ReportWire

Tag: dialysis

  • Parker Jewish Institute launches bedside blood transfusions | Long Island Business News

    [ad_1]

    Parker Jewish Institute offers NYS-approved bedside blood transfusions, providing an alternative to hospital-based transfusions.

    [ad_2]

    Adina Genn

    Source link

  • To find living donors for kidney transplants, a pilot program turns to social networks

    [ad_1]

    HARRISBURG, Pa. — Fernando Moreno has been on dialysis for about two years, enduring an “unbearable” wait for a new kidney to save his life. His limited world of social contacts has meant that his hopes have hinged on inching up the national waiting list for a transplant.

    That was until earlier this year, when the Philadelphia hospital where he receives treatment connected him with a promising pilot project that has paired him with “angel advocates” — Good Samaritan strangers scattered around the country who leverage their own social media contacts to share his story.

    So far, the Great Social Experiment, as it was named by its founder, Los Angeles filmmaker David Krissman, hasn’t found the Vineland, New Jersey, truck driver a living kidney donor. But there are encouraging early signs the angel advocate approach is working, and there’s no question it has given Moreno new optimism.

    “This process is great,” said Moreno, 50, whose own father died of kidney failure at 65. “I’m just hoping there will be somebody out there that’s willing to take a chance.”

    Moreno is part of a pilot program with 15 patients that began in May at three Pennsylvania hospitals. It’s testing whether motivated, volunteer strangers can help improve the chances of finding a life-saving match for a new kidney — particularly for people with limited social networks.

    “We know how this has always been done, and we’re trying to put that on steroids and really get them the help that they need,” Krissman said. “Most patients are too sick to do this on their own — many don’t have the skills to do it on their own.”

    The Gift of Life Donor Program, which serves as the organ procurement network for eastern Pennsylvania, southern New Jersey and Delaware, is supporting the pilot program with a grant of more than $100,000 from its foundation.

    So far, two of the five patients in the program through Temple University Hospital have found kidney donors, and one is preparing for surgery, according to Ryan Ihlenfeldt, the hospital’s director of clinical transplant services. One of the five patients at the University of Pittsburgh Medical Center in Harrisburg has also undergone a transplant.

    The approach Krissman has developed is something new, said Richard Hasz Jr., Gift of Life’s chief executive, and may help identify the types of messages that attract and motivate potential live kidney donors.

    “This is the first of its kind that I’m aware of,” Hasz said. “That’s why, I think, the foundation was so interested in doing it — studying it and hopefully publishing it — so we can create that blueprint, if you will, for the future.”

    Gift of Life agreed to fund a broader test and helped Krissman identify five patients each at Temple, UPMC-Harrisburg and Jefferson University Hospital in Philadelphia.

    Hasz said the pilot program’s approach combines social media outreach with Krissman’s storytelling talents and aggressive efforts to mobilize the patients’ own connections.

    “We know that patients who are waiting don’t always have the energy or the resources to do this themselves,” Hasz said.

    There have been other ways for patients to set up “ microsites ” where they can tell their stories and seek a donor match. But the pilot program currently underway in Pennsylvania aims to connect patients with a wide universe of potential donors and produce videos and other ways to spread their message.

    Krissman’s bout with an illness about two decades ago inspired him to tackle the sticky challenge of increasing live kidney donations. He was debilitated for more than a year before medication helped him recover, explaining, “It gave me my life back. And I never forgot what it’s like to be chronically sick.”

    After producing a podcast on kidney transplantation, Krissman recruited four patients through Facebook who were waiting for kidneys. He was able to help two of them. A second effort, a pilot program with three patients in North Carolina that ended last year, helped match all three with living donors.

    Becca Brown, director of transplant services at UPMC-Harrisburg, thinks it might be a game changer.

    “There’s potential for this to really snowball,” Brown said. “I’m anxious to see what happens and if we can roll it out to other patients.”

    Some 90,000 people in the United States are on a list for a kidney transplant, and most of the roughly 28,000 kidneys that were transplanted last year came from deceased donors. Living kidney donations are hard to come by — about 6,400 were transplanted last year. Thousands die each year waiting for an organ transplant in the United States.

    Living kidney donations can be a better match, reducing the risk of organ rejection. They allow for surgery to be planned for a time that is optimal for the donor, the recipient and the transplant team. And, the foundation says, living donor kidneys, on average, last longer than kidneys from deceased donors.

    The National Kidney Foundation says living donors must be at least 18 years old, although some transplant centers set the minimum age at 21. Potential donors get screened for health problems and can be ruled out if they have uncontrolled high blood pressure, diabetes or cancer, or if they are smokers.

    Many living donors make “directed donations” to specify who will get their kidney. Nondirected donations are made anonymously to a patient.

    Francis Beaumier, a 38-year-old information technology worker from Green Bay, Wisconsin, came into contact with the angel advocate program after being a double living donor — a kidney and part of his liver.

    He sees the program as “a great little way for everyone to make a small difference.”

    Another angel advocate, Holly Armstrong, was also a living donor. She hopes her efforts will plant a seed.

    “Some people might just keep scrolling,” said Armstrong, who lives in Lake Wiley, South Carolina. “But there might be someone like me, where they stop scrolling and say, ‘This boy needs a kidney.’”

    A study released last year found that people who volunteer to donate a kidney are at a lower risk of death from the operation than doctors had previously thought. Tracking 30 years of living kidney donations, researchers found fewer than 1 in every 10,000 donors died within three months of the surgery. Newer and safer surgical techniques were credited for dropping the risk from 3 deaths per 10,000 living donors.

    Temple serves a large cohort of poorer patients who can have difficulty understanding health issues and who suffer from uncontrolled hypertension and diabetes, Ihlenfeldt, who works there, said.

    “What David’s trying to do is coalesce a network of support around these patients who are sharing the story for them,” Ihlenfeldt said.

    At a kickoff event in a Harrisburg meeting room for kidney patient Ahmad Collins, a couple dozen friends and family listened with rapt attention as Krissman went over the game plan, answering questions and describing the transplant process.

    Collins, a 50-year-old city government worker and former Penn State linebacker, has needed 10 hours a night of dialysis since a medical procedure left him with damaged kidneys late last year.

    His mind was on the strangers who might decide to pitch in.

    “They can be a superhero, so to speak,” Collins said. “They can have the opportunity to save somebody’s life, and not too many times in life do you have that opportunity.”

    [ad_2]

    Source link

  • Women are sent to Carswell federal prison for dialysis. They say it’s killing them.

    [ad_1]

    A photo of Martha Perez is found in a bin of family photos at her family's home in Prescott Valley, Arizona, on Sunday, March 9, 2025.

    A photo of Martha Perez is found in a bin of family photos at her family’s home in Prescott Valley, Arizona, on Sunday, March 9, 2025.

    Courtney Pedroza for the Marshall Project

    Evangelina Perez lost count of the number of times her mother, Martha Perez, called her from federal prison, gasping for breath because she had missed dialysis treatments for her kidney failure.

    At 59, Martha Perez also had diabetes and congestive heart failure. She had been in various federal prisons since 2005 on money laundering and drug convictions. In 2018, the Bureau of Prisons sent her to the Federal Medical Center Carswell in Fort Worth, the country’s only federal medical prison for women.

    The bureau houses some of the sickest women at Carswell, and it’s the only federal women’s prison with in-patient dialysis — a critical, life-sustaining treatment for people with kidney failure.

    But in court documents she filed pleading for release, Perez described her worsening health and her fear of dying at Carswell. In May 2022, another incarcerated person had to help her write a final request because of her poor vision. Just over a year later, Perez died in a Fort Worth hospital. No family was with her.

    “I understand the circumstances, but initially, like there is a care that they should have been providing,” Evangelina Perez said. “It got to the point where she started retaining fluid on her chest, and she ended up passing away from a heart attack.”

    Perez had serious illnesses that required consistent care. But Carswell does not adequately provide the dialysis care that the Bureau of Prisons claims it does, according to lawyers, medical experts and former bureau officials, along with court and medical records. Women at Carswell describe missed treatments, poor education for patients, dialysis machines that break down mid-treatment or that lacked enough clean water, and other routine problems.

    Evangelina Perez poses while holding a photo of her mother, Martha Perez, down the street from her home in Prescott Valley, Arizona, on Sunday, March 9 2025.
    Evangelina Perez poses while holding a photo of her mother, Martha Perez, down the street from her home in Prescott Valley, Arizona, on Sunday, March 9 2025. Courtney Pedroza for the Marshall Project

    Doctors who reviewed the women’s court filings and allegations say the problems described would put dialysis patients in serious danger. Legal filings by prisoners, medical records and expert court testimony raise flags about preventable — and potentially fatal — conditions arising from substandard care. The Bureau of Prisons, which is supposed to fix those problems, operates with little to no external oversight over its medical care.

    A federal judge overseeing a dialysis patient’s compassionate release case said testimony from seven women on dialysis was “concerning,” but said he could not approve the release. Doing so, the judge said, could imply the entire Bureau of Prisons provides ineffective dialysis care.

    Michele Deitch, director of the Prison and Jail Innovation Lab at the University of Texas in Austin, said people in prison “have a constitutional right to receive medical care for their serious medical needs. And dialysis is certainly an example of that.”

    If the federal government “cannot take care of people and meet their needs as required by the Constitution,” Deitch said, “then we have no business locking them up.”

    The Bureau of Prisons declined requests for an interview. In answers to emailed questions, spokespersons wrote that the agency provides adequate dialysis care, including sufficient staffing and education for patients.

    “At present, there have been no reports or claims concerning the quality of the dialysis care being provided at FMC Carswell,” wrote spokesman Donald Murphy.

    Carswell has been the subject of numerous investigations calling into question its treatment of incarcerated people. In 2020 and 2021, women at the facility described negligent medical care and malicious treatment as COVID spread through the prison. In 2023, a Fort Worth Star-Telegram investigation highlighted a pattern of sexual abuse by staff. In response, a state representative called for a congressional inquiry into the prison, though none were launched.


    When she died in June 2023, Perez was one of about 15 women at Carswell receiving dialysis. The treatment uses a surgically installed port to connect a patient to a machine that filters their blood, removing toxins the kidneys no longer can process, before pumping the cleaned blood back into the patient. The process takes three to five hours and is usually needed three times a week — or patients may risk serious complications and death.

    Kidney failure can be caused by a multitude of issues, most commonly diabetes, high blood pressure and chronic kidney disease. Perez had all three. In June 2021, Perez started dialysis after she had a stroke.

    Federal medical prisons, despite their name, are not hospital-like facilities: They keep incarcerated people with medical needs, but in many cases, do not provide all of their care in-house. Carswell, which houses approximately 1,200 people, contracts with the University of North Texas Health Science Center for much of its medical care. The Health Science Center, in turn, subcontracts dialysis services to the private provider U.S. Renal Care of West Fort Worth, according to the Bureau of Prisons. Under Carswell’s contract with the Health Science Center, the bureau is still responsible for providing all dialysis equipment.

    U.S. Renal Care confirmed it provides dialysis at Caswell, but did not respond to several interview requests and other emailed questions about its services there.

    Dialysis is only part of the treatment for people with kidney failure. They also need a strict diet and water intake monitoring, and blood work to closely check various chemical levels. A patient’s port must be kept extremely clean to avoid sepsis, a life-threatening infection.

    According to Bureau of Prisons mortality reviews from 2015 to April 2020, at least three women undergoing dialysis at Carswell died in that time period. All three women had been transferred to Carswell specifically to receive medical treatment, and all three developed sepsis prior to their death, according to the mortality reviews. Reason Magazine obtained the documents through a records request and provided them to The Marshall Project.

    Sepsis is far less common if staff follow the proper contamination protocols for dialysis machines, said Dr. Charles Howard, who has served as medical director at two federal prisons for over two decades.

    There are no publicly available records of deaths in federal prisons. The Bureau of Prisons has yet to fulfill records requests for mortality reviews or the number of dialysis patients who have died at Carswell.

    When asked how many Carswell dialysis patients have died since 2020, a bureau spokesman initially said “zero.” When asked specifically about Perez, who died in 2023, spokesman Scott Taylor said that no one “had passed away as a result of their condition that required dialysis.” Regarding Perez’s death, Taylor said “there was no correlation between the need for dialysis and the cause of death.”


    Five current or former dialysis patients at Carswell spoke with The Marshall Project and also detailed in court records the dialysis conditions there. Four others described dialysis treatments in compassionate release pleas or other court records. The women said their treatment included severe cramping during dialysis, treatment sessions cut short or missed, and poor machine maintenance, such as broken parts, discolored tubing, and machine settings that were set incorrectly. Four women said pipes in the water room would break frequently, and the machines would sit in puddles of water.

    “The truth lies in the consistency of the women’s statements,” said Amber Rabon, a lawyer in one of the women’s cases, who has been a federal criminal defense attorney since 2008.

    Evangelina Perez, Martha Perez’s daughter, said her mother told her she frequently missed dialysis treatments prior to her death in 2023.

    “I can’t even keep track of how many times that occurred where they wouldn’t complete the dialysis on them. And that was an issue, and she would call me, she would call me panicking because she knows how she would get if she skipped one,” Evangelina Perez said. “She would be so short of breath that her stomach would be tight from all the fluid she was retaining.”

    From left, Francisco Perez; Francisco Perez IV, 12; Daniel Perez, 14; Gabriella Perez; Evangelina Perez; Cecilia Perez, 6; and Angelica Perez pose for a portrait down the street from their home in Prescott Valley, Arizona, on Sunday, March 9, 2025.
    From left, Francisco Perez; Francisco Perez IV, 12; Daniel Perez, 14; Gabriella Perez; Evangelina Perez; Cecilia Perez, 6; and Angelica Perez pose for a portrait down the street from their home in Prescott Valley, Arizona, on Sunday, March 9, 2025. Courtney Pedroza for the Marshall Project

    She said her mother would tell staff that something was wrong, but they “said ‘She was fine, she’s fine,’ until there was fluid literally coming out of her belly button,” Perez said.

    Missing a dialysis session is dangerous for patients, said Dr. Rebecca Ahdoot, a kidney specialist at the University of California Irvine. Without rigorous dialysis, toxins can build up, and the person can die.

    Alicia Elliott, who was on dialysis at Carswell for 15 months while incarcerated on drug charges, said in court records and interviews that she was forced to miss appointments or had her treatment cut short multiple times. In late 2022 and twice in early 2023, Elliot emailed Carswell’s associate warden for medical to complain about being taken off dialysis early. In one case, she said staff wanted to leave early because of ice on the roads.

    Sanjuana Garcia-Ramirez started dialysis at Carswell in November 2023. She said she had been on dialysis for two years before incarceration; comparatively, she said treatments at Carswell are less consistent and the machines are poorly managed.

    “I have four kids I have to get back home to, and it frightens me that I might not make it out of here because of the way they run dialysis,” said Garcia-Ramirez, who is serving a six-year sentence on a drug conviction.

    Successful dialysis goes hand-in-hand with proper nutrition plans, said Howard, the former bureau medical director.

    “A patient has to be their own advocate, and they have to be very, very, very much aware of what they need and what they have to do to manage their condition,” Howard said. If they’re not able to do it or they’re not properly educated, he said, “they will not do well on dialysis.”

    But Stephanie Williams, who said she was on dialysis at Carswell for 11 months, said women would start dialysis and get no education on nutrition. Some women did not know that people with kidney problems have to monitor their potassium, sodium, fluid and phosphorus levels, for example, or they risk possibly fatal complications.

    “Them girls, when I said phosphorus, they said, ‘What is phosphorus?’ And [I was] like, ‘What are you doing?’” Williams said.

    She also said in interviews and court records that women were not told how to keep their port clean — or the importance of doing so. Women would shower without covering up their ports and get them wet, which increases the risk for infection, she said.

    “It’s a lack of education. It’s not the girls’ fault. But it’s killing them.”


    While U.S. Renal Care oversees dialysis treatments and a nephrologist — a kidney specialist — visits once a month, patients rely on Carswell staff at all other times for medical needs. Doctors, lawyers and the Bureau of Prisons’ own budget proposal this year questioned whether Carswell has the ability and resources to provide that care.

    Understaffing and a depleted budget have sapped federal prisons of resources over the last few years. In a 2024 report, the Office of the Inspector General identified providing adequate medical care as one of the primary challenges the bureau faces.

    In the bureau’s 2025 budget submission to Congress, the agency lamented its difficulties in hiring and maintaining medical staff. The budget cited a 2016 Office of Inspector General report, which declared recruitment of medical professionals to be “one of the Bureau’s greatest challenges.”

    Carswell is no exception. In 2022, Carswell then-staff union leader Jennifer Howard filed a whistleblower complaint about COVID-19 guidance and staff shortages at the facility. At the time, Howard told the Fort Worth Star-Telegram that staffing levels were “unacceptable for a medical facility.”

    Federal Medical Center Carswell in Fort Worth in a 2020 file photo.
    Federal Medical Center Carswell in Fort Worth in a 2020 file photo. Amanda McCoy Fort Worth Star-Telegram

    Despite understaffing, the bureau may face further cuts. In February, the agency announced it would reduce or eliminate retention pay for correctional officers, a decision that American Federation of Government Employees said would “exacerbate staffing shortages and make working conditions less safe.”

    A former bureau warden and administrator, Jason Terris, questioned Carswell’s ability to care for dialysis patients as part of his declaration cited in a compassionate release case for Feliza Renteria, a 45-year-old dialysis patient at the facility.

    Renteria arrived at Carswell in 2021. But the dialysis treatments have made her sicker, she argued in court records. In an interview, she described excruciating pain during treatment. “I did not experience what a cramp was before I was incarcerated — I did dialysis a year before this and never had cramps,” she said.

    Dialysis patients should not have constant cramping, Ahdoot said. Cramps can be a sign that too much fluid is being pulled out of the body too quickly, she said, and treatment should be adjusted.

    Patients “certainly shouldn’t be on dialysis and suffering,” said Ahdoot, who has been a nephrologist for 12 years. “If you are having crazy cramps all the time, then there is certainly a problem.”

    Carswell’s contract with the Health Science Center says a kidney doctor will be available to patients once a month for up to four hours. Ideally, Ahdoot said, a nephrologist should see patients once a week to ensure the right amount of fluid is being pulled off during dialysis.

    In his declaration for Renteria’s suit, Terris wrote that he did not know if the staff at Carswell could handle the “logistical and care-related challenges” Renteria’s condition presented due to staffing shortages and a lack of resources.

    But those statements are part of the reason U.S. District Judge Anthony Battaglia, in California’s Southern District, denied Renteria’s compassionate release. When he denied the request in a September 2023 hearing, Battaglia said granting her motion could have implications beyond Renteria’s case because of the message it would send about the bureau’s care.

    “I mean, granting relief here, does that mean that every dialysis patient in the Bureau of Prisons should be similarly accommodated because the quality of care is, perhaps, ineffective?” Battaglia said, according to a court transcript. “I’m looking at sort of the greater picture here. Because some of the accounts, from some of the people, is concerning.”

    Last year, the Ninth Court of Appeals denied Renteria’s appeal for compassionate release.


    There is no third-party agency currently monitoring dialysis treatments at Carswell. Multiple outside agencies that used to evaluate the Bureau of Prisons’ medical care no longer do so.

    Carswell’s contract with the Joint Commission, which provided the facility’s accreditation as a healthcare organization, expired in October 2020 and was not renewed, according to the Bureau of Prisons spokesperson. The American Correctional Association ended its audits of the agency in 2023, after the Office of Inspector General found the Bureau of Prisons was “in effect, paying ACA to affirm [the bureau’s] own findings,” and as a result, there was “no real certification or action for improvement.”

    The state of Texas does not monitor Carswell either. Oversight rules are built into Carswell’s contract with the Health Science Center, but neither the Sciences Center nor Carswell have responded to requests for monitoring records.

    According to its contract with the bureau, the Health Science Center is supposed to send quarterly reports about dialysis treatment at Carswell to a bureau administrator. But Health Science Center spokeswoman Paula Cobler said the hospital does not have those records; she said U.S. Renal Care is responsible for them and provides Carswell with copies. Another Health Science Center spokesman, Andy North, said the dialysis reports include “patient-care specific problems experienced during the quarter,” but declined to answer questions about what those problems entailed.

    U.S. Renal Care did not provide those records to The Marshall Project. The bureau has not fulfilled a records request for those quarterly reports.

    The Office of the Inspector General found evidence that the bureau’s contracts are not always monitored adequately. A 2023 audit found the bureau’s contract evaluations were often untimely, incomplete, or for the wrong time period. This may result in the agency not getting the best services, the report noted.

    In 2024, then-President Joe Biden signed the Federal Prison Oversight Act to increase independent inspections of prisons, but Congress has not approved money for the inspections. Deitch, of the Prison and Jail Innovation Lab, said the priority now is for the act to be fully funded “to provide the critical oversight role that is needed.”


    As her fears of dying inside prison grew, Perez filed requests for a reduced sentence or compassionate release five times between 2012 and 2022. A judge had not ruled on her final release request when she died in July 2023.

    Compassionate release is a way to address deficiencies in care for some incarcerated people, but it is seldom granted. Judges look for evidence that a prison can’t provide the necessary treatment, said Marc Stern, the court-appointed monitor for the State of Arizona Department of Corrections. Without that proof, most motions will be denied. Out of the nine dialysis patients at Carswell that The Marshall Project identified, eight filed for sentence reduction or compassionate release since 2022. Seven were denied. In the remaining case, a judge initially denied the request, but reversed the decision and released the woman in 2020, citing “the abominable COVID-19 statistics at FMC Carswell.” The judge said the facility’s inaccurate data suggested the bureau could not be trusted to care for someone with complicated health conditions.

    A photo of Martha Perez is found in a bin of family photos at her family's home in Prescott Valley, Arizona, on Sunday, March 9, 2025.
    A photo of Martha Perez is found in a bin of family photos at her family’s home in Prescott Valley, Arizona, on Sunday, March 9, 2025. Courtney Pedroza for the Marshall Project

    In a compassionate release request for one woman, who asked not to be named due to fear of retaliation, her lawyer wrote that Carswell frequently missed her dialysis treatments, forcing her to go five to six days without. The woman’s former physician wrote a letter in November 2023 in support of her release request, saying that “continued incarceration would be severely detrimental” to her health due to her complex medical issues.

    Williams, the former Carswell patient, described Perez’s deteriorating condition as “the scariest thing I’ve seen.”

    “She was bad off,” said Williams, who was released in November 2023. “The week she died, she said, ‘I need to see a doctor right now.’”

    In the days before Perez’s death, her family said, the bureau did not tell them that her condition had worsened or that she was in the hospital. She was admitted to John Peter Smith Hospital in Fort Worth on July 2, 2023, for low blood pressure after a dialysis treatment, medical records show. Her admission records at the hospital indicated she had had a serious heart attack and, on July 6, she was transferred to Medical City Fort Worth Hospital for surgery.

    Medical staff tried to reverse the damage and stabilize Perez, but on July 7, she lost her pulse. For one hour, staff tried to bring Perez back. A prison guard finally called the family to ask if they wanted them to continue to try to resuscitate Perez. Her daughter said the decision fell to her father as Perez’s next of kin. He told them to stop.

    In a letter to the family, the Bureau of Prisons said Perez died from cardiac arrest; she also had coronary artery disease. Seven months later, Evangelina Perez got her mother’s death certificate from the state of Texas. The cause of death is listed as “pending investigation.”

    Kaley Johnson is a reporter based in Texas. She can be reached at kaleyalyssajohnson@gmail.com.

    This article was published in partnership with The Marshall Project, a nonprofit news organization covering the U.S. criminal justice system. Sign up for their newsletters, and follow them on Instagram, TikTok, Reddit and Facebook.

    This story was originally published December 16, 2025 at 6:00 AM.

    [ad_2]

    Kaley Johnson

    Source link

  • New Hampshire man resumes dialysis after record 271 days living with a pig kidney

    [ad_1]

    WASHINGTON — A New Hampshire man is resuming dialysis after living with a gene-edited pig kidney for a record 271 days, doctors said Monday. His experience is helping researchers in their quest for animal-to-human transplants.

    Tim Andrews, 67, had the organ removed on Oct. 23 because its function was declining, according to Mass General Brigham. In a statement, his transplant team called Andrews “a selfless medical pioneer and an inspiration” to patients with kidney failure.

    Andrews’ experience illustrates lessons researchers have learned with each experiment involving what’s called xenotransplantation. The first attempts using pig organs gene-edited to be more humanlike – two hearts and two kidneys – were short-lived.

    Then researchers began considering patients not nearly as sick as prior recipients for these experiments — and an Alabama woman’s pig kidney lasted 130 days before it had to be removed last spring, the record Andrews surpassed.

    More than 100,000 people, most needing kidneys, are on the U.S. transplant list, and thousands die waiting.

    Andrews, of Concord, New Hampshire, knew his blood type is particularly hard to match and sought an alternative, getting into shape to qualify for Mass General’s xenotransplant pilot study. His doctors said he remains on the transplant list.

    In June, the Mass General team transplanted a pig kidney into another New Hampshire man who continues to fare well. The pilot study is set to conclude with a third pig kidney transplant later this year.

    Two companies, eGenesis and United Therapeutics, are preparing to begin more rigorous clinical trials of pig kidney transplants.

    Surgeons in China also are pursuing this new field, reporting a pig kidney transplant last spring and separately a transplanted pig liver that had to be removed after 38 days.

    ___

    The Associated Press Health and Science Department receives support from the Howard Hughes Medical Institute’s Department of Science Education and the Robert Wood Johnson Foundation. The AP is solely responsible for all content.

    [ad_2]

    Source link

  • Colorado man raising awareness, hope as he waits for second kidney transplant

    [ad_1]

    LITTLETON, Colo. — A Colorado man is raising awareness and hope as he waits for a second kidney transplant.

    Facing polycystic kidney disease, a genetic form of the disease, Rick Mendoza received a kidney transplant from his sister-in-law in 2011. He said it made him feel “fully alive” and allowed him to be present for his daughter’s formative years.

    “She probably didn’t want me on the sidelines as much during her soccer games, but I was there supporting her and cheering her,” he told Denver7.

    Mendoza family

    But just over a decade later, in 2022, Mendoza became sick again.

    “You feel like your energy level, you had no longer the energy to do things,” he explained. “With kidney failure, your red blood cells take away the oxygen that goes throughout your body, so you feel anemic, and then there’s nausea.”

    It turns out his donated kidney was failing “abruptly.” He went back on a transplant wait list, which can take several years on average. He also went back to dialysis treatments, which can take a toll.

    Chronic kidney disease gradually damages the kidneys, making it harder for them to filter waste or excess fluid out of the blood, leading to serious health problems.

    Rick Mendoza

    Mendoza family

    Joseph Garcia is a group regional operations director with DaVita, a Denver-based company with dialysis centers across the country. He said patients typically are treated multiple times a week, “anywhere from three and a half to four-plus hours.”

    “About half of our patients who end up on dialysis services, meaning their kidneys failed, crash into it, meaning they had no idea that their kidneys were at risk,” Garcia told Denver7.

    That underscores findings from the National Kidney Foundation that one in seven U.S. adults has chronic kidney disease, but 90 percent of them don’t realize they have it because symptoms can be mild or non-existent at first.

    Rick Mendoza and his family spread kidney disease awareness at the Denver Kidney Walk.

    Mendoza family

    Rick Mendoza and his family spread kidney disease awareness at the Denver Kidney Walk.

    Mendoza now volunteers with the National Kidney Foundation to raise awareness.

    “I think this time around, I felt that I needed to do something more than just looking out for myself,” he explained. “I think there are others that are less fortunate than me.”

    Those with high blood pressure or diabetes are especially at risk for kidney disease. Garcia and kidney health advocates encourage regular doctor visits, as well as blood or urine exams.

    “I think the biggest thing I would encourage people to do is proactive screenings, proactive conversations,” Garcia told Denver7.

    A healthy diet and exercise, they say, can also promote good kidney health, something Mendoza embodies even while going through dialysis treatments.

    “The next day [after treatment], I feel, you know, that I can do a lot of things, like golf. I work full-time,” he explained.

    Rick Mendoza

    Mendoza family

    Garcia praised Mendoza for his mindset amid the struggles.

    “He’s amazing,” Garcia said. “When you think about his journey with his kidney health and how he just has a positive attitude, he lives a fully active lifestyle, he’s an ambassador and a champion for other kidney care patients. It’s a privilege to work with him.”

    Mendoza is not waiting to live, even as he waits for another donor.

    “I’m hoping that day comes,” he said. “But until then, and after then, I just want to do more, and I feel like I do more with what I have to offer.”

    Denver7 is a proud sponsor of the Denver Kidney Walk. Anchor/reporter Ryan Fish will emcee the event on Sunday, Oct. 5, at Great Lawn Park in Denver.

    ryan image bar.jpg

    Denver7 | Your Voice: Get in touch with Ryan Fish

    Denver7’s Ryan Fish covers stories that have an impact in all of Colorado’s communities, but specializes in covering artificial intelligence, technology, aviation and space. If you’d like to get in touch with Ryan, fill out the form below to send him an email.

    [ad_2]

    Ryan Fish

    Source link

  • Providing peace to people with chronic kidney disease by sailing

    Providing peace to people with chronic kidney disease by sailing

    [ad_1]

    Dialysis and chronic kidney disease patients have an opportunity to find peace, healing and adventure through sailing in Maryland.There’s something about stepping onto a sailboat and being out on the water that brings Vaunita Goodman peace.”The water offers a place to breathe and to relax and let go of your worries,” Goodman said.Goodman said she knows what it’s like to worry, as she was on dialysis for five years before she got a kidney transplant, followed by daily treatments out of her home.”A part of that involves a lot of challenges, depression and anxiety, but the victory of that was that it made me serious about getting outside more, changing my own circumstances, and that’s when I found my way down to the water,” Goodman said. “That curiosity said, ‘If I can do my own dialysis treatments 12 hours a day every day, I can sail a boat.’”Not only did Goodman learn to sail, she now gives others the same experience through her organization, Dialysis to the Docks.”They gain a more holistic perspective of their life that, just because they are on dialysis, does not mean this is the end of their life or the end of their participating in community and outdoor activities,” Goodman said.Several people are jumping at the opportunity to get outdoors and on the water, including Jim Scott, who goes to dialysis three times a week. He has an O-positive blood type and needs a kidney. Alexis Snyder, a two-time heart transplant recipient whose heart disease led to kidney failure, also has an O-positive blood type and also needs a kidney. Aaron Williams, a three-time kidney transplant recipient, has been on and off dialysis for years.All of them gather on one sailboat for a sweet escape from life’s challenges.”It’s a sense of freedom, and it’s a sense of just experiencing life,” Williams said.”It’s so exciting. I like being out here,” Snyder said.”It’s something new. Everyone should try it,” Scott said.The trips are working sailing excursions upon which participants help with the departure, docking, pulling the lines and hoisting the sail. As they sail through the Inner Harbor and along the Patapsco River, pointing out landmarks and pulling lines along the way, Goodman said she hopes they sail into a new level of empowerment, too.”My desire is that they just know that they are not dealing with this by themselves, but they see their bodies differently,” Goodman said.Goodman’s work has earned her one of five Homecoming Hero awards from Baltimore Homecoming, which highlights people who are making a positive impact in Baltimore.Dialysis to the Docks will host its last sailing trip of the year on Oct. 28. It has partnered with Living Classrooms to host “Dialysis to the Docks: Wellness & the Water” at the Frederick Douglass-Isaac Myers Maritime Park. The event will help Dialysis to the Docks raise money to provide more free sailing trips to people with chronic kidney disease.For more information on the event, how you can donate and how you can participate in a sailing trip, click here.

    Dialysis and chronic kidney disease patients have an opportunity to find peace, healing and adventure through sailing in Maryland.

    There’s something about stepping onto a sailboat and being out on the water that brings Vaunita Goodman peace.

    “The water offers a place to breathe and to relax and let go of your worries,” Goodman said.

    Goodman said she knows what it’s like to worry, as she was on dialysis for five years before she got a kidney transplant, followed by daily treatments out of her home.

    “A part of that involves a lot of challenges, depression and anxiety, but the victory of that was that it made me serious about getting outside more, changing my own circumstances, and that’s when I found my way down to the water,” Goodman said. “That curiosity said, ‘If I can do my own dialysis treatments 12 hours a day every day, I can sail a boat.’”

    Not only did Goodman learn to sail, she now gives others the same experience through her organization, Dialysis to the Docks.

    “They gain a more holistic perspective of their life that, just because they are on dialysis, does not mean this is the end of their life or the end of their participating in community and outdoor activities,” Goodman said.

    Several people are jumping at the opportunity to get outdoors and on the water, including Jim Scott, who goes to dialysis three times a week. He has an O-positive blood type and needs a kidney. Alexis Snyder, a two-time heart transplant recipient whose heart disease led to kidney failure, also has an O-positive blood type and also needs a kidney. Aaron Williams, a three-time kidney transplant recipient, has been on and off dialysis for years.

    All of them gather on one sailboat for a sweet escape from life’s challenges.

    “It’s a sense of freedom, and it’s a sense of just experiencing life,” Williams said.

    “It’s so exciting. I like being out here,” Snyder said.

    “It’s something new. Everyone should try it,” Scott said.

    The trips are working sailing excursions upon which participants help with the departure, docking, pulling the lines and hoisting the sail. As they sail through the Inner Harbor and along the Patapsco River, pointing out landmarks and pulling lines along the way, Goodman said she hopes they sail into a new level of empowerment, too.

    “My desire is that they just know that they are not dealing with this by themselves, but they see their bodies differently,” Goodman said.

    Goodman’s work has earned her one of five Homecoming Hero awards from Baltimore Homecoming, which highlights people who are making a positive impact in Baltimore.

    Dialysis to the Docks will host its last sailing trip of the year on Oct. 28. It has partnered with Living Classrooms to host “Dialysis to the Docks: Wellness & the Water” at the Frederick Douglass-Isaac Myers Maritime Park. The event will help Dialysis to the Docks raise money to provide more free sailing trips to people with chronic kidney disease.

    For more information on the event, how you can donate and how you can participate in a sailing trip, click here.

    [ad_2]

    Source link

  • Kyiv hit with heaviest bombardment in months

    Kyiv hit with heaviest bombardment in months

    [ad_1]

    KYIV, Ukraine — The sky was crystal clear as Oksana Femeniuk took her daughter to Ukraine’s largest children’s hospital for routine dialysis.

    Around 10 a.m, air-raid sirens blared. Sixteen-year old Solomiia was undergoing the treatment that required her to sit still for up to five hours and could not be interrupted. Her mother had to flee to the hospital’s basement shelter without her.

    Hurtling toward them at 435 to 497 miles per hour was a Russian Kh-101 cruise missile, according to Ukraine’s security service, the United Nations and open-source investigators. Using painstaking trial and error, Russia has modified the weapon over the last year to defeat Ukraine’s air defense systems by flying at low altitude and hugging terrain, according to military analysts.

    Minutes later the world turned black. Neither the patient nor her mother would remember the moment the missile struck. But they remember the chaos that ensued after regaining consciousness: Femeniuk thought she would choke from the fumes. Solomiia woke to find the ceiling crumpled over her small body.

    In an operating room in the next building, pediatric surgeon Oleh Holubchenko had been preparing to operate on an infant with a congenital facial defect. Covered in shrapnel wounds, he realized that the blast wave had catapulted him to the other side of the operating room.

    The toll of Russia’s heaviest bombardment of Kyiv in almost four months — one of the deadliest of the war — shows the devastating human cost of Russia’s improved targeting tactics.

    The hospital’s director general, Volodymyr Zhovnir, stood at the scene of the explosion, eclipsed by the towering building with shattered windows. No children died, thank God, he said, but they lost a dear colleague, Dr. Svitlana Lukianchuk.

    Lukianchuk was hurrying along the children and parents from the toxicology building, which would later be destroyed, to the shelter. She returned to empty out more rooms. and then, the explosion, Femeniuk remembers.

    Solomiia was born with chronic renal failure, making hemodialysis part of her life.

    After the full-scale invasion, Femeniuk left her three children and husband behind in the small village near Rivne, in western Ukraine, to live in the capital so the girl could access the treatment she needs.

    Leaving her daughter during the air raid was a difficult decision. But the 34-year old mother had to project strength, she said. Her daughter was being brave by staying, knowing she could not interrupt her treatment. Femeniuk could not reveal to her daughter that she was actually terrified.

    As the air-raid siren blared, the girl was on her phone watching videos. Given how long dialysis can take, she tends to get bored.

    She awoke to find the ceiling in front of her eyes and the head doctor tending to her covered in blood and on her knees.

    The girl’s first impulse was to put her hands up to the ceiling to keep tons of concrete and debris from crushing her small body. She was trapped with a few other patients and hospital staff, and they were safely pulled out of the rubble.

    “The first thing I thought about was my mom, if she is alive or not. Then I thought: ‘Am I alive or not?’” she said, her fingers painted with small flowers, fidgeting as she spoke. Mother and daughter recounted their experience from the Kyiv City Children’s Clinical Hospital, where Solomiia was transferred.

    In the shelter, the exit was blocked and the fire blazing outside soon invaded the small space. Femeniuk called her husband, telling him she didn’t know if she would survive and she didn’t know if Solomiia was still alive.

    Eventually, those taking shelter managed to push their way out and to their horror they realized that the very building they had been in, that some of their children had been in, was hit. Femeniuk began picking up pieces of rubble in panic, calling out her daughter’s name. Then she saw the nurse who had been assisting them, covered in blood.

    Solomiia had been evacuated after the blast, the nurse said. She was safe.

    Meanwhile, in the operating room, it took Holubchenko fifteen minutes to realize that he was covered in shrapnel wounds. The doctor was too busy evacuating patients, starting with the 5-month old whose surgery was eventually completed elsewhere.

    “My colleagues and I who were in the operating room received shrapnel wounds to the body, the face, back, arms and legs,” he said. “There are glass windows in the operating room, the doors. All of it was just blown off, all destroyed.”

    In the hospital ward, he looked out to the street from a shattered window.

    “There used to be a wall here,” he said.

    When he went outside and realized the toxicology building had collapsed, his mind reverted to the times he would have consultations with patients there and check-ups. Now half the building was caved in.

    But he didn’t dwell on the thought for long and joined a line of volunteers, health workers and emergency crews removing debris, piece by piece.

    “Everyone wanted to do something,” he said.

    The assault hit seven of the city’s 10 districts. The strike on the Okhmatdyt children’s hospital, where 627 children were being cared for at the time, drew ire from Ukrainian officials and the international community. Two adults were killed, including a female doctor, and 50 were injured.

    Russia denied responsibility for the hospital strike, insisting it doesn’t attack civilian targets in Ukraine despite abundant evidence to the contrary, including AP reporting. Moscow insisted it was a Ukrainian air defense missile that struck the hospital.

    Artem Starosiek, the founder of the Ukainian group Molfar, which analyzes events based on open-source evidence, said there were overwhelming signs of Russia’s culpability. The missile used in the attack bears the characteristics of the Kh-101, he said, pointing to the shape of the body, tail and location of the wings, he said.

    That it was a clear blue day also played an important role, he said. Launching the modified missile during a sunny day is optimal for the weapon’s optoelectronic system to recognize the target correctly, he said.

    “The force of the warhead’s explosion is important; an air-defense missile could not have caused such consequences,” he said.

    [ad_2]

    By SAMYA KULLAB – Associated Press

    Source link

  • Capital Region chef receives kidney transplant

    Capital Region chef receives kidney transplant

    [ad_1]

    ALBANY, N.Y. (NEWS10) — The family of a beloved Capital Region chef and philanthropist shared an update on his health. Yono Purnomo received a kidney from a living donor on Tuesday.

    Purnomo had been on a months-long search for a kidney after being diagnosed with end stage renal failure in 2023. NEWS10’s Trishna Begam interviewed the restauranteur about his health and how dialysis multiple times a day changed his life.

    His surgery took place Tuesday morning at New York City’s Presbyterian Hospital. He and his donor are both recovering. Purnomo’s family said both are doing well, and they thank everyone for their continued support and prayers.

    [ad_2]

    Courtney Ward

    Source link

  • Ardelyx wins long battle for FDA approval of kidney-disease treatment 

    Ardelyx wins long battle for FDA approval of kidney-disease treatment 

    [ad_1]

    Ardelyx Inc.
    ARDX,
    -0.58%

    on Tuesday won its long fight for U.S. regulatory approval of a treatment designed to help patients with chronic kidney disease.

    The biopharma company said late Tuesday that the U.S. Food and Drug Administration approved tenapanor, marketed under the brand name Xphozah, for control of serum phosphorus in patients with chronic kidney disease on dialysis. A high level of phosphorus in the blood is often a sign of kidney damage and can lead to weak bones, joint pain, cardiovascular problems and other issues.    

    The approval concludes an extraordinary comeback for Xphozah. Ardelyx’s application for approval of the treatment was previously rejected by the FDA in July 2021, when the agency said the drug’s effect was “small and of unclear clinical significance.” To preserve cash, Ardelyx a few months later said it would cut its workforce by 65%, but it also pursued multiple appeals of the agency’s decision. An FDA advisory committee voted last November that the benefits of Xphozah outweigh its risks. The agency late last year ultimately granted Ardelyx’s appeal, and the company resubmitted its Xphozah application to the FDA in April. 

    More than 550,000 people in the U.S. have chronic kidney disease and are on maintenance dialysis. The vast majority of them have high phosphorus levels, also called hyperphosphatemia, according to Ardelyx. 

    High phosphorus levels “must be taken care of in these patients, and the current therapies are mostly insufficient in doing so,” Ardelyx CEO Mike Raab told MarketWatch. 

    Chronic kidney disease patients with high phosphorus levels have traditionally been treated with phosphate binders that can soak up phosphorus from food during digestion, but that approach can require patients to swallow a large number of pills. The Xphozah treatment requires two pills a day, “each the size of a Tic Tac,” Raab said. 

    The FDA approved Xphozah as add-on therapy in patients who can’t tolerate or have an inadequate response to phosphate binders, Ardelyx said in a release.

    Xphozah, which will be Ardelyx’s second U.S. product launch, should be available sometime in November, Raab said.

    Ardelyx will present updated data on Xphozah for hyperphosphatemia at an American Society of Nephrology meeting in early November, the company said in a release Monday. 

    Ardelyx shares jumped in late September after Japanese regulators approved tenapanor for hyperphosphatemia in adults with chronic kidney disease on dialysis. 

    Ardelyx shares fell 0.6% on Tuesday and have gained 21% in the year to date, while the S&P 500
    SPX
    has gained 13.9%. 

    [ad_2]

    Source link

  • Domino Donation: A Kidney to Save Two Lives Instead of One

    Domino Donation: A Kidney to Save Two Lives Instead of One

    [ad_1]

    Oct. 18, 2022 On a warm summer day in June, Amy Nadel sat in a waiting room at Johns Hopkins as one of her children was coming out of the operating room and another was preparing go in. And in a similar room in another part of the hospital, another family was sitting through the same thing. They were linked not by coincidence, but by one life-saving thing they were about to trade: kidneys.

    Nadel’s son Jonah Berke had just had one of his kidneys removed, where it was rushed across the hospital in a sterile cooler to be transplanted into an anonymous recipient. At the same time, her daughter Rachael Moskowitz was ready to receive a kidney that had just come from an anonymous donor somewhere else in the hospital. You’d be forgiven for thinking this sort of thing only happens in a Grey’s Anatomy episode. But this dramatic process, called kidney paired donation (KPD), is one of the ways people may receive kidney transplants.

    Nadel’s kids were one pair in this sort of donation. Jonah had decided to donate to benefit his sister Rachael, after she had gone through years of complicated health battles. After untold doctors’ appointments, numerous surgeries, and countless hours worrying for Rachael’s well-being, the whole family arrived at Hopkins with hope and a fully loaded Netflix queue, ready for a new chance at life. 

    Nadel looks back on that tense day with pride. She says everyone thinks their kids are special, but she can’t help but think, “My kids started from below zero, and look where they are.”

    As odd as it may sound, their family was lucky Rachael got her kidney and someone else did too. But kidney paired donations are far from the norm. Most people in kidney failure wait an average of 4 years before they get the call that a donor organ is available. Nearly 5,000 people die each year waiting on that list. But if more people were willing to sign up for KPD, that waiting time may shrink, says David Klassen, MD, the chief medical officer at the United Network for Organ Sharing.

    The first successful kidney transplant took place in 1954, using a live donor’s twin brother. For a while, that was the standard route for donating the organ, as society felt squeamish about using organs from deceased donors. Eventually, around the mid-1960s, new guidelines about brain death from Harvard Medical school allowed donations from the deceased to become commonplace.

    Living donation is also an option, whereby one person donates one of their healthy kidneys (as it’s possible to live a healthy life with just one functioning kidney) to another person. A recently removed kidney can last for an estimated 36 hours outside of the body, if stored and transported correctly, which has allowed for some living kidney donations to happen across state lines.

    After the transplant, the person who received the kidney must be on a type of medication that stops their immune system from attacking the new organ. This is called immunosuppression, and most immunosuppressant drugs come with unpleasant side effects. People who get transplants are particularly susceptible to infections and cancer, among other diseases, since their immune system can’t fight at the level it normally would. But if the drugs work properly and the organ does not get rejected by the body, a donated kidney will usually last about 15 to 20 years.

    For decades, direct living and deceased donation were the only options for people seeking a kidney transplant. But in 1991, doctors in South Korea performed the first known kidney paired donation. They were ahead of the curve, establishing a government-run KPD program within the decade. The United States caught up in 2000, completing the country’s first KPD at Rhode Island Hospital. But the use of this new protocol was neither universal nor speedy. By 2005, there were only 26 KPDs per year in the U.S., according to data from the Organ Procurement and Transplantation Network. 

    The slow uptake was owing to a few issues. First, not many people knew about the option, says Susan Rees, a registered nurse and the chief operating officer for the Alliance for Paired Kidney Donation. So, when someone found out they weren’t a match for the person they intended to be a live donor for, the story ended there. Second, it took a while to standardize the data set. Rees calls KPDs a “team sport,” with the need to establish a matching database, and the requirement for multiple entities across different cities and states to work together to compile and compare their data. The alliance was one of the first nonprofits to compile this data, beginning in their home state of Ohio.

    The third reason the uptake of KPD was slow was legal concerns about the process, says Klassen. Transporting organs across state lines for purposes other than direct donation wasn’t protected by the law at first. This was thought to deter organ traffickers. But in 2007, Congress passed the Charlie Norwood Act, which assured the legality of paired donation in specific medical circumstances.

    So today, KPDs have increased, but they’re still not common. Since 1998, there have been slightly over 10,000 kidney paired donations in the U.S., which is a little over 5% of the total 173,000 living donations. The other 95% of living donors were direct match donations. These are the typical donations you hear about, between siblings, friends, or parents and children.

    Rachael is by no means the typical person you’d expect to need a kidney transplant. At 36 years old, she’s a young mom and a full-time first-grade teacher. But she has a complicated medical history, including a glycogen storage disorder, a history of blood transfusions, a former liver transplant, a premature pregnancy, and long-term use of immunosuppressants. Each of those may have scarred her kidneys over time, leading to renal failure, Rachael was told by her nephrologist.

    That failure meant Rachael had to begin dialysis in April of 2020. Not only had the world shut down due to the pandemic, meaning Rachael had to adapt to online teaching, but she was also caring for her 1-year-old daughter. Even with the support of her husband and family, it was exhausting balancing multiple long dialysis appointments each week with normal life. She quickly opted to switch to peritoneal dialysis, which allowed her to get the procedure at home each night instead.

    Though this was an improvement, she says it wasn’t much of a way to live. The logistics were difficult, she had very low energy, and it was getting in the way of her spending valuable time with her daughter. So, though she’s grateful for the machine that kept her alive, “it was like I missed out on life for 2 years,” she says of that time.

    This is consistent with what providers see too. Dialysis is a treatment, but it’s not a replacement for a functioning kidney, Rees says. Even after the procedure, there’s only a brief window of relief. Rees says that the next day, the patients are exhausted. And because of the logistical difficulties and fatigue, she’s even seen people lose their jobs and go through financial crises. 

    While she was going through dialysis, and on a waiting list for a kidney, many people in Rachael’s life signed up to see if they were a match. One by one, they discovered no one was. There are many reasons someone may not be a match for organ donations. But there are a few things that make a person develop more pan reactive antibodies, which make it harder to match them. These include prior blood transfusions, pregnancy, and previous transplant. Rachael had had all three, making her what Rees calls a highly sensitized patient.

    Even with all those compounding issues, what would’ve taken Rachael untold years was solved in mere months, when Jonah volunteered to enter the KPD donor pool. Here’s how that pool works.

    Think of those memory matching games you used to play as a kid. The database serves as the memory storage, the proxy for you. All the cards start flipped over, with unknown donor profiles.

    You start with one card, person 1 (in this case, Rachael) who needs a kidney. Person 1 is a pink circle. You then flip over a second card, person 2 (in this case, Jonah) who is willing to donate a kidney. But person 2 is a purple triangle.

    No match. So, we pull another card. Person 3 turns out to be another person who needs a kidney. They’re a purple triangle, a match for Jonah. And when we flip the accompanying card, we find person 4, a pink circle, a willing donor matched to Rachael. Hurray, matching pairs!

    Because of the database, person 1 can get a kidney from person 4 and person 3 can get a kidney from person 2. This chain can continue on and on, depending on how many people match. There have been chains up to 10 pairs long. 

    This may sound like a big logistical nightmare. You may be thinking, what about organ donation from deceased people? And of course, registering to be an organ donor is an important piece of this puzzle. 

    Both Klassen and Rees and the Berke/Nadel family urge people to sign up to be an organ donor. But only about 2% of people who are registered donors will end up being able to donate their organs, Klassen says. To be a valid option, someone must die while on life support in the hospital. Otherwise, they are pretty much only able to donate tissue. That leaves us at the starting point set out earlier. A person in kidney failure has an average of 4  years waiting time, and each year, that person has a 15%-20% chance of dying while waiting, Rees explains.

    But adding in KPD makes the situation less dire. That is, if there is the database to support it and enough people are willing to sign up. At this point, there are separate databases for people to take part in KPD across the country and the world. The United Network for Organ Sharing and the Alliance for Paired Kidney Donation have some of the bigger aggregates, but they are far from having all the data. Rees says standardization would help.

    The more people in the database, the more possibilities there are for people to match. Though some people may be uncomfortable not directly donating to the person they intended to, Rees says the people she’s observed feel pleased anyway.

    In Jonah’s case of wanting to donate to his sister, this served as only a minor bump in the road. 

    “Well really, it’s like saving two lives with your kidney, not just one,” he says.

    For Rachael, everything has changed since the donation; even her skin tone, requiring her to  buy a new color of foundation. She realizes now how bad she felt each day while on dialysis. But above all, she’s grateful for the sacrifices Jonah and the anonymous donor made, and she’s grateful to be able to rejoin the living world.

    And as for Jonah, life has returned to normal. His recovery was speedy, and he’s back doing the job he loves with his typical cheerful attitude. He’s doing so well, in fact, that if he could go under the knife again, he said he would. He would do anything for his sister. “If I could donate my other kidney, I would do it. I wouldn’t even think about it. You know, if I could donate my heart, I would give my heart up.”

    [ad_2]

    Source link