genetic disorder

Runners fill the streets of Durham for annual ‘Cupid’s Undie Run’

February 17, 2024 · Raleigh-Durham, North Carolina Local News

Sunday, February 18, 2024 2:39AM Participants ran for a mile in their undergarments to raise awareness of neurofibromatosis. DURHAM, N.C. (WTVD) — Dozens of runners filled the streets…

Becoming ZebraStrong: Ehlers-Danlos Society Launches International Patient Empowerment and EDS Awareness Tour

October 9, 2018 · Lifestyle

Patient Advocate and International Executive Director Lara Bloom to screen inspiring documentary, “Issues with my Tissues,” to empower patients, families, and raise awareness for EDS and associated disorders…