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  • Long Island Group Focuses on Bias in Healthcare to Improve Patient Outcomes

    Long Island Group Focuses on Bias in Healthcare to Improve Patient Outcomes

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    Raising awareness about implicit racial bias and unequal treatment.

    Press Release



    updated: Oct 20, 2017

    Pulse Center for Patient Safety Education & Advocacy (formerly PULSE of NY), a community-based grassroots patient safety organization, has been addressing racial disparities in healthcare across Long Island and New York. And they do exist: according to healthcare accrediting organization The Joint Commission, “There is extensive evidence and research that finds unconscious biases can lead to differential treatment of patients by race, gender, weight, age, language, income and insurance status.”

    Founded in 1996, Pulse began listening to and sharing patients’ stories of obstacles to safe care following the founder’s year-long training in patient safety through the National Patient Safety Foundation/American Hospital Association.

    We all have biases. If we acknowledge that, we can address it.

    Ilene Corina, President, PULSE Center for Patient Safety Education & Advocacy

    Pulse founder and president Ilene Corina found unequal treatment of people belonging to a wide range of groups — treatment that affected outcomes and was an obstacle to “patient-centered care.” Today, Pulse has several programs that seek to remove those obstacles.

    The Healthcare Equality Project

    The Healthcare Equality Project gives patients an outlet to discuss some of the challenges that may be unique to the group they represent. People with HIV/AIDS found that the stigma was a heavy, stressful burden, and people who have lupus often are misdiagnosed. Those who are disabled, transgender, or Hispanic are also affected. Pulse finds the problem and addresses it using the information shared by the people representing each group.

    Perceptions about race are also important. Pulse’s ASK For Your Life Campaign was developed to raise awareness about implicit racial bias and unequal treatment, which has been studied and confirmed in public health research for decades. It creates and distributes workshops, videos, brochures and handouts to educate the Black community, patients, and families of patients, about the steps they can take to advocate for themselves and partner with their healthcare providers for better outcomes.

    100,000 lives per year lost

    “We all have biases,” explains Pulse CPSEA’s Ilene Corina. “If we acknowledge that, we can address it.” Dr. Leslie Farrington, a retired African-American OB/GYN from Freeport, Long Island and board chair of Pulse, started the ASK For Your Life Campaign in 2016. Farrington says, “I always knew there were racial disparities, but it wasn’t until I began studying the public health literature that I recognized the magnitude of the problem — 100,000 lives per year lost due to inequality.”

    There is a team of volunteers who are traveling Long Island to hold workshops empowering people of color to be active partners in their care. They are available to speak to groups about disparities in care and how all patients can address discrimination in healthcare settings. To contact the ASK for Your Life campaign or to request a workshop or become a volunteer, please contact: 516-579-4711 or icorina@pulsecenterforpatientsafety.org.

    This program is made possible with a grant from the Long Island Unitarian Universalist Fund.

    Source: Pulse Center for Patient Safety Education & Advocacy

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  • Pulse Center for Patient Safety Marks First Anniversary of Orlando Nightclub Shootings With Art, Film and Memorial

    Pulse Center for Patient Safety Marks First Anniversary of Orlando Nightclub Shootings With Art, Film and Memorial

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    Press Release



    updated: Jun 14, 2017

    On the evening of June 12, 2017 — one year since the worst mass shooting in American history — Pulse Center for Patient Safety Education and Advocacy hosted an event that remembered and honored the people who were killed that night, while providing valuable insights into the well-prepared medical system and people who saved so many who were grievously injured.

    “Patient safety isn’t only about what goes wrong in healthcare; it’s about what goes right, too,” were the sentiments of Ilene Corina, President of Pulse CPSEA as she introduced a film, “ When Tragedy Strikes, Will You Be Prepared? Insights and Stories from Orlando Health at the 28th National IHI Patient Safety Conference.”

    “Patient safety isn’t only about what goes wrong in healthcare; it’s about what goes right, too.”

    Ilene Corina, President, PULSE Center for Patient Safety Education & Advocacy

    Corina was a guest of the Institute of Health Conference in December and was impacted by the film of five hospital workers sharing their experiences in treating the unexpected rush of injured patients following the tragic events at the Pulse Nightclub in Orlando Florida in the early morning hours of June 12, 2016. The rush of injured came in fast and furious — “36 in 36 minutes” as they explained in the video, and many more after that.

    The evening at the South Nassau Unitarian Universalist Congregation in Freeport began with an art show by Dr. Nichelle Rivers depicting the Stolen Lives Project, which was created to raise awareness and educate the community about the pervasive violence and lack of inclusion towards transgender and gender non-conforming individuals. 

    At the start of the program, the Druumatics, a local drumming group in the West African tradition, began a heartbeat that softly accompanied the entire program.

    The deeply moving film, which emphasized how careful advance planning and countless hours of drills enabled staff at Orlando Health to deal with an unprecedented situation and save dozens of lives, was followed by a ceremony during which audience members read the names and the ages of those murdered, and lit candles in their memory.

    The evening ended with the poem Don’t Stand By My Grave and Weep, read in both Spanish and English to remember that the evening had been a Latin night at the Pulse nightclub.

    At the end of the evening, the heartbeat grew louder until it finally stopped.

    For more information about the Pulse Center for Patient Safety Education & Advocacy, visit www.pulsecenterforpatientsafetry.org. Now preparing programs for the fall; call 516.579.4711.

    Source: Pulse Center for Patient Safety Education & Advocacy

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