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Sufjan Stevens reveals Guillain-Barré syndrome has left him wheelchair-bound
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Sufjan Stevens is battling Guillain-Barré syndrome, a devastating autoimmune disease that has left him wheelchair-bound and required him to relearn how to walk.
Stevens, 48, shared his scary medical story Wednesday in an Instagram post.
“Last month I woke up one morning and couldn’t walk. My hands, arms and legs were numb and tingling and I had no strength, no feeling, no mobility,” he wrote.
Following a battery of tests — “MRIs, EMGs, cat scans, X-rays, spinal taps (!), echo-cardiograms, etc.” — the “Chicago” singer received his Guillain-Barré diagnosis. The disease occurs when the body’s immune system attacks its own nerves.
“Luckily there’s treatment for this — they administer immuno-hemoglobin infusions for five days and pray that the disease doesn’t spread to the lungs, heart and brain,” Stevens wrote. “Very scary, but it worked.”
Jason Kempin/Getty Images for Tibet House US
Sufjan Stevens performs at Carnegie Hall on March 16, 2017.
After two weeks in the hospital, Stevens said he started rehab on Sept. 8. He has been focused on physical therapy to regain his strength.
“It’s a slow process, but they say I will ‘recover,’ it just takes a lot of time, patience, and hard work. Most people who have GBS learn to walk again on their own within a year, so I am hopeful,” Stevens explained. “I’m only in my second week of rehab but it is going really well and I am working really hard to get back on my feet.”
Stevens was nominated for a Grammy and an Oscar for his 2017 song “Mystery of Love,” which appeared on the soundtrack for “Call Me by Your Name.” His tenth album, “Javelin,” is set to be released on Oct. 6.
“Thank you for your thoughts and prayers,” he wrote on Instagram. “And a huge shout out to all the incredible caretakers of the world working night and day to help us heal. They are living saints.”
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Joseph Wilkinson
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