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Tag: aphasia

  • ‘She’s a miracle’: How a co-worker turned caregiver is transforming a Virginia woman’s life – WTOP News

    After a devastating car accident left Kitti Tong in a coma, her colleague Regina Richardson stepped in as caregiver and friend. Over the course of seven years, their bond helped Tong overcome several health and mental challenges.

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    How a co-worker turned caregiver is transforming a Virginia woman’s life

    Kitti Tong and Regina Richardson didn’t know each other very well before the incident that changed Tong’s life.

    They were co-workers at a hotel corporation in Maryland and bonded over their early morning arrivals and late night departures. They were both serious and eager to get their work done and make an impression.

    But on Nov. 12, 2018, a car hit Tong in a Rockville crosswalk while she was on the way home from work. Her employee badge flew off after the crash.

    The hospital needed a next of kin to call. Tong’s mother had passed away years earlier, so the hospital called the company’s vice president. He and Richardson rushed there.

    While their boss stood at a desk asking for Tong’s room, Richardson busted through the ICU doors.

    “For a while, it was very touch and go where we didn’t know what the outcome would be, but I knew what a fighter she was,” Richardson told WTOP.

    That was the start of a now yearslong relationship, during which Richardson has helped Tong recover from several brain surgeries, navigate physical and occupational therapy and find the right words when she can’t.

    Tong has aphasia, which leaves her sometimes struggling to understand others or have difficulty speaking herself.

    With help from the MedStar National Rehabilitation Hospital, and Richardson’s care, Tong has hobbies and socializes with friends, capitalizing on a second chance at life.

    “She’s a miracle,” Richardson said. “Just through and through.”

    Immediately after the crash, Tong spent a month in a coma on life support. Every day she was there, Richardson visited.

    When it came time for Tong to be discharged, “there was no place else that she needed to be, except here, because I knew we could tackle it together,” Richardson said.

    Tong’s new reality took a toll. She became depressed, but determined with Richardson’s help.

    On some days, that meant reading Post-it notes on different objects around Richardson’s home. It meant learning how to get in and out of a car and up and down the stairs safely.

    They sang Christmas songs in July, “because that was able to be triggered earlier,” Richardson said. And they often communicated through pictures.

    In case Tong ever got lost, Richardson made sure she knew she lived near the Pentagon.

    After her initial five-month hospital stay, it took Tong a year to learn to walk again, and even longer to start speaking. At first, she started with short sentences.

    “Regina is an angel,” Tong said. “She helped me a lot to my journey. The OT, PT, the physical is fine, but my mental is not fine. My mental state feel like my suicide, but Regina helped me through a lot.”

    While they watch TV together and each have separate daily responsibilities, Richardson sometimes finds herself staring at the ceiling. It’s one of the few ways she can always be listening to be sure Tong is safe but also have alone time.

    It’s the approach Richardson took after Tong had a seizure in the shower. She moved quickly to protect Tong’s head and get her out.

    Sara Cappello, a senior physical therapist at MedStar National Rehabilitation Hospital, said when patients “don’t have a bond like Regina had for Kitti, it’s so hard for patients who are going through a hard time like this to dig deep and find that internal motivation, because so much is happening to them.”

    The outcome, Cappello said, is “a miracle, but it also just goes to show how strong she is.”

    Tong has a poster with photos at various stages of her recovery, and a notebook with words she once jotted down. On the one year anniversary of the crash, she visited the hospital, offering the staff a glimpse at the impact of their work.

    On Wednesday night, the seven-year anniversary, which always falls during National Family Caregivers Month, she celebrated with dinner.

    “She is my caregiver, but she’s my sister,” Tong said.

    “There’s nothing more important than caregiving that I’ve done in my life,” Richardson said.

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    Scott Gelman

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  • Wendy Williams Has Dementia & Aphasia, Her Medical Team Confirms | The YBF

    Wendy Williams Has Dementia & Aphasia, Her Medical Team Confirms | The YBF

    Wendy Williams’ health has been a topic of conversation for years now, and fans have become increasingly concerned the more the talk show legend has withdrawn from the public eye. “What happened to Wendy Williams?” has been one of the most asked questions these past few years. Now, her medical team confirms Wendy has been diagnosed with dementia and progressive aphasia.

    The radio and tv personality, who mastered both in her career, has been openly fighting for her health for years. During her 12-year run as the host of “The Wendy Williams Show,” she revealed her battle with Graves disease, lymphedema, and often discussed how she overcame drug & alcohol addiction.

    The 59-year-old’s sister, Wanda, said just this week about Wendy’s addiction issues:

    “There were points during the past year when everyone in this family wondered whether that call [that she was dead] was going to come in the middle of the night,” Wendy’s sister, Wanda, 65, tells PEOPLE exclusively in this week’s cover story. “Everybody in this family sat on pins and needles every single night with their cell phones right next to the bed.”

    But in the last few years of the show’s run, fans became concerned with her on-air memory lapses, erratic behavior and even her fainting on live TV in 2019.

    While people often to explain away much of the behavior as stress induced due to her wild divorce from husbandger Kevin Hunter, it became clear severe health issues were also to blame. But it seems alcoholism, according to her sister Wanda, was also to blame.

    During Williams’ visits to her family in Florida, Wanda says they kept a strict “anti-alcohol” policy, so she “started to push everybody away,” including her son, Kevin Hunter Jr., 23.

    “Wendy is right when she says, ‘Wanda doesn’t want me to drink,’” Wanda says. “It wasn’t so much, ‘I don’t want you to drink because drinking is bad,’ but drinking for you is not good.”

    For a long time, sources say Williams struggled with drinking behind the scenes of The Wendy Williams Show, which she first started hosting in 2008. “She would be drunk on air,” says a show source. “Slowly, we started being like, ‘What’s going on with her?’”

    Now, Wendy Williams’ medical team has issued a statement on her health, which they hope will stop the “gossip” surrounding her well-being. She has been diagnosed with aphasia, which Bruce Willis was also recently diagnosed with, and dementia.

    The statement reads, “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD).”

    The team also confirms they were hired by Wendy herself saying, “Wendy would not have received confirmation of these diagnoses were it not for the diligence of her current care team, who she chose, and the extraordinary work of the specialists at Weill Cornell Medicine.”

    They added, “Receiving a diagnosis has enabled Wendy to receive the medical care she requires.

    The statement wraps up, “Wendy is still able to do many things for herself. Most importantly she maintains her trademark sense of humor and is receiving the care she requires to make sure she is protected and that her needs are addressed. She is appreciative of the many kind thoughts and good wishes being sent her way.”

    Wendy’s health and behavior has been a MAJOR topic of gossip not only with fans, but with her own family members and ex-husband sometimes stirring the pot.

    Her brother has often gone on Live to call out Wendy for putting on a front. He specifically called out Wendy about her relationship with their parents, and accusing her of not even showing up when their mother – whom she as really close to and often appeared on “Wendy” – passed away.

    Her son, Kevin Jr., has been in the headlines for allegedly stealing his mother’s money and getting evicted from the Miami apartment she got for him.

    Her new Where Is Wendy Williams? documentary trailer has tongues wagging even more as it’s the first time Wendy herself has tackled the gossip and rumors head-on. She lets down the “everything is perfect” guard she’s protected her image with for years.

    https://www.youtube.com/watch?v=OjJDhf5ll70

    The timing of this statement on her health isn’t lost on us though. This 2-night documentary premieres on Lifetime this weekend, February 24th and 25th.

    Still, the doc appears to be something Wendy felt she needed to do. She originally planned to launch a podcast after her talk show officially ended in 2022, but it evolved into this eye-opening doc instead.

    In the trailer and subsequent sneak peek, we see her manager and jeweler trying to keep her away from the alcohol bottles while she lashes out at them. We see her show her true self, without the makeup and wigs, in a frail and vulnerable state. We see her celebrity friends like Blac Chyna paying her a visit to check on her. We see Wendy like never before. But it’s clear this is what Wendy wanted to do.

    Now that Wendy has a diagnosis, we sincerely hope the healing and proper medical services can begin. The legend deserves that.

    Photo: Kathy Hutchins/Shutterstock.com

    The YBF

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  • Wendy Williams diagnosed with rare form of dementia, speech disorder – National | Globalnews.ca

    Wendy Williams diagnosed with rare form of dementia, speech disorder – National | Globalnews.ca

    Wendy Williams has revealed that she is facing a rare form of dementia and a disorder that affects communication.

    Williams, 60, was diagnosed with primary progressive aphasia and frontotemporal dementia (FTD) in 2023 after undergoing “a battery of medical tests,” according to a press release made on behalf of the former talk show host, aiming to correct “inaccurate and hurtful rumors about her health.”

    “Over the past few years, questions have been raised at times about Wendy’s ability to process information and many have speculated about Wendy’s condition, particularly when she began to lose words, act erratically at times, and have difficulty understanding financial transactions,” the statement reads.

    FTD is an umbrella term for a group of disorders that most often affect the parts of the brain associated with personality and behaviour, according to the Alzheimer Society of Canada. It can also cause difficulties with speech and movement, as well as memory loss.

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    Aphasia is referred to as a “language problem” by the Canadian Aphasia Institute, which states it “most dramatically affects conversational interaction (talking and understanding), as well as the ability to read and write.”

    Bruce Willis is another high-profile celebrity who has been diagnosed with FTD and aphasia. Willis announced he was quitting acting in 2022, and a year later, his family made a statement that the actor’s condition had worsened and he was also experiencing FTD.


    Click to play video: 'Bruce Willis diagnosed with dementia 1 year after battling with aphasia'


    Bruce Willis diagnosed with dementia 1 year after battling with aphasia


    The update on Williams’ health comes two years after she cancelled her hit talk show The Wendy Williams Show, which ran for 14 years. At the time, Williams was open that she had been diagnosed with Graves’ disease, an autoimmune disorder that affects the thyroid and can cause bulging eyes, excessive sweating and muscle weakness, according to the Thyroid Foundation of Canada.

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    The statement on Williams’ behalf acknowledged that her health issues “have already presented significant hurdles in Wendy’s life.”


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    “The decision to share this news was difficult and made after careful consideration, not only to advocate for understanding and compassion for Wendy, but to raise awareness about aphasia and frontotemporal dementia and support the thousands of others facing similar circumstances,” it reads.

    “Unfortunately, many individuals diagnosed with aphasia and frontotemporal dementia face stigma and misunderstanding, particularly when they begin to exhibit behavioral changes but have not yet received a diagnosis.”

    Approximately five to 10 per cent of all dementia cases are FTD, according to the Alzheimer Society of Canada, but it makes up about 20 per cent of all young-onset dementia diagnosed in those under 65. There is also no known cure and no effective way to slow the progression of FTD.

    Cathy Barrick, chief executive officer at the Alzheimer Society of Ontario, told Global News last year that FTD “primarily attacks the frontal temporal lobe … that governs your behaviour and judgment.”

    “So sometimes the symptoms associated with it can be quite disturbing both to the person who is living with it and the people around them.”


    Click to play video: 'Health Matters: What is frontotemporal dementia?'


    Health Matters: What is frontotemporal dementia?


    Barrick said it’s important for people to be aware of FTD and be more understanding of those who have it.

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    “People who are in the early stages actually can be still very productive members of society… We don’t want them to have to withdraw as they start to show symptoms and have some struggles,” Barrick said.

    “Maybe if employers and family members just understood people’s limitations and that maybe they may have days that are better than others, people can still really actively participate and contribute. And so overcoming that stigma is really, really important.”

    Williams is “still able to do many things for herself,” according to the update. “Most importantly she maintains her trademark sense of humor and is receiving the care she requires to make sure she is protected and that her needs are addressed.”

    A new Lifetime documentary titled Where is Wendy Williams? is due to air on Saturday.

    According to People, crews started filming in August 2022 and were set to document Williams’ comeback and she prepared to launch a new podcast.

    But things took a turn as Williams’ serious health issues became more clear.

    “We’ve all seen the images over the last few months — and, really, few years — of what has seemed like a spiral for my aunt,” Williams’ niece Alex Finnie told People. “It was shocking and heartbreaking to see her in this state.”

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    The documentary crews stopped filming in April 2023 as the former host was admitted to a facility to treat “cognitive issues.”

    &copy 2024 Global News, a division of Corus Entertainment Inc.

    Kathryn Mannie

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  • Bruce Willis’ Wife Has Heart-Wrenching Response When Asked If He Understands His Diagnosis

    Bruce Willis’ Wife Has Heart-Wrenching Response When Asked If He Understands His Diagnosis

    Emma Heming Willis, the wife of actor Bruce Willis, gave an update on her husband’s health in an emotional interview on Monday.

    The “Die Hard” actor was diagnosed with aphasia in 2022, and the family revealed this year that Willis also has frontotemporal dementia.

    “Dementia is hard,” Heming Willis said during an appearance on the “Today” show with Hoda Kotb. “It’s hard on the person diagnosed, it’s also hard on the family. And that is no different for Bruce, or myself, or our girls. And when they say that this is a family disease, it really is.”

    Heming Willis began to get emotional as she said it was both “the blessing and the curse” to finally figure out her husband’s diagnoses.

    “It doesn’t make it any less painful, but just being in the acceptance and just being in the know of what is happening to Bruce just makes it a little bit easier,” the model said, appearing to hold back tears.

    When Kotb asked if the actor was aware of his condition, Heming Willis said “it’s hard to know.”

    But Heming Willis said she has ensured that the two children she shares with the actor ― Mabel, 11, and Evelyn, 9 ― know about their father’s diagnosis.

    “We’re a very honest and open household,” Heming Willis said, adding that it was important to explain the disease itself to them. “When you know what the disease is from a medical standpoint, it sort of all makes sense.”

    She said she doesn’t “want there to be any stigma or shame attached to their dad’s diagnosis, or for any form of dementia.”

    Heming Willis, who calls herself her husband’s “care partner” instead of “caretaker,” also said that Willis is still teaching his youngest kids “so much,” including “patience, resilience” and “how to care and love.”

    “It’s a really beautiful thing amongst the sadness,” she said. “Bruce would really want us to be in the joy of what is.”

    Rumer Willis, Demi Moore, Bruce Willis, Scout Willis, Emma Heming Willis and Tallulah Willis attend Moore’s “Inside Out” book party on Sep. 23, 2019, in Los Angeles.

    Stefanie Keenan via Getty Images

    Willis’ family ― including his ex-wife, Demi Moore, and the former couple’s three adult children ― announced last year that the two-time Emmy winner had been diagnosed with aphasia and would be retiring from acting.

    The family said in a joint statement that Willis “always believed in using his voice in the world to help others, and to raise awareness about important issues both publicly and privately,” which is why they decided to come forward about his diagnosis.

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  • Singing Might Aid Recovery After a Stroke

    Singing Might Aid Recovery After a Stroke

    By Cara Murez 

    HealthDay Reporter

    TUESDAY, Jan. 3, 2023 (HealthDay News) — Singing may help stroke patients regain communication skills, according to new research.

    About 40% of stroke survivors have aphasia, a difficulty to deliver or comprehend spoken or written language. That impairment is ongoing for about half of those patients a year after their stroke, potentially affecting quality of life or leading to social isolation.

    Researchers in Finland studied a singing-based group rehabilitation program.

    “Our study utilized a wide variety of singing elements, such as choral singing, melodic intonation therapy and tablet-assisted singing training,” said study co-author Anni Pitkäniemi, a doctoral researcher at the University of Helsinki. She spoke in a university news release.

    Melodic intonation therapy involves using melody and rhythm to progress gradually from singing toward speech. It has been used to some extent in aphasia rehabilitation.

    Though previous research had determined that it was possible to retain singing ability even in severe aphasia, the use of singing — especially choral singing — had not been widely studied in aphasia rehabilitation.

    Rehab sessions were led by a trained music therapist and a trained choir conductor.

    While singing therapy has typically been done individually, these researchers suggested that singing-based group training should be used as part of aphasia rehabilitation.

    “In addition to training in speech production, group-based rehabilitation provides an excellent opportunity for peer support both for the patients and their families,” said co-author Sini-Tuuli Siponkoski, a postdoctoral researcher at the university.

    The researchers also found that the burden experienced among family caregivers participating in the study decreased notably.

    “Our study is the first where caregivers participated in rehabilitation and their psychological well-being was evaluated,” Siponkoski said in the release.

    The findings were published Dec. 27 in the journal Brain Communications.

    More information

    The American Stroke Association has more on aphasia and stroke.

     

    SOURCE: University of Helsinki, news release, Dec. 28, 2022

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  • Stroke Across America: Only 500 Miles Remain in 4,300-Cycling Journey to Raise Awareness for Stroke & Aphasia

    Stroke Across America: Only 500 Miles Remain in 4,300-Cycling Journey to Raise Awareness for Stroke & Aphasia

    Press Release


    Aug 18, 2022

    What do two educators, a nonprofit executive, and a former varsity soccer college athlete have in common? Brain Injury. They join the more than 5.3 million people living in the United States with brain injuries that have left them with disabilities. 

    Twelve weeks ago, this group launched their bikes from Astoria, Oregon, intent on raising awareness about stroke, aphasia, brain injury, and the subsequent emotional recovery. Known as Stroke Across America, this 4,300-mile cycling route was designed to enable the team to visit cities across the country to connect and celebrate stories of hope and resilience. “What a joy it has been to spend the summer meeting new people, many stroke survivors and those who support them, especially after two long, isolating years of living in the COVID pandemic,” said former college professor, stroke survivor, and author Debra Meyerson. 

    Community events remain for Albany, New York (Aug. 19), and Northampton, Massachusetts (Aug. 24), with a final celebration hosted by Boston University’s Sargent College on Aug. 27 in Boston.  

    Fulfilling a Lifelong Dream and Pedaling for a Purpose

    For Steve Zuckerman, a nonprofit executive and father of three adult children with his wife Debra Meyerson, cycling has been a lifelong way to stay active. Cycling across the country has been on their “bucket list” for decades. So when Debra, a Stanford University professor, experienced a severe stroke in 2010, it changed their lives forever. But Meyerson and Zuckerman have refused to let the disabilities that Debra has from her stroke, including aphasia, stop them from living life to the fullest. Aphasia forced Meyerson from her job at Stanford, but with help from Steve, her son Danny, and others, she wrote Identity Theft: Rediscovering Ourselves After Stroke. The couple also co-founded the nonprofit Stroke Onward to ensure stroke survivors and their supporters have the resources needed to rebuild identities and rewarding lives. 

    Steve and Debra could have easily organized a cycling trip to enjoy a cross-country journey alone. But knowing how powerful it is to connect with others and the importance of raising awareness about stroke and aphasia, they were inspired to think much bigger. “We knew that sharing our story and meeting others to learn about their experiences had the potential to spark needed change in the healthcare system to better meet the needs of stroke and traumatic brain injury survivors everywhere,” said Zuckerman and Meyerson. 

    Debra and Steve are joined by two other survivors on this ride: Michael Obel-Omnia and Whitney Hardy. The Stroke Across America team invites everyone to Join the Journey by visiting strokeacrosseamerica.org or @strokeonward on Instagram.

    Go here for the long-form press release, photos, and video assets. For interviews, please contact Flannery O’Neil, Executive Director, Cell: 602-317-8095, email: flannery@strokeonward.org

    Source: Stroke Across America

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