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Tag: endometriosis

  • Esteemed Philanthropist Daniel Neiditch Illuminates the Red Carpet as Honored Guest at the Prestigious 12th Annual Blossom Ball in NYC

    Esteemed Philanthropist Daniel Neiditch Illuminates the Red Carpet as Honored Guest at the Prestigious 12th Annual Blossom Ball in NYC


    NEW YORK, May 6, 2024 (Newswire.com)
    –
    Daniel Neiditch, the real estate magnate from River 2 River Realty, graced the illustrious red carpet event which was adorned with stars and dignitaries. This gathering marked the 12th annual Blossom Ball, a glittering affair dedicated to raising crucial funds for the Endometriosis Foundation of America. Daniel Neiditch’s presence as an honored guest lent an air of prestige to the evening, underscoring his unwavering commitment to philanthropy and advocacy for women’s health.

    The Blossom Ball, a beacon of hope and solidarity, serves as a platform to spotlight the pervasive impact of endometriosis, a debilitating condition affecting over 200 million women globally. With statistics revealing its staggering prevalence, affecting one in ten women in the United States, the urgency to address this health crisis cannot be overstated. Dan Neiditch’s alignment with this cause underscores his dedication to supporting initiatives that empower women and advance medical research.

    Among the luminaries who support this cause, Daniel Neiditch found himself alongside renowned figures such as Amy Schumer, Billy Joel, Olivia Culpo, and Corinne Foxx, all supporters of the Endometriosis Foundation of America. Their collective presence symbolized a unified front in the fight against this disease, emphasizing the importance of community support and medical innovation in effecting change.

    Daniel Neiditch walked the red carpet in stride with Bindi Irwin, the respected daughter of the late Steve Irwin, a beloved wildlife conservationist. Bindi’s own battle with endometriosis, a struggle she courageously shared, served as a testament to the resilience of the human spirit. Bindi underwent surgery to confirm her endometriosis less than a year ago. Bindi explained her health has improved massively since. “It’s night and day,” Bindi said. “It’s completely different. I am a new person and every day it seems to get better after surgery.” Despite facing formidable challenges, Bindi’s unwavering commitment to wildlife conservation and environmental stewardship has inspired millions around the world.

    Daniel Neiditch’s philanthropic endeavors extend beyond the confines of this star-studded event, as evidenced by his advocacy for women’s rights on a global scale. Collaborating over the course of his philanthropic work with influential women such as Shania Twain, Reese Witherspoon, Jennifer Aniston, Secretary Hillary Clinton, and Senator Kirsten Gillibrand, Neiditch has championed causes aimed at promoting gender equality and dismantling systemic barriers to women’s advancement.

    In light of the ongoing struggles faced by women worldwide, particularly in regions where basic rights are routinely denied, Daniel Neiditch’s advocacy takes on added significance. His unwavering commitment to amplifying the voices of women and advocating for their basic freedoms serves as a beacon of hope in an often-tumultuous world. Through his platform, Dan Neiditch endeavors to effect meaningful change, ensuring that all women have access to the essential healthcare and liberties enjoyed in the United States.

    Source: River 2 River Realty

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  • Tiffany Haddish Opens Up About Her “Devastating” Experience With 8 Miscarriages

    Tiffany Haddish Opens Up About Her “Devastating” Experience With 8 Miscarriages

    Tiffany Haddish is opening up about experiencing eight miscarriages and her battle with endometriosis.

    RELATED: Whew! Tiffany Haddish Goes Viral After Sharing She’s Going To Israel To “Learn & See” For Herself (Video)

    Tiffany Haddish Speaks On Battle Endometriosis

    On Thursday, April 25, PEOPLE published an exclusive interview with Haddish. During the conversation, the comedian got candid about her personal health and “suffering from endometriosis.” To note, Mayo Clinic reports that the condition occurs when “tissue that is similar to the inner lining of the uterus grows outside the uterus.”

    Additionally, the outlet notes that the condition is “often painful.”

    “I’m pretty sure the devil is real,” Haddish told the outlet. “Because the first day of my period, no matter what, the devil goes into overdrive. I feel like my life gets turned upside down… [I] be like, ‘Am I dying?’”

    Furthermore, Haddish explained that in November 2023, she went to the doctor because she was constantly fainting.

    “She gave me something because I kept passing out. I don’t talk about it, but people just think I’m sleep everywhere, but I’m passing out because I’ll be in so much pain,” the comedian explained.

    The Comedian Opens Up About Her 8 Miscarriages

    The 44-year-old explained that her battle with the condition has become so severe that she’s had to undergo extensive surgery. Haddish said that the pain feels like someone is “kicking” her in her back. Additionally, she shared that she recently learned that “extra layers” of endo were “hanging down” from her uterus.

    “They’ve shaved it down, I had to do a fibroid [removal] thing,” Haddish explained. “I just want them to stay out of [there].”

    However, despite the extensive surgery, the comedian says the side effects of miscarriages have been the most “devastating.” Additionally, she revealed she most recently experienced one last year.

    “It’s so f*****g devastating,” Haddish shared. “Every time I find out I’m pregnant, I’m like, ‘Don’t drink, don’t smoke, don’t do nothing. Even if I don’t really want [the baby], I still try to give it a chance.”

    Tiffany Haddish Recently Revealed THESE Personal Milestones

    As The Shade Room previously reported, Haddish also revealed to PEOPLE that she is now six months sober and celibate.

    “I’m very sober,” she explained. “…When I sit back and look at my life, everything that’s crazy that’s happened is because somebody or myself had alcohol in their system.

    Haddish explained that previously, when she was under the influence, she would be more prone to sexual behavior.

    “With alcohol [my mind] would just be like, ‘You’re horny, let’s just do it.’ [Now] I be like ‘nah, nope.’”

    In HER interview with PEOPLE, published on April 25, Haddish explained that she’s now dating “multiple guys.” Additionally, she shared that there’s “a part” of her that still wants to become a mother.

    “I’ve got all this love, I should give it to somebody who can grow with it,” she said.

    RELATED: Double To Celebrate! Tiffany Haddish Reveals She’s Six Months Sober & Celibate

    Jadriena Solomon

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  • Australian Endometriosis Patients Find Relief Through MMJ Despite Cost Barriers | High Times

    Australian Endometriosis Patients Find Relief Through MMJ Despite Cost Barriers | High Times

    Using cannabis for pain relief is nothing new. Across the U.S., most states include chronic pain as a qualifying condition for medical cannabis.

    Looking broader, individuals around the globe are already embracing cannabis for these pain-relieving qualities alongside the additional benefits it may offer. While we’re still learning exactly how cannabis can work to treat symptoms and provide relief for specific conditions, many are taking matters into their own hands with promising results — and these trends could very well help to shape further research and policy.

    A recent survey published in the journal Obstetrics & Gynecology took a closer look at symptom management pertaining to cannabis and endometriosis, finding that patients often turn to cannabis to alleviate their symptoms despite ongoing barriers to access.

    Cannabis Use Among Endometriosis Patients

    Endometriosis is a condition where tissue similar to the lining of the uterus grows outside of the uterus, generally resulting in severe pelvic pain and inflammation. The tissue acts in the same way as the lining inside the uterus, thickening, breaking down and bleeding with each menstrual cycle. Endometriosis involving the ovaries can also result in cysts, causing surrounding tissue irritation and formation of scar tissue.

    Endometriosis can start at the time of a person’s first menstrual period and last until menopause. We still don’t know what causes endometriosis, there is no way to prevent it and there is no cure. However, there are a number of treatments to help ease the related symptoms. Some opt for surgery to remove lesions, while many embrace hormonal intrauterine devices, birth control methods, opioid-based pain medications and more for ongoing relief.

    That said, we can safely add cannabis to the list of modern-day treatments given its prevalence of use.

    In the survey, Australian researchers examined the perspectives of 192 people with a history of cannabis use and endometriosis. Noting it as a “very expensive disease, with substantive out of pocket costs for pain and symptom management,” researchers reference cost and accessibility to cannabis-based medicinal products (CMBPs) as a primary focus of the survey. They also cite the lack of information surrounding ideal products, modes of administration and efficacy in current research.

    Researchers gathered data through an online survey of Australian and New Zealand residents, via social media and community-based advocacy platform Cannareviews.co. Respondents included those using either illicit cannabis or legal CMBPs prescribed by a doctor to manage endometriosis and chronic pelvic pain-related symptoms. However, the published report only includes data from Australian respondents. 

    The survey found that THC-dominant CBMPs are most commonly prescribed to Australians with endometriosis, noting multi-product use as a common trend with most people reporting the use of at least two products. For those with only one prescription (23%), it was almost always a THC-dominant product. 

    Most respondents (59.4%) said they used cannabis recreationally and for endometriosis symptom management, though many exclusively used cannabis to manage symptoms (40.1%).

    Patients reported improvements in common endometriosis symptoms through the use of legal CBMPs, specifically sleep (68.9%), chronic pelvic pain (44.5%), nausea (47.9%), anxiety/depression (45.4%) and menstrual pain (38.7%). 

    They also reported a reduction in the use of opioids, hormonal treatments, non-steroidal inflammatory drugs, neuroleptics and illicit cannabis. 

    Oils and flower were the most common product types, illicit or legal.

    Examining Cost and Access to Cannabis Medicines

    The results also pointed to legal, THC-dominant cannabis medications being more expensive than illicit “equivalents” and that the extra cost for legal access often led to people underdosing (76.1%) or resorting to illicit cannabis to “bridge the gap” and easen cost burdens (42.9%).

    Researchers note that relying upon illicit cannabis products can lead to inadequate symptom management, using products that have not been tested for safety and quality and of course associated legal ramifications.

    Nearly all (96.3%) respondents said that their cost burden would be substantially reduced if CBMPs were a Pharmaceutical Benefits Scheme (PBS) listed and subsidized product. 

    The bulk of respondents said they would consider moving insurers if they found out their private health insurance would not reimburse the cost of cannabis medicine as well — 60.9% said maybe, depending on other factors; 20.3% said yes, so long as the premium was the same price or less; 11.7% said yes, even if the premium was higher; only 7% said no.

    Researchers said that patients’ willingness to switch insurers based on this variable “speaks to the pivotal nature of cost concerns (and perceived effectiveness) relating to affordable access to cannabinoids.” Additionally, they state that the results suggest a need for a greater response from insurers in the country.

    “Given the lack of well-tolerated alternatives for medical management of endometriosis, this is an equity issue that urgently needs addressing,” they add.

    Limitations and Looking Ahead

    Researchers note that self-reported nature of cost, diagnosis and product consumption as a limitation. They also cited the potential for their recruitment methods — through social media and Cannareviews’ patient base — to produce recall and selection bias, as participants may have either had more severe impacts to quality of life or a more positive experience with illicit or medicinal cannabis than the broader population.

    Still, the data affirms that many are already finding relief and relying on cannabis treatments for endometriosis, highlighting the need for better access.

    “Given major issues with symptom management and the self-reported reductions in pain and other symptoms, improving access to medicinal cannabis for this population is important and timely,” authors conclude. “Reductions in cost of both product and consultations, as well as coverage by insurance are areas which need addressing.”

    Keegan Williams

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  • How Endometriosis Complicates the “Do You Want Kids?” Conversation While Dating – POPSUGAR Australia

    How Endometriosis Complicates the “Do You Want Kids?” Conversation While Dating – POPSUGAR Australia

    Last month on “The Bachelor,” a contestant, Lexi Young, surprised viewers by choosing to prematurely leave the show because she and bachelor Joey Graziadei weren’t on the same timeline when it came to children. Young had been open about her endometriosis diagnosis and said at the time, “Because I have endometriosis, having children is going to be a lot more difficult.” It was refreshing to see endometriosis be discussed on such a large platform, because the truth of the matter is, for many dating with chronic illness, these conversations are happening all the time.

    Endometriosis is a painful condition that affects one in nine people with a uterus. It can be described by tissue similar to the lining of the uterus that is found growing in other areas of the body. This condition can cause debilitating pain and infertility. Living with endometriosis can make the day-to-day difficult, not to mention dating.

    From my own experience, I can say that the brutal reality of living with endo is hard to work into first-date conversations. It’s hard to navigate when the right time is to bring up the ins and outs of living with endometriosis. Letting someone see you at your most vulnerable can be really nervewracking. The questions and “what ifs” can quickly become overwhelming: How will they react when I cancel plans because I’m in pain? Will they leave when I tell them sex can be painful? When should I bring up children?

    I learned it was best to be transparent – early on – about my reality and how endo affects my life. Of course, that may lead to potential heartbreak, but someone who isn’t willing to support and accept me fully (endo and all) isn’t worth the time and tears.

    Instead of pitying me, he told me I was brave.

    When I went on my first date with my now-fiancé, I was terrified and almost canceled. I was having a bad pain day, and none of my cute clothes would fit from bloating in my stomach. I wasn’t feeling confident. Luckily, I didn’t cancel and instead put on my comfiest dress. He called me beautiful, and the conversation was easy. I felt comfortable with him. Comfortable enough to tell him my story – and instead of pitying me, he told me I was brave.

    In navigating my illness while being in a relationship, the biggest thing I can emphasize is communication. Before I started staying over at my fiancé’s house, I made him aware of what my “bad nights” can look like and how they can affect me the next day. Those days I’m so run down I can barely leave bed. My pain makes me vomit and, at times, pass out.

    The first few times I let him see that side of my life, he made me feel at ease. He would comfort me and offer ways to help me, he would heat up my heat pack for me, and he would bring me water and painkillers. Being with him on those bad days that I’m usually alone made them that little bit easier to tolerate. Not once did I feel embarrassed or guilty about our days spent in bed. That was one of the moments I knew he was the boy I wanted to marry.

    A year into our relationship, I underwent a second surgery for endo. These surgeries involve removing endometriosis tissue from organs and, in my case, separating organs that have been stuck together from such intense tissue growth. Sitting in the car after my specialist appointment, I looked at him and immediately burst into tears. He could tell the news I had just received wasn’t good.

    My endometriosis was quite advanced, and it had attached itself to most of my pelvic organs and caused some horrific damage. That day in the car that I showed him my surgery pictures, he couldn’t understand what they meant, so through tears, I told him, “Kids, I might not be able to have kids. I am so sorry.”

    We had already spoken about kids – how we both grew up in big families and wanted that for ourselves. At that moment, I felt like I’d let him down, that it was the last straw, the final thing that would make me “too much.” Instead, he held my hand and he kissed me. He told me over and over, “We’ve got this, I’m not going anywhere.”

    From that moment, we started trying for kids, and somehow, it didn’t feel rushed. Sure, there was pressure from the odds that were given to us, but we still kept trying. We downloaded the ovulation apps and took it in stride. Scheduled sex can get old quickly, but we tried our best to make it fun – an adventure, a time to experiment and try new things. That was what we’ve become really good at: making the best of a bad situation.

    I won’t sugarcoat it: it was hard dealing with infertility. We spent hundreds of dollars on specialists and medications. We were in our early 20s, and while most of our friends were still clubbing and living like 20-somethings should, we were trying special diets and staying in on weekends to save money in case we needed to do IVF. For two years, we tried. It was hard on us, but it made us stronger. At times, I felt like a failure when I’d come back with a negative pregnancy test, but just like that day in the car, he would kiss me and tell me it was going to be OK.

    Since then, I’ve undergone seven more surgeries for my endometriosis. I completed IVF, and I am now 20 weeks pregnant with a miracle baby boy.

    Years ago, I couldn’t have imagined any of this would be happening. I saw myself as “too much.” I thought my endo made me hard to love, because it’s easy to feel that way when your body is seemingly turning against you. How can you love yourself when you despise your body and the pain it causes? But no matter your diagnosis, you are worthy of love – not just from others, but most importantly, yourself.

    Related: I Love Being Child-Free, but Who Will Take Care of Me When I’m Older?

    Haylee Penfold is a 20-something writer from Australia. She is the health and sex editor for Ramona Magazine, where her focus is on chronic illness advocacy and inclusive sex education.

    Haylee penfold

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  • Bindi Irwin gets emotional over endometriosis surgery: ‘It’s been a long journey’ – National | Globalnews.ca

    Bindi Irwin gets emotional over endometriosis surgery: ‘It’s been a long journey’ – National | Globalnews.ca

    After Bindi Irwin underwent surgery for endometriosis, the validation from her doctors was enough to bring the Australian native to tears.

    In March, Irwin, the daughter of the late zookeeper Steve Irwin, revealed she was diagnosed with endometriosis — a painful disorder in which uterine-like tissue, called the endometrium, grows outside of the uterus and forms lesions.

    For the 25-year-old conservationist, the condition caused “indescribable” pain, extreme fatigue, cramping and nausea.


    Click to play video: 'Understanding endometriosis'


    Understanding endometriosis


    Now, about seven months post-surgery, Irwin told Good Morning America she feels like a “completely new person.”

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    “It’s been a long journey,” Irwin recalled with tears in her eyes. “It’s been a long ten years.”

    Irwin said she’s been dealing with the symptoms since she was a teenager. In her search for a diagnosis she visited numerous doctors and underwent several medical tests including MRIs, ultrasounds, CT scans and testing for cancer.

    Every time, her pain was again dismissed by doctors, and Irwin was left without answers. She said month after month, her symptoms grew worse and her “devastation” increased.

    Finally, after marrying her husband and giving birth to their first child, daughter Grace, Irwin was diagnosed with endometriosis. The identification came after Irwin experienced “severe unexplained pain” that caused her to believe she was miscarrying during her pregnancy.

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    Since many women with endometriosis cannot get pregnant, Irwin said she and husband Chandler Powell are “so lucky to have Grace.”

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    Irwin had surgery to confirm her endometriosis diagnosis this year. She said her doctors removed 37 lesions from around her uterus.

    When she awoke from surgery, Irwin said the first thing her doctor asked was simple: “How did you live with that much pain?”

    “That validation meant so much to me,” Irwin cried.

    The healing process was long, but the surgery changed Irwin’s life.

    “My health now is night and day,” she said. “I’m actually able to go on a walk with my family. I’m able to do the conservation work. I’m able to be there for our daughter, finally. I’m able to run around with her, to play with her, to have fun and revel in her joy.”

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    Irwin said she hopes her story will inspire people with endometriosis, or other undiagnosed conditions, to advocate for themselves and their quality of life.

    “I hope that other people will find comfort in my story,” Irwin said. “Maybe my story resonates.”

    Approximately one in 10 women will develop endometriosis, according to the Canadian Endometriosis Network. The cause of the condition is not known.

    &copy 2023 Global News, a division of Corus Entertainment Inc.

    Sarah Do Couto

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