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Tag: developmental disabilities

  • ‘291 pages of changes’: Advocates for developmentally, intellectually delayed individuals speak out in Annapolis – WTOP News

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    Advocates for developmentally and intellectually delayed individuals voiced concerns about changes that will affect caring for those individuals during a public hearing in Annapolis

    Advocates for developmentally and intellectually delayed individuals voiced concerns about changes in Maryland that will affect the care provided to those individuals during a public hearing in Annapolis on Tuesday.

    Maryland Sen. J.B. Jennings sponsored a bill that would require the Deputy Secretary for Developmental Disabilities to provide a 90-day public comment period before changes could be made to policy, the Self-Directed Services Manual or waivers.

    This follows changes the administration announced in a newsletter on Feb. 4 that would affect the nearly 4,000 people who receive self-directed services.

    Self-directed services are an alternative to traditional services for those who are developmentally and intellectually delayed.

    Instead of going to a center or attend a daily program, these individuals have a team they meet with to plan the best course of action so they can improve their lives. The administration provides them with a day-to-day administrator, which, in many cases, may be their parent or a sibling.

    Anne Vlearbone, co-leader of Concerned Citizens of Self-Directed Maryland, told WTOP that earlier this month she saw a tiny link at the bottom of the administration’s newsletter that said “policy changes.”

    “It’s 291 pages of changes that went into effect upon publication,” Vlearbone said. “Drastic changes.”

    According to Vlearbone, they include changes to billing, who qualifies to work, how you qualify to work and documentation.

    “I’m 60 years old. My son is 35. He’s perpetual movement. I don’t have time to document every time he goes to the bathroom and every time he got up to sneeze or wipe his nose,” Vlearbone said. “It’s physically impossible.”

    Vlearbone said the self-directed program has been wonderful for her son, Michael.

    “My son, because of his history of behavior problems, would not be accepted into most of the traditional agencies,” Vlearbone said.

    Not only does Vlearbone credit self-directed services for helping her son learn job skills at a farm, but she also said that, along with the time he spends volunteering at a pickleball facility, he has a meaningful life.

    “One of the joys of this program is he’s in the community daily. He’s a meaningful member of the community,” Vlearbone said.

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    © 2026 WTOP. All Rights Reserved. This website is not intended for users located within the European Economic Area.

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    Jimmy Alexander

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  • Clark Co Developmental Disabilities Advisory Board Seeks Plan Input – KXL

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    VANCOUVER, WA – The Clark County Developmental Disabilities Advisory Board is in the process of developing priorities to included in the 2026-2030 Developmental Disabilities Comprehensive Plan, and the group is looking for ideas.  Specifically, the DDAB is looking for input from people with intellectual and/or developmental disabilities, their family members, provider organizations, educators, and others with an interest in supporting people with disabilities.

    Clark County Community Services’ staff developed an online survey to collect the input, but there is also a paper version.  They say it will take less than 10 minutes to complete and is available in English, Spanish, Russian, Ukrainian, Chuukese and Vietnamese.

    Officials say the feedback is used to understand available resources, and which services are needed in the community.  Responses are confidential and anonymous.

    The survey is available online at https://clark.wa.gov/community-services/dd-comprehensive-plan. To request a paper copy or ask questions, email [email protected] or call Trish Buescher at 564-397-7826.

    Surveys will be collected through October 31st.

    More about:

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    Tim Lantz

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  • Nassau BOCES, EPIC LI launch training for support workers | Long Island Business News

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    In Garden City, Nassau BOCES has partnered with EPIC Long Island to launch a new training program this fall for direct support professionals who assist individuals with intellectual and .

    Direct support professionals assist with a wide range of services, including transportation, personal care, individualized support, meal preparation and household tasks. These professionals are retained to foster independence and improve the overall quality of life for those they support.

    The new training program will launch this fall at the Nassau BOCES Adult Education Career and Technical Education Center in Westbury and will be open to adults age 18 and older. In the course, enrollees will gain insights and job opportunities from EPIC (Extraordinary People In Care) Long Island, which is part of the EPIC Family of Human Service Agencies.

    “With direct support in healthcare being one of the biggest industries on Long Island, there is a need for these professionals,” Brad Slepian, Nassau BOCES Adult Education supervisor, said in a news release about the partnership.

    “We are excited to partner with EPIC LI to bring this training to our students,” Slepian added. “These professionals will ultimately assist people in realizing their full potential and help them become integrated and engaged in their community.”

    The training program will be part of Nassau BOCES’ career and technical education curriculum, which offers job training and certification for adults seeking to enter or move forward in the workforce. EPIC Long Island operates a day habilitation program in East Meadow along with 18 group homes throughout Nassau and Suffolk counties and provides clinical services for children and adults who have developmental disabilities.

    The course will provide the skills and certification required for employment in the direct support field.

    The three-month program includes instruction on an established code of ethics, person-centered practices, colleague support and stress management, along with care techniques. The program will combine classroom instruction with on-the-job training.

    Nassau BOCES will supply instructors to lead the course, and EPIC staff will contribute to specific topics. For example, a representative from EPIC’s Quality Supports Department will lead a session on incident management and reporting.

    The program is designed to provide graduates with job skills in the direct support field. Students who complete the program will be interviewed for positions at EPIC and may also apply to other providers certified by the New York State Office for People With Developmental Disabilities. Nassau BOCES will continue to offer support during the employment transition.

    The program comes at a time when Long Island faces an increased need for direct support professionals, according to program organizers.

    “The direct support professional role is the backbone of quality care for people with disabilities,” said Lisa Burch, president and CEO of the EPIC Family of Human Service Agencies, said in the news release.

    “We are proud to partner with Nassau BOCES to offer this training program, strengthening Long Island’s workforce and addressing the urgent need for skilled [direct support professionals] in our region,” she added. “Graduates will leave with the certification, training and skills to support the independence and quality of life of individuals with intellectual and developmental disabilities.”

     

     

     

     


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    Adina Genn

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  • Alabama death row inmate cannot be executed due to intellectual disability, appeals court rules | CNN

    Alabama death row inmate cannot be executed due to intellectual disability, appeals court rules | CNN

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    CNN
     — 

    An appeals court has ruled the state of Alabama cannot execute man with an intellectual disability who was sentenced to death for murdering a man in 1997, upholding a lower court’s decision.

    The US Eleventh Court of Appeals’ decision on Friday means that 53-year-old Joseph Clifton Smith cannot be executed unless the decision is overturned by the US Supreme Court.

    In a statement released after the appeals court decision, Amanda Priest, communications director for Alabama Attorney General Steve Marshall, said, “Smith’s IQ scores have consistently placed his IQ above that of someone who is intellectually disabled. The Attorney General thinks his death sentence was both just and constitutional.”

    “The Attorney General disagrees with the Eleventh Circuit’s ruling, and will seek review from the United States Supreme Court,” the statement concluded

    In 2021, a US District Court judge ruled that due to his intellectual disability, Smith could not “constitutionally be executed,” and vacated his death sentence.

    The judge referenced the district court’s finding that Smith’s “intellectual and adaptive functioning issues clearly arose before he was 18 years of age,” according to the 2021 appeals court ruling, which agreed with the lower court.

    Smith confessed to murdering Durk Van Dam, whose body was found “in an isolated area near his pick-up truck” in Mobile County in southwest Alabama, according to the court’s Friday ruling. Smith “offered two conflicting versions of the crime,” the ruling says – first admitting he watched Van Dam’s murder and then saying he participated but didn’t intend to kill the man.

    The case went to trial and the jury found Smith guilty, the order states. During his sentencing proceedings, Smith’s mother and sister testified that his father was “an abusive alcoholic,” according to the ruling.

    Smith had struggled in school since as early as the first grade, the order says, which led to his teacher labeling him as an “underachiever” before he underwent an “intellectual evaluation,” which gave him an IQ score of 75, the court said. When he was in fourth grade, Smith was tested again and placed in a learning-disability class – at the same time as his parents were going through a divorce, the court said.

    “After that placement, Smith developed an unpredictable temper and often fought with classmates. His behavior became so troublesome that his school placed him in an ‘emotionally conflicted classroom,’” the ruling states.

    Smith then failed the seventh and eighth grades before dropping out of school entirely, the ruling says, and he then spent “much of the next fifteen years in prison” for burglary and receiving stolen property.

    One of the witnesses in Smith’s evidentiary hearing held by the district court to determine whether he has an intellectual disability was Dr. Daniel Reschly, a certified school psychologist, the ruling says.

    The court ultimately determined that Smith “has significant deficits in social/interpersonal skills, self-direction, independent home living, and functional academics,” the ruling says.

    In its conclusion, the appeals court wrote: “We hold that the district court did not clearly err in finding that Smith is intellectually disabled and, as a result, that his sentence violates the Eighth Amendment. Accordingly, we affirm the district court’s judgment vacating Smith’s death sentence.”

    “This case is an example of why process is so important in habeas cases and why we should not rush to enforce death sentences—the only form of punishment that can’t be undone,” the office of Smith’s federal public defender said in a statement after the appeals court decision.

    “Originally, this same District Court denied Mr. Smith the opportunity to be heard, and it was an Eleventh Circuit decision that allowed a hearing that created this avenue for relief,” the statement said.

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  • Why eye contact is rare among people with autism

    Why eye contact is rare among people with autism

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    Newswise — New Haven, Conn. — A hallmark of autism spectrum disorder, ASD, is the reluctance to make eye contact with others in natural conditions. Although eye contact is a critically important part of everyday interactions, scientists have been limited in studying the neurological basis of live social interaction with eye-contact in ASD because of the inability to image the brains of two people simultaneously.

    However, using an innovative technology that enables imaging of two individuals during live and natural conditions, Yale researchers have identified specific brain areas in the dorsal parietal region of the brain associated with the social symptomatology of autism. The study, published Nov. 9 in the journal PLOS ONE, finds that these neural responses to live face and eye-contact may provide a biomarker for the diagnosis of ASD as well as provide a test of the efficacy of treatments for autism.

    “Our brains are hungry for information about other people, and we need to understand how these social mechanisms operate in the context of a real and interactive world in both typically developed individuals as well as individuals with ASD,” said co-corresponding author Joy Hirsch, Elizabeth Mears and House Jameson Professor of Psychiatry, Comparative Medicine, and of Neuroscience at Yale.

    The Yale team, led by Hirsch and James McPartland, Harris Professor at the Yale Child Study Center, analyzed brain activity during brief social interactions between pairs of adults — each including a typical participant and one with ASD — using functional near-infrared spectroscopy, a non-invasive optical neuroimaging method. Both participants were fitted with caps with many sensors that emitted light into the brain and also recorded changes in light signals with information about brain activity during face gaze and eye-to-eye contact.

    The investigators found that during eye contact, participants with ASD had significantly reduced activity in a brain region called the dorsal parietal cortex compared to those without ASD.  Further, the more severe the overall social symptoms of ASD as measured by ADOS (Autism Diagnostic Observation Schedule, 2nd Edition) scores, the less activity was observed in this brain region. Neural activity in these regions was synchronous between typical participants during real eye-to-eye contact but not during gaze at a video face. This typical increase in neural coupling was not observed in ASD, and is consistent with the difficulties in social interactions.

    “We now not only have a better understanding of the neurobiology of autism and social differences, but also of the underlying neural mechanisms that drive typical social connections,” Hirsch said.

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    Yale University

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  • Michigan family of 4 who went missing for a week has been found | CNN

    Michigan family of 4 who went missing for a week has been found | CNN

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    CNN
     — 

    A family of four that “unexpectedly left their home” in Fremont, Michigan and went missing for nearly a week were located by authorities on Sunday.

    Anthony Cirigliano, 51, and Suzette Cirigliano, 51, along with their two sons Brandon, 19, and Noah, 15, who both have autism, were found in Wisconsin, Fremont Police said.

    The family had not been heard from since October 16, and the couple and their sons were last seen on Monday at a gas station nearly five hours north of their home. Surveillance footage showed the family “purchasing fuel and food,” police said earlier.

    Fremont Police Chief Tim Rodwell said Friday that the family left Suzette’s mother in the home alone. She was later found by a neighbor and is now being looked after by other family members, Rodwell said.

    Fermont Police also received a call from the father, Anthony Cirigliano, that raised concern about the family’s welfare.

    In the recording of the 911 call obtained by CNN, made just after midnight on October 16, Cirigliano said he needed someone from the Fremont Police Department immediately.

    “I need some police protection immediately,” Cirigliano can be heard telling the 911 operator. “It is of vital national interest. It is related to September 11th, and people want to erase me from the face of the Earth.”

    When asked by the 911 operator if he had any weapons, Cirigliano said he had none and added that everyone was okay.

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