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  • Celine Dion's Sister Gives Update On Singer's Stiff-Person Syndrome

    Celine Dion's Sister Gives Update On Singer's Stiff-Person Syndrome

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    Claudette is updating fans on how her sister Celine Dion is going in her ongoing battle with stiff-person syndrome.

    This comes after the artist took a step back from performing last year to manage her health. Now, per Claudette, the neurological disorder has caused Celine Dion, age 55, to lose control of her muscles.

    “She works hard, but she has no control over her muscles. What makes me sad is she was also so disciplined,” Claudette reportedly told French publication 7 Jours.

    As mentioned, Dion let fans in on her health struggles in December 2022 via social media. In a short clip, she revealed that doctors diagnosed her with stiff-person syndrome after trying to pinpoint the cause of her spasms. Dion added that it was “really difficult” for her to “talk about everything” she had been experiencing.

    At the time, she was already having trouble walking and using her vocal cords like she used to. However, she reassured fans that she had a “great team” of medical specialists and the support of her three children, René-Charles and twins Nelson and Eddy.

    Watch her full announcement below.

    The effects of the rare disorder forced Celine Dion to cancel all of her 2023 shows. In her Dec. 2022 announcement, she mentioned they’d be rescheduled to 2024. However, by May 2023, Dion had canceled the remainder of her world tour. Now, it’s unclear if she’ll ever touch a mic again.

    “Vocal cords are muscles, but so is the heart. That’s what gets to me. Because it’s one in a million case, scientists don’t have much research on the topic because it didn’t affect that many people,” Claudette reportedly said.

    There’s no cure for stiff-person syndrome, it is only managed with medications such as muscle relaxers. In addition to stiff muscles that can lead to falls and related injuries, people diagnosed with the disorder also experience greater sensitivity to noise, touch, and emotional distress. The symptoms can appear between ages 30 and 60, per the National Institute of Neurological Disorders and Stroke.

    Despite this nightmare for their family, Claudette added that Celine Dion has received an output of love and support since the reveal.

    “If you only knew how many calls we receive at the [Foundation Maman Dion for disadvantaged kids] to hear from Céline,” Claudette said. “People tell us they love her and pray for her. She gets so many messages, gifts, blessed crucifixes.”

     RELATED: WATCH: Justin Bieber Shows Mobility In His Face After Temporary Paralysis From Ramsay Hunt Syndrome

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    Cassandra S

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  • Céline Dion’s sister shares heartbreaking update on singer’s health battle | Globalnews.ca

    Céline Dion’s sister shares heartbreaking update on singer’s health battle | Globalnews.ca

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    Céline Dion‘s sister has revealed a heartbreaking update on the singer’s health as she continues to seek treatment for stiff-person syndrome.

    Speaking with Le Journal de Montréal, Claudette Dion said that another of their sisters, Linda, had moved in with Céline to help with her care.

    The 55-year-old chanteuse first revealed her diagnosis of stiff-person syndrome (SPS) to the public last December, saying the disease does not allow her “to sing the way I’m used to.”

    Since then, she has gone on to cancel the rest of her world tour, which was supposed to take the singer to Europe and the U.K. this fall and next spring.

    “I’m so sorry to disappoint all of you once again,” Dion, 55, said in a May 26 statement. “I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100 per cent.

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    “It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again. I want you all to know, I’m not giving up… and I can’t wait to see you again!”

    The move came after she postponed her return to her Las Vegas residency in 2021, citing medical issues.

    Claudette has now revealed that the hit-maker is struggling to find any medications that work for her.

    “When I call her and she’s busy, I speak to my sister Linda who lives with her and tells me that she’s working hard. She’s listening to the top researchers in the field of this rare disease as much as possible,” she told Le Journal.

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    “I honestly think that she mostly needs to rest. She always goes above and beyond, she always tries to be the best and top of her game. At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”


    Click to play video: 'What is ‘Stiff-Person Syndrome’?'


    What is ‘Stiff-Person Syndrome’?


    When she revealed her diagnosis with the disease, the singer said at the time that she had been “dealing with problems with [her] health for a long time.”

    The cause of this extremely rare disease is still unknown, according to the Yale Medicine website, “but researchers suspect that it may be the result of an autoimmune reaction where the body attacks nerve cells in the central nervous system that control muscle movement.”

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    The name doesn’t do justice to the pain and life-changing symptoms the syndrome causes, Tara Zier, founder of the Stiff Person Syndrome Research Foundation, told The Canadian Press earlier this year.

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    “A lot of people have challenges with mobility. Many have assisted devices for mobility, walkers, wheelchairs. Some people are bedridden,” she said.

    The Stiff Person Syndrome Research Foundation says, “the most common symptoms of SPS are muscle rigidity, stiffness and spasms in the muscles of the trunk including the back and limbs.”


    FILE – Singer Celine Dion performs during her Courage tour in Quebec City on Sept. 18, 2019. Dion has put a halt on all performing after being diagnosed stiff person syndrome.

    Jacques Boissinot / The Canadian Press

    These can be triggered by environmental stimuli, like loud noises, or emotional stress according to Yale Medicine.

    “The muscle spasms can be so severe they cause the person to fall down. The muscles gradually relax after the stimulus is gone,” the Yale Medicine website states.

    While there is no cure for SPS, when doctors treat patients with this condition, Yale Medicine says they focus on managing the symptoms with medications “such as sedatives, muscle relaxants, and steroids.”

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    Claudette told Le Journal that her sister has seen little improvement with her health, but the family is hoping for the best.

    “We can’t find any medicine that works, but having hope is important,” she said.

    &copy 2023 Global News, a division of Corus Entertainment Inc.

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    Michelle Butterfield

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