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  • The Fibroid Foundation Announces National Menstrual Health Awareness Month

    The Fibroid Foundation Announces National Menstrual Health Awareness Month

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    May is National Menstrual Health Awareness Month — May 28 is International Menstrual Hygiene Day


    ROCKVILLE, Md., May 3, 2024 (Newswire.com)
    –
    The Fibroid Foundation announces National Menstrual Health Awareness Month 2024. This year’s theme is “Menstrual Health — Lack of Information at Every Phase.”

    The Foundation applauds Congresswoman Grace Meng (NY-6) for her leadership in introducing House Resolution 351: Recognizing the impact the stigmatization of menstruation has on the lives of women, girls, and people who menstruate, and expressing support for the designation of the month of May as “National Menstrual Health Awareness Month.”

    A Congressional Briefing will be held on Wednesday, May 8, 2024, at 2:45 p.m. ET at the Rayburn House Office Building. 

    Click here to RSVP (seating is limited).

    The briefing is hosted in partnership with:

    The World Health Organization defines menstrual health as follows: “… menstrual health means that women and girls and other people who menstruate, have access to information and education about it; to the menstrual products they need; water, sanitation, and disposal facilities; to competent and empathic care when needed; to live, study and work in an environment in which menstruation is seen as positive and healthy — not something to be ashamed of; and to fully participate in work and social activities.”(1)

    Celebrate National Menstrual Health Awareness Month with these toolkit resources from The Fibroid Foundation.

    Working together, the stigma of menstruation can be erased.

    The mission of The Fibroid Foundation is to eradicate uterine fibroids by amplifying and advocating for the unique voices of those affected from menarche through menopause. Our ultimate vision is to discover a cure, liberating women from the burdens of this affliction. In line with our core mission, we are dedicated to improving women’s healthcare worldwide, with a firm commitment to eradicating menstrual stigma that affects, restricts and endangers women everywhere. Our approach is rooted in research, education, advocacy, legislation, and innovative consulting.

    (1) WHO statement on menstrual health and rights

    For Media Inquiries: 
    Nicole McCrimmon
    Phone: 844.484.7698 (IT-IS-MY-U)
    info@fibroidfoundation.org 

    Source: The Fibroid Foundation

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  • The Fibroid Foundation Celebrates 10 Years of Advocacy

    The Fibroid Foundation Celebrates 10 Years of Advocacy

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    ROCKVILLE, Md., September 12, 2023 (Newswire.com)
    –
    The Fibroid Foundation is celebrating 10 years of advocacy and hosting the 3rd Annual Fibroid Research Summit. Since 2013, the organization has been a leader in uterine fibroid advocacy — a health concern that affects 26 million women in the U.S. and millions more globally. This milestone anniversary marks a decade of erasing menstrual stigmas, designing and authoring research studies, providing access to treatment resources, and leading the way in initiating legislation on uterine fibroids and menstrual health. 

    Founder Sateria Venable reflected on the past decade by saying, “I’m grateful to each community member, clinician, donor, and legislator who recognizes the importance of eliminating menstrual suffering. Menstrual health should be a concern for our community at large because it impacts each of us.”

    To join in the celebration, all are encouraged to visit the Fibroid Foundation’s website to learn more about the 10th anniversary and the events planned. 

    Fibroid Summit Program:  

    Day 1 — Sept. 20, 2023, at 11 a.m. ET 

    Dr. Serdar Bulun, Northwestern

    William Catherino, M.D., PhD, Uniformed Services University of the Health Sciences 

    Day 2 — Sept. 21, 2023, at 11 a.m. ET

    Dr. Mazhar Adli, Northwestern

    Shannon Whirledge, PhD, MSc, Yale

    All panels will be moderated by Sateria Venable.

    Register here.

    Uterine fibroids are the most common gynecologic condition in women, yet research remains underfunded. Dr. James Segars, Director, Division of Reproductive Science and Women’s Health Research, Professor of Gynecology and Obstetrics at Johns Hopkins University, authored a 2020 paper which concluded that, “In the subsets of bodily pain, vitality, and social functioning, fibroids were consistently a larger burden than heart disease, diabetes mellitus, and breast cancer.”1 

    The Fibroid Foundation continues to advocate for the passage of The Stephanie Tubbs Jones Fibroid Research and Education Act — H.R. 4572 and S.2303, introduced by Representative Yvette D. Clarke (NY-9) and Senator Cory Booker (D-NJ), respectively. Continued community support is requested by residents in each state to achieve the Congressional support required in order for both bills to be passed into law. Letters can be sent to your congressional representative via this link.

    According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding fibroid specialists. The organization recognizes the significant health disparities that impact its community and provides support to address the disparities from a unique patient perspective. 

    Fibroid Statistics: Visit the National Institutes of Health Fact Sheet on uterine fibroids to learn more

    This year’s Fibroid Summit Sponsors are SumitomoPharma/Pfizer and Omnia.

    To partner with The Fibroid Foundation, visit https://www.fibroidfoundation.org/.

    About The Fibroid Foundation

    A global organization founded by fibroid patient Sateria Venable in 2013, The Fibroid Foundation has coauthored 16 medical articles, purposefully leveraging the patient experience. 

    For Media Inquiries: 
    Karen Janus
    Phone: 844.484.7698 (IT-IS-MY-U)
    info@fibroidfoundation.org 

    Tags:
    #FibroidFoundation
    #FibroidSummit
    #FibroidBill
    #SateriaVenable
    #WomensHealth
    #UterineFibroids
    #Fibroids
    #Nonprofit

    Source: The Fibroid Foundation

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  • The Fibroid Foundation Celebrates ‘Breaking News – Fibroid Awareness Month 2023’

    The Fibroid Foundation Celebrates ‘Breaking News – Fibroid Awareness Month 2023’

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    ROCKVILLE, Md., July 6, 2023 (Newswire.com)
    –
    The Fibroid Foundation announces the 2023 Fibroid Awareness Month July event schedule. 

    The 2023 Fibroid Awareness Month Theme is “Breaking News!” All programs provide emerging insights and dynamic conversations on uterine fibroids and menstrual health. Register HERE for all programs.

    Featured events are:

    *July 7, 2023, at 7:00 PM EDT – Plastics and Fibroids

    Featuring: 

    Dr. Serdar Bulun, Chair, Department of Obstetrics and Gynecology, John J. Sciarra Professor of Obstetrics and Gynecology, Professor of Obstetrics and Gynecology and Obstetrics and Gynecology at Northwestern Medicine in Chicago, Illinois.

    *July 12, 2023, at 7:00 PM EDT – Workplace Strategies for Menstrual Care

    Featuring:

    Milena Bacalja Perianes, Founder of HerShare, Impact Mentor at the UNICEF Venture Fund, and co-founder of Madamí.

    and 

    Brittany Barreto, Ph.D., Co-founder and Executive Director of FemTech Focus, Host of the FemTech Focus Podcast, and President and Founder of FemHealth Insights.

    *July 19, 2023, at 7:00 PM EDT – The Black Maternal Health Crisis 

    Dr. Veronica Gillispie-Bell, Obstetrician & Gynecologist, Associate Professor for Ochsner Health in New Orleans, Louisiana, Senior Site Lead and Section Head of Obstetrics and Gynecology at Ochsner Kenner and Director of Quality for Women’s Services for the Ochsner Health System/Medical Director of the Minimally Invasive Center for the Treatment of Uterine Fibroids. Dr. Gillispie-Bell is also the Medical Director of the Louisiana Perinatal Quality Collaborative and Pregnancy Associated Mortality Review for the Louisiana Department of Health.

    Tianna Madison, two-time Olympian, and three-time Olympic Track and Field Gold Medalist. Maternal health advocate.

    *July 27, 2023, at 7:00 PM EDT – Fibroids and Menopause 

    Dr. Lauren Streicher is a clinical professor of obstetrics and gynecology at Northwestern University’s Feinberg School of Medicine, a Fellow in the American College of Obstetricians and Gynecologists, a member of the Sexual Medicine Society of North America, Inc., and a Top Doctor since 2002. 

    Sateria Venable, Founder & CEO of The Fibroid Foundation, will moderate the panels.

    Registration for all events can be found here.

    The Fibroid Foundation advocates for the passage of The Stephanie Tubbs Jones Fibroid Research and Education Act – H.R. 2007 introduced in The House of Representatives by Representative Yvette D. Clarke (NY-9). The Stephanie Tubbs Jones Uterine Fibroid Research and Education Act will provide $150M to the National Institutes of Health for fibroid research. 

    In the United States, an estimated 26,000,000 women between the ages of 15 and 50 have uterine fibroids.1  Uterine fibroids are the most common gynecologic condition in women2, however, treatment options and medical research funding have yet to match the enormity of the affected community. 

    The “Uterine Fibroids: Burden and Unmet Medical Need” 2017 study found that, “Using ultrasound screening, the estimated cumulative incidence rate of UF (uterine fibroids) by the age of 50 is significantly higher in black women (80%) compared with white women (nearly 70%).”3 Annually, uterine fibroids account for approximately half of hysterectomies performed in the United States.  Data has shown that there are significant cardiovascular risk factors associated with hysterectomy.

    According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding fibroid specialists. The organization recognizes the significant health disparities impacting its community and provides support to address them from a unique patient perspective. 

    The Fibroid Foundation mission:

    • Normalize conversations about menstruation.
    • Foster a movement for everyone with a uterus to thrive.
    • Eliminate treatment disparities with layered patient support.
    • Engage family and community in the menstrual health mission
    • Enable those diagnosed with uterine fibroids to experience a smooth path to treatment with fulfilling outcomes
    • Spark joy through advocacy.
    • Understand how and why fibroids develop, and ultimately find a cure.

    About The Fibroid Foundation

    The Fibroid Foundation is a global fibroid and menstrual health advocacy organization celebrating its 10th Anniversary in September 2023.   

    1. A systematic review of the psychosocial impact of fibroids before and after treatment

    2. Epidemiology of Uterine Fibroids – From Menarche to Menopause

    3. Uterine Fibroids: Burden and Unmet Medical Need

    Source: The Fibroid Foundation

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  • The Fibroid Foundation Announces Fibroid Awareness Month 2022

    The Fibroid Foundation Announces Fibroid Awareness Month 2022

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    Press Release
    –

    Jul 6, 2022


    WASHINGTON, July 6, 2022 (Newswire.com)
    –
    The Fibroid Foundation announces the Fibroid Awareness Month event schedule for July 2022. This Year’s Fibroid Awareness Month Theme is ‘Real Solutions.’

    Featured events are:

    July 7, 2022 at 7:00 PM ET – Fibroids and Fertility

    Featuring: 

    Dr. Ray Anchan, Reproductive Endocrinology & Infertility Specialist at Brigham and Women’s Hospital

    Dr. Sony Singh, Gynecologic Surgeon, Professor in Gynecology at the University of Ottawa & The Ottawa Hospital

    Dr. Elizabeth (Ebbie) Stewart, MD, Chair of Reproductive Endocrinology & Infertility at Mayo Clinic

    July 14, 2022 at 7:00 PM ET – From First Flow to Last Flow

    Featuring: 

    Dr. Linda Bradley, Obstetrics & Gynecology Specialist at Cleveland Clinic

    Melissa Berton, Founder & Executive Director at The Pad Project

    Jennifer Gularson, Board Certified Physician Assistant, Functional Medicine Certified Practitioner

    Le’Nise Brothers, Author and Registered Nutritionist Specializing in Hormones & the Menstrual Cycle

    July 21, 2022 at 7:00 PM ET – The State of Women’s Health Equity 

    Featuring: 

    Dr. Sarah Temkin, Associate Director for Clinical Research at the National Institutes of Health –  Office of Research on Women’s Health

    Michela Bedard, Executive Director at PERIOD – The Menstrual Movement

    July 28, 2022 at 7:00 PM ET – Conversations on Capitol Hill 

    Featuring legislators who are leading the way to raise awareness and seek funding for fibroid research and education. 

    Sateria Venable, Founder & CEO of The Fibroid Foundation, will moderate the panels.

    Registration for all events can be found here.

    Fibroid Awareness Month programming will focus on tangible solutions that support better outcomes and less invasive treatments. Dr. James Segars, Director, Division of Reproductive Science and Women’s Health Research, Professor of Gynecology and Obstetrics at Johns Hopkins University, authored a 2020 paper which concluded that, “In the subsets of bodily pain, vitality, and social functioning, fibroids were consistently a larger burden than heart disease, diabetes mellitus, and breast cancer.”1

    “In the subsets of bodily pain, vitality, and social functioning, fibroids were consistently a larger burden than heart disease, diabetes mellitus, and breast cancer.” – A systematic review of the psychosocial impact of fibroids before and after treatment

    Go, Thomas, et al.

    In the United States, an estimated 26,000,000 women between the ages of 15 and 50 have uterine fibroids.2  Uterine fibroids are the most common gynecologic condition in women3, however treatment options and medical research funding have yet to match the enormity of the affected community. 

    The Fibroid Foundation continues to advocate for the passage of The Stephanie Tubbs Jones Fibroid Research and Education Act – H.R. 2007 introduced in The House of Representatives by Representative Yvette D. Clarke (NY-9) Continued community support is requested by residents in each state to achieve the House and Congressional support required in order for H.R. 2007 to be passed into law. 

    According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding minimally invasive gynecologic surgeons (MIGS). The organization recognizes the significant health disparities that impact its community, and provide support to address the disparities from a unique patient perspective. 

    The Fibroid Foundation mission:

    • Normalize conversations about menstruation.
    • Foster a movement for everyone with a uterus to thrive.
    • Eliminate treatment disparities with layered patient support.
    • Engage family and community in the menstrual health mission
    • Enable those diagnosed with uterine fibroids to experience a smooth path to treatment with fulfilling outcomes
    • Spark joy through advocacy.
    • Understand how and why fibroids develop, and ultimately finding a cure.

    About The Fibroid Foundation
    The Fibroid Foundation is an organization founded by fibroid patient Sateria Venable in 2013. The Fibroid Foundation is published in eleven medical journals.

    ‘One woman at a time, we are showing the world that we are empowered, and that we are driven to change our story!’

    ~Sateria, Founder

    1. A systematic review of the psychosocial impact of fibroids before and after treatment

    2. Epidemiology of Uterine Fibroids – From Menarche to Menopause

    3. Uterine Fibroids: Burden and Unmet Medical Need

    For Media Inquiries: 

    Emma Jasper

    Phone: 844.484.7698 (IT-IS-MY-U)
    info@fibroidfoundation.org 

    Source: The Fibroid Foundation

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