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Tag: Glioblastoma Foundation

  • Glioblastoma Foundation Launches Gliolab, Offering Three Cutting-Edge Genomic Tests to Deliver a Personalized Treatment Roadmap for Every Glioblastoma Patient

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    On Glioblastoma Awareness Day, the Glioblastoma Foundation proudly announces the official launch of Gliolab, a CLIA-certified genomic testing laboratory dedicated exclusively to glioblastoma. Gliolab will offer three state-of-the-art genomic tests that together provide a personalized treatment roadmap for every patient diagnosed with this aggressive brain cancer, transforming care and access for thousands of families.

    In a healthcare environment where 77% of cancer genomic testing claims were denied by private insurers in 2024, the Foundation has made a bold and unprecedented commitment: every glioblastoma patient will have access to this essential testing, regardless of their insurance status.

    “This is a historic moment for the glioblastoma community,” said Dr. Gita Kwatra, PharmD, MBA, Co-founder and CEO of the Glioblastoma Foundation. “By launching Gliolab, we are changing the standard of care. Every glioblastoma patient deserves a treatment plan grounded in their tumor’s biology, not guesswork. Our genomic tests make that possible.”

    The three tests now available through Gliolab include:

    • Whole Genome DNA Methylation Profiling with Epignostix Classifier:
      This test uses DNA methylation patterns to precisely classify the tumor and identify copy number alterations, enabling more accurate diagnosis and prognosis.

    • Comprehensive Genomic Profiling using PGDx Elio™ Tissue Complete:
      A broad next-generation sequencing (NGS) test that analyzes over 500 cancer-related genes to detect mutations, copy number changes, microsatellite instability (MSI), and tumor mutational burden (TMB).

    • Gene Fusion Testing using Archer FusionPlex™ Pan Solid Tumor v2 Panel:
      This RNA-based test detects gene fusions and splicing variants that may be actionable or diagnostic in glioblastoma and other brain cancers.

    Together, these three tests provide clinicians and patients with a personalized treatment roadmap to guide therapeutic decisions, enrollment in clinical trials, and identification of novel treatment options.

    “As a neuro-oncologist who has treated glioblastoma patients for decades, I can say without hesitation: this kind of molecular insight is long overdue,” said Dr. Mark Gilbert, former Chief of the Neuro-Oncology Branch at the National Cancer Institute and advisor to the Glioblastoma Foundation. “The Foundation has done something extraordinary. Launching Gliolab and removing financial barriers to testing ensures that every patient-insured or not-gets the chance to receive optimal care.”

    Under the Foundation’s innovative three-tiered payment plan:

    • Patients with no insurance will receive free testing funded by philanthropy;

    • Patients with Medicare and private insurance will only be responsible for a co-pay.

    • The Foundation will be responsible for all other costs and claims.

    This model ensures equity of access while emphasizing that personalized treatment is not a luxury-it should be the standard of care.

    Physicians, hospitals, patients, and families seeking more information should contact the Foundation directly at info@glioblastomafoundation.org.

    About the Glioblastoma Foundation

    The Glioblastoma Foundation is a national nonprofit organization committed to transforming care for glioblastoma patients. Through genomic testing, translational research, drug development, and patient advocacy, the Glioblastoma Foundation works to improve outcomes and accelerate the path to a cure. To learn more please visit www.glioblastomafoundation.org.

    Contact Information:

    Ashley Pattman
    Media Outreach Coordinator
    info@glioblastomafoundation.org
    919-402-1775

    Source: Glioblastoma Foundation

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  • Glioblastoma Foundation Genomic Testing & Research Laboratory Ribbon-Cutting Ceremony on Sept. 3rd

    Glioblastoma Foundation Genomic Testing & Research Laboratory Ribbon-Cutting Ceremony on Sept. 3rd

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    Opening of testing lab ushers in a new era of targeted treatments to change glioblastoma diagnosis from terminal to treatable

    The Glioblastoma Foundation is hosting a welcome ceremony to inaugurate its innovative Genomic Testing & Research Laboratory, a first-of-its-kind lab in the U.S. The cutting-edge laboratory is set to revolutionize the fight against glioblastoma by offering patients access to advanced genomic testing and personalized drug identification. Attendees will have a first-hand opportunity to tour the state-of-the-art lab, meet the team behind this groundbreaking initiative, and learn about the future of tailored glioblastoma treatment. The Lab aims to provide crucial, low-cost testing services and faster turnaround to enhance outcomes and improve quality of life for glioblastoma patients.

    WHAT: To mark the opening of the Genomic Testing & Research Laboratory, the Glioblastoma Foundation is hosting informational speakers and a guided tour of the Lab and testing equipment.

    WHO: Oncologists, neurologists, researchers, patients and their families, the media, and anyone else interested in leading the fight against the most aggressive form of brain cancer are welcome.

    WHERE: The Chesterfield Building, 701 W. Main St., Suite 200, Durham, NC 27701

    WHEN: Tuesday, September 3, 2024; 10:00 AM – 2:00 PM

    Scheduled activities

    10:00 AM – 10:15 AM  Registration & Refreshments

    10:15 AM – 10:30 AM   Welcoming Remarks, Gita Kwatra, PharmD, MBA CEO, Glioblastoma Foundation, Durham, NC 

    10:35 AM  – 10:55 PM  Glioblastoma Diagnosis & Surgery, Christopher Jackson, MD, Assistant Professor, Dept of Neurosurgery Johns Hopkins University, Baltimore, MD 

    11:00 AM – 11:20 AM   Postsurgical Management of Glioblastoma Patients, Glenn Lesser, MD, Professor & Deputy Director, Atrium Health Wake Forest Baptist, Comprehensive Cancer Center Wake Forest University Medical Center, Winston-Salem, NC

    11:25 AM – 11:45 AM   Mission of the Personalized Medicine Coalition (PMC), Christopher Wells, MPA, Senior Vice President for Public Affairs, PMC, Washington, DC  

    11:50 AM – 12:00 PM   Ribbon-Cutting Ceremony  

    12:00 PM – 1:00 PM     Catered Lunch 

    1:00 PM – 2:00 PM       Guided Lab Tours        

    DETAILS: RSVP By August 29, 2024, to Sydney Carmer at sydney@glioblastomafoundation.org

    For more information about the Glioblastoma Foundation, visit https://glioblastomafoundation.org/

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    About the Glioblastoma Foundation: Established in 2016, the Glioblastoma Foundation aims to transform glioblastoma treatment and care through research, advocacy, and support initiatives. By funding innovative research projects, raising awareness, and providing resources for patients and families, the Foundation strives to improve outcomes and quality of life for those affected by this aggressive form of brain cancer. Initiatives such as the Genomic Testing & Research Laboratory will allow the Foundation to transform glioblastoma from a terminal cancer to a treatable one within the next five years. For more information about the Glioblastoma Foundation, please visit https://www.glioblastomafoundation.org.

    Source: Glioblastoma Foundation, Inc.

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  • Glioblastoma Foundation Hosts ‘Rock Against Glioblastoma’ (RAG), Shining a Spotlight on Deadliest Form of Brain Cancer

    Glioblastoma Foundation Hosts ‘Rock Against Glioblastoma’ (RAG), Shining a Spotlight on Deadliest Form of Brain Cancer

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    First Annual Music Festival Features Talented Lineup of Performers at the Legendary Cat’s Cradle, Raising Vital Funds for Glioblastoma Research & Treatment

    The Glioblastoma Foundation (https://glioblastomafoundation.org/) is excited to announce its inaugural Rock Against Glioblastoma ™ (RAG) music festival – raising awareness of Glioblastoma, a highly aggressive terminal stage 4 brain cancer, as well as critical funds for the development of new and more effective treatments. It is a heartfelt tribute to the memory of the late drummer Sara Romweber, who lost her battle with the disease in 2019. Glioblastoma also claimed the life of renowned Rush drummer Neil Peart in 2020.

    Rock Against Glioblastoma (RAG) takes place December 2nd at the historic Cat’s Cradle in Chapel Hill, NC, featuring an incredible lineup of well-known performers. Doors open at 6:30 p.m. EST, with performances by The Popes, What Peggy Wants, Bad Checks, Snatches of Pink, and Sara’s brother Dex Romweber. Tickets are available at the door and online for $20.

    Funds raised during this event will be used to advance critical glioblastoma drug development and other new treatments for patients. Monies will also go towards continuing ongoing research on repurposing existing drug therapies for glioblastoma and developing a blood test for early detection of glioblastoma.

    Glioblastoma Foundation CEO Gita Kwatra stated, “We believe that no one should hear the word ‘glioblastoma’ for the first time upon their own diagnosis. Our mission is to educate, connect, and involve the public in understanding glioblastoma well before it affects them or their loved ones. We’re eager to bring more awareness to this issue through the music community, who have already lost so many due to the disease.”

    For more information about the Rock Against Glioblastoma (RAG) music festival, sponsorship opportunities, or to purchase tickets, please visit the Glioblastoma Foundation website at https://glioblastomafoundation.org/get-involved/rock-against-glioblastoma-music-festival

    About the Glioblastoma Foundation:

    The Glioblastoma Foundation is a national non-profit organization dedicated to improving the standard of care for glioblastoma patients. The organization funds innovative research, provides patient and family support and education, and advocates for policies that expedite the development of improved treatments. Learn more at https://glioblastomafoundation.org/.

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    Media Contact:

    Rita Tennyson

    rita.tennyson@orcapr.com

    310-779-9747

    Debbie Koke

    debbie.koke@orcapr.com

    914-536-7557

    Source: Glioblastoma Foundation

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