Ochsner Kenner and Director of Quality for Women’s Services for the Ochsner Health System/Medical Director of the Minimally Invasive Center for the Treatment of Uterine Fibroids. Dr. Gillispie-Bell is also the Medical Director of the Louisiana Perinatal Quality Collaborative and Pregnancy Associated Mortality Review for the Louisiana Department of Health.

Tianna Madison, two-time Olympian, and three-time Olympic Track and Field Gold Medalist. Maternal health advocate.

*July 27, 2023, at 7:00 PM EDT – Fibroids and Menopause

Dr. Lauren Streicher is a clinical professor of obstetrics and gynecology at Northwestern University’s Feinberg School of Medicine, a Fellow in the American College of Obstetricians and Gynecologists, a member of the Sexual Medicine Society of North America, Inc., and a Top Doctor since 2002.

Sateria Venable, Founder & CEO of The Fibroid Foundation, will moderate the panels.

Registration for all events can be found here.

The Fibroid Foundation advocates for the passage of The Stephanie Tubbs Jones Fibroid Research and Education Act – H.R. 2007 introduced in The House of Representatives by Representative Yvette D. Clarke (NY-9). The Stephanie Tubbs Jones Uterine Fibroid Research and Education Act will provide $150M to the National Institutes of Health for fibroid research.

In the United States, an estimated 26,000,000 women between the ages of 15 and 50 have uterine fibroids.¹Uterine fibroids are the most common gynecologic condition in women², however, treatment options and medical research funding have yet to match the enormity of the affected community.

The “Uterine Fibroids: Burden and Unmet Medical Need” 2017 study found that, “Using ultrasound screening, the estimated cumulative incidence rate of UF (uterine fibroids) by the age of 50 is significantly higher in black women (80%) compared with white women (nearly 70%).”³ Annually, uterine fibroids account for approximately half of hysterectomies performed in the United States.Data has shown that there are significant cardiovascular risk factors associated with hysterectomy.

According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding fibroid specialists. The organization recognizes the significant health disparities impacting its community and provides support to address them from a unique patient perspective.

The Fibroid Foundation mission:
- Normalize conversations about menstruation.
- Foster a movement for everyone with a uterus to thrive.
- Eliminate treatment disparities with layered patient support.
- Engage family and community in the menstrual health mission
- Enable those diagnosed with uterine fibroids to experience a smooth path to treatment with fulfilling outcomes
- Spark joy through advocacy.
- Understand how and why fibroids develop, and ultimately find a cure.
About The Fibroid Foundation

The Fibroid Foundation is a global fibroid and menstrual health advocacy organization celebrating its 10^th Anniversary in September 2023.

1. A systematic review of the psychosocial impact of fibroids before and after treatment

2. Epidemiology of Uterine Fibroids – From Menarche to Menopause

3. Uterine Fibroids: Burden and Unmet Medical Need

Source: The Fibroid Foundation
Source link
July 6, 2023
The Fibroid Foundation Announces Fibroid Awareness Month 2022
Press Release
–

Jul 6, 2022
WASHINGTON, July 6, 2022 (Newswire.com)
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The Fibroid Foundation announces the Fibroid Awareness Month event schedule for July 2022. This Year’s Fibroid Awareness Month Theme is ‘Real Solutions.’

Featured events are:

July 7, 2022 at 7:00 PM ET – Fibroids and Fertility

Featuring:

Dr. Ray Anchan, Reproductive Endocrinology & Infertility Specialist at Brigham and Women’s Hospital

Dr. Sony Singh, Gynecologic Surgeon, Professor in Gynecology at the University of Ottawa & The Ottawa Hospital

Dr. Elizabeth (Ebbie) Stewart, MD, Chair of Reproductive Endocrinology & Infertility at Mayo Clinic

July 14, 2022 at 7:00 PM ET – From First Flow to Last Flow

Featuring:

Dr. Linda Bradley, Obstetrics & Gynecology Specialist at Cleveland Clinic

Melissa Berton, Founder & Executive Director at The Pad Project

Jennifer Gularson, Board Certified Physician Assistant, Functional Medicine Certified Practitioner

Le’Nise Brothers, Author and Registered Nutritionist Specializing in Hormones & the Menstrual Cycle

July 21, 2022 at 7:00 PM ET – The State of Women’s Health Equity

Featuring:

Dr. Sarah Temkin, Associate Director for Clinical Research at the National Institutes of Health – Office of Research on Women’s Health

Michela Bedard, Executive Director at PERIOD – The Menstrual Movement

July 28, 2022 at 7:00 PM ET – Conversations on Capitol Hill

Featuring legislators who are leading the way to raise awareness and seek funding for fibroid research and education.

Sateria Venable, Founder & CEO of The Fibroid Foundation, will moderate the panels.

Registration for all events can be found here.

Fibroid Awareness Month programming will focus on tangible solutions that support better outcomes and less invasive treatments. Dr. James Segars, Director, Division of Reproductive Science and Women’s Health Research, Professor of Gynecology and Obstetrics at Johns Hopkins University, authored a 2020 paper which concluded that, “In the subsets of bodily pain, vitality, and social functioning, fibroids were consistently a larger burden than heart disease, diabetes mellitus, and breast cancer.”¹

“In the subsets of bodily pain, vitality, and social functioning, fibroids were consistently a larger burden than heart disease, diabetes mellitus, and breast cancer.” – A systematic review of the psychosocial impact of fibroids before and after treatment

Go, Thomas, et al.

In the United States, an estimated 26,000,000 women between the ages of 15 and 50 have uterine fibroids.²Uterine fibroids are the most common gynecologic condition in women³, however treatment options and medical research funding have yet to match the enormity of the affected community.

The Fibroid Foundation continues to advocate for the passage of The Stephanie Tubbs Jones Fibroid Research and Education Act – H.R. 2007 introduced in The House of Representatives by Representative Yvette D. Clarke (NY-9) Continued community support is requested by residents in each state to achieve the House and Congressional support required in order for H.R. 2007 to be passed into law.

According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding minimally invasive gynecologic surgeons (MIGS). The organization recognizes the significant health disparities that impact its community, and provide support to address the disparities from a unique patient perspective.

The Fibroid Foundation mission:
- Normalize conversations about menstruation.
- Foster a movement for everyone with a uterus to thrive.
- Eliminate treatment disparities with layered patient support.
- Engage family and community in the menstrual health mission
- Enable those diagnosed with uterine fibroids to experience a smooth path to treatment with fulfilling outcomes
- Spark joy through advocacy.
- Understand how and why fibroids develop, and ultimately finding a cure.
About The Fibroid Foundation
The Fibroid Foundation is an organization founded by fibroid patient Sateria Venable in 2013. The Fibroid Foundation is published in eleven medical journals.

‘One woman at a time, we are showing the world that we are empowered, and that we are driven to change our story!’

~Sateria, Founder

1. A systematic review of the psychosocial impact of fibroids before and after treatment

2. Epidemiology of Uterine Fibroids – From Menarche to Menopause

3. Uterine Fibroids: Burden and Unmet Medical Need

For Media Inquiries:

Emma Jasper

Phone: 844.484.7698 (IT-IS-MY-U)
info@fibroidfoundation.org

Source: The Fibroid Foundation
Source link
July 6, 2022
The Fibroid Foundation Supports the Introduction of Fibroid Research Legislation by Senator Shelley Moore Capito and Senator Cory Booker
Press Release
–

updated: Jul 23, 2021
WASHINGTON, July 23, 2021 (Newswire.com)
–
The Fibroid Foundation is proud to support the introduction of the ‘Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021‘ by Senator Shelley Moore Capito and Senator Cory Booker.

In the United States, an estimated 26,000,000 women between the ages of 15 and 50 have uterine fibroids.¹Uterine fibroids are the most common gynecologic condition in women²; however, treatment options and medical research funding have yet to match the enormity of the affected community.

“I’m incredibly pleased to see a bipartisan introduction of the Fibroid Bill in the Senate. With millions affected, this is an issue that touches the family and community of every American.”

Sateria Venable, Founder

Ultrasound screenings were used in the 2017 ‘Uterine Fibroids: Burden and Unmet Medical Need’ study. The tests revealed an “estimated cumulative incidence rate of UF (uterine fibroids) by the age of 50 is significantly higher in black women (80%) compared with white women (nearly 70%).”³ Annually, uterine fibroids account for approximately half of hysterectomies performed in the United States.⁴ Data has shown that there are cardiovascular risk factors associated with hysterectomy.⁵

According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding fibroid specialists. The organization recognizes the significant health disparities that impact its community and provides support with a unique patient perspective. To aid in the correction of those disparities, the Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021 will provide $150M to the National Institutes of Health. Legislative benefits of the Uterine Fibroid Act include:
- APPROPRIATION of $30,000,000 for each of fiscal years 2022 through 2026.
- Establish a RESEARCH database for the treatment of fibroids.
- Deliver REPORTING on State treatment expenditures.
- COORDINATION of data and outcomes at the Federal level.
- DISSEMINATE evidence-based care outcomes for individuals with fibroids.
The Fibroid Foundation, with members in most states, and 48 countries, develops annual programming centered on education, advocacy and access to treatment.

The Fibroid Foundation is proud to support the ‘Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021’. H.R. 2007 was introduced in the House of Representatives in March of 2021 by Congresswoman Yvette D. Clarke. The Fibroid Foundation is encouraged to see meaningful legislation aimed at addressing the public health crisis in the U.S. that is impacting patients and their families.

About The Fibroid Foundation

The Fibroid Foundation is an organization founded by fibroid patient Sateria Venable in 2013 after her third of four fibroid surgeries. As the premier global community of fibroids patients, their mission is to:
- Normalize conversations about menstruation.
- Foster a movement for everyone with a uterus to thrive.
- Eliminate treatment disparities with layered patient support.
- Engage family and community in the menstrual health mission.
- Enable those diagnosed with uterine fibroids to experience a smooth path to treatment with fulfilling outcomes.
- Spark joy through advocacy.
- Understand how and why fibroids develop, and ultimately find a cure.
The Fibroid Foundation research contributions can be read here.

¹Management of Uterine Fibroids

²The Health Disparities of Uterine Fibroids for African American Women: A Public Health Issue

³Uterine Fibroids: Burden and Unmet Medical Need

⁴Reassessing Hysterectomy

⁵Clinical practice and research yields valuable data for management of uterine fibroids

###

For Media Inquiries:

Emma Jasper

Phone: 240.621.0020
info@fibroidfoundation.org

##

If you are interested in partnering with The Fibroid Foundation, please visit this link.

Source: The Fibroid Foundation
Source link
July 23, 2021
The Fibroid Foundation is Proud to Support the ‘Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021’
The Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021 will provide $150M to the National Institutes of Health. In the United States, an estimated 26,000,000 women between the ages of 15 and 50 have uterine fibroids.1

Press Release
–

updated: Mar 19, 2021
WASHINGTON, March 19, 2021 (Newswire.com)
–
The Fibroid Foundation is proud to endorse the ‘Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021’. This important legislation was introduced on March 18, 2021, by Representative Yvette D. Clarke (NY-9).

In the United States, an estimated 26,000,000 women between the ages of 15 and 50 have uterine fibroids.¹Uterine fibroids are the most common gynecologic condition in women² , however, treatment options and medical research funding have yet to match the enormity of the affected community.

Sateria Venable, Founder & CEO of The Fibroid Foundation, responded to yesterday’s introduction of the Fibroid Bill by saying, “Consistent fibroid research funding will transform the quality of life for millions of women in the United States.”

Ultrasound screenings were used in the 2017, ‘Uterine Fibroids: Burden and Unmet Medical Need’ study. The tests revealed an “estimated cumulative incidence rate of UF (uterine fibroids) by the age of 50 is significantly higher in black women (80%) compared with white women (nearly 70%).”³ Annually, uterine fibroids account for approximately half of hysterectomies performed in the United States.⁴Data has shown that there are cardiovascular risk factors associated with hysterectomy.⁵

According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding fibroid specialists. The organization recognizes the significant health disparities which impact its community and provides support with a unique patient perspective. To aid in the correction of those disparities, the Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021 will provide $150M to the National Institutes of Health. Legislative benefits of the Uterine Fibroid Act include:
- APPROPRIATION of $30,000,000 for each of fiscal years 2022 through 2026
- Establish a RESEARCH database for treatment of fibroids
- Deliver REPORTING on State treatment expenditures
- COORDINATION of data and outcomes at the Federal level
- DISSEMINATE evidence-based care outcomes for individuals with fibroids
The Fibroid Foundation, with members in most U.S. states, and 48 countries, develops annual programming centered on education, advocacy and access to treatment. This month, the organization announced the #askHER initiative, aimed at encouraging conversation about uterine fibroids. The initiative addresses the stigma surrounding menstrual awareness by promoting dialogue in support of those diagnosed with fibroids.

The Fibroid Foundation is proud to support the ‘Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021’. Uterine fibroids disproportionately impact those of African descent. The Fibroid Foundation is encouraged to see meaningful legislation aimed at addressing the public health crisis in the U.S. which is impacting patients and their families. We thank Representative Clarke and the Congressional Black Caucus on Women & Girls for their leadership and look forward to working in partnership with Congress, and the many supporting organizations of the ‘Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021’.

About The Fibroid Foundation

The Fibroid Foundation is an organization founded by fibroid patient Sateria Venable in 2013 after her third of four fibroid surgeries. As the premier global community of fibroids patients, their mission is to:
- Be the voice of women living with fibroids.
- Create and support initiatives to find a cure for fibroids.
- Advocate for ongoing funding of patient-sensitive fibroids research.
- Erase the ‘Stigma of Silence’ around menstrual health.
- Minimize treatment disparities with layered patient support.
The Foundation has 25 chapters and a readership of 29,000 people around the world. The Foundation is published in Obstetrics and Gynecology, The Green Journal and other medical journals.

‘One woman at a time, we are showing the world that we are empowered and that we are driven to change our story!’

¹Management of Uterine Fibroids

²The Health Disparities of Uterine Fibroids for African American Women: A Public Health Issue

³Uterine Fibroids: Burden and Unmet Medical Need

⁴The Estimated Annual Cost of Uterine Leiomyomata in the United States

⁵Clinical practice and research yields valuable data for management of uterine fibroids

###

For Media Inquiries:

Emma Jasper

Phone: 240.621.0020
info@fibroidfoundation.org

##

If you are interested in partnering with The Fibroid Foundation, please visit https://www.fibroidfoundation.org/partners/

Source: The Fibroid Foundation
Source link
March 19, 2021
The Fibroid Foundation Announces the #askHER Initiative
Press Release
–

updated: Mar 2, 2021
WASHINGTON, March 2, 2021 (Newswire.com)
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The Fibroid Foundation (https://www.fibroidfoundation.org), a patient-founded nonprofit dedicated to fibroid education, research, treatment innovation and legislation, announces the #askHER initiative.

The Fibroid Foundation Announces the #askHER Initiative

The Fibroid Foundation announces the launch of a new initiative to promote conversation about uterine fibroids and to, ultimately, create a safe space where those diagnosed with fibroids can find support.

Seventy percent of all women develop uterine fibroids. With these shocking statistics, it might seem that everyone would be familiar with the term “fibroid,” but this is not the case. In The Fibroid Foundation’s role as patient advocates, the organization finds that many people are not aware of a health concern with such incredibly high diagnosis rates. So The Fibroid Foundation wondered, “How can we raise awareness of uterine fibroids in a way that engages everyone?”

That was the origin of the #askHER initiative.

#askHER and provide a safe space to:
- Hear her story
- Better understand how she’s feeling
- Understand how fibroids affect the family unit
- Find ways to help with advocacy
- Learn how to support future generations
As a community, we can find solutions to fibroids and erase the stigma around menstruation.

Let’s #askHER and create a movement. Let’s include everyone in this important conversation.

For anyone interested in partnering with The Fibroid Foundation, please visit https://www.fibroidfoundation.org/partners/.

About The Fibroid Foundation

The Fibroid Foundation is an organization founded by fibroid patient Sateria Venable in 2013. Our mission is to provide education, support research and treatment innovation, and promote legislation. We have 21 chapters and a readership of over 28,000 women around the world. Our publications include articles in Obstetrics and Gynecology and The Green Journal.

One woman at a time, we are showing the world that we are empowered, and that we are driven to change our story.

Fibroid Statistics:

The “Uterine Fibroids: Burden and Unmet Medical Need” 2017 study found that, “Using ultrasound screening, the estimated cumulative incidence rate of UF by the age of 50 is significantly higher in black women (80%) compared with white women (nearly 70%).” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6193285

Media Contact: hello@fibroidfoundation.org

Source: The Fibroid Foundation
Source link
March 2, 2021